ALS-It Takes My Breath Away

ALS-It Takes My Breath Away Hello, Im Joel, I have advanced ALS.. I decided to get a trach. The only person, to help you decide, My goal is to make people more aware about ALS.

ALS, also known as Lou Gehrig's Disease is a degenerative disease and usually fatal. It kills motor neurons and eventually we lose the ability to breath on our own.

02/05/2025
07/04/2023

Yum!
Kyle, maybe you want to try this??

07/04/2023

Today is my Mother-in-law's Heavenly birthday. Much love, Ida.

A Japanese Lilac Tree planted in memory of my husband.  May 16, 2021.
08/23/2021

A Japanese Lilac Tree planted in memory of my husband. May 16, 2021.

02/23/2020

Tomorrow marks 2 months missing Joel. I know he is healed and not suffering. In memory of his birthday, Feb. 13th, I invited his nurses and aides for bbq's, birthday cake, etc. but most of all I celebrated them for their love, compassion and helping us with his cares. God Bless.

01/02/2020

It saddens me to say that my husband, Joel has gone to Heaven on December 23, 2019.
He was not bitter but felt he was chosen for some unknown reason. He enjoyed traveling, his grandchildren, cooking, electronics and his job with Homeland Security. I must say our journey was very hard at times but he showed me what courage was. I am proud of my husband and I miss him so very much ever moment of my day. God Bless.

11/11/2018

Discovered 12,852 times using Shazam, the music discovery app.

07/29/2018

Today Joel and I are celebrating our 23rd wedding anniversary today. God has been good to us.

Snuggle time with great nephew, Elijah.
09/03/2017

Snuggle time with great nephew, Elijah.

09/12/2016

The number of ALS cases worldwide is expected to increase by 69% over the next 25 years, according to projections in the August 11 Nature Communications.

06/20/2016

The National ALS Registry is a congressionally mandated program to collect and analyze data regarding persons with ALS in the United States. The goals are to determine the incidence and prevalence of ALS, characterize the demographics of those living with ALS, and examine the potential risk factors…

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