Family Voices North Dakota

Family Voices North Dakota We assist families of children and youth with a chronic health condition or disability for the state We are a non-profit 501(c)(3) organization.

Family Voices of ND- "Navigating Crossroads to Hope"
Caring for children with special needs and disabilities can be at times overwhelming, exhausting and complex. Often families and caregivers struggle to find the resources and services their child and family may need. Family Voices of North Dakota is there to help families because we are too are parents who have children/youth and young adults with chronic health, physical, developmental and mental health challenges. Family Voices of North Dakota (FVND) is a statewide health information and education center for families who have children with a special health need or disability from birth to age 26 and for the professionals that serve them. A special health care need is a broad definition and includes: disability, chronic illness and physical or mental health condition. We are a free service to families which operates on grants, fundraising and private donations. When families are faced with a prenatal, at birth or later diagnosis, FVND assures that families receive informational and emotional support in caring for their child with a chronic illness or disability. Nearly 20,000 children in our state have some kind of health care need and over 40 percent of these children have a health condition that limits their play and school activities. That means 1 in 5 families within our area have children living with physical, mental or emotional disabilities; others live with a chronic illness and many present a brief, but life-threatening medical problem. Family Voices of North Dakota is available in all (8) regions across the state and the communities we serve help families become better parents, advocates, professionals and educators. When we all work together we can make an impact in the lives of families and their children. Parents become leaders, communities become inclusive and our children are embraced.

11/14/2025

We are taking immediate steps to ensure households receive their full or remaining November Supplemental Nutrition Assistance Program (SNAP) benefit in response to the program’s continuation after the 2025 government shutdown concluded on Nov. 13.
We expect participants to receive the funds as early as Monday evening.

Learn more: hhsnd.site/13t

11/14/2025

Special Olympics is making a plea with Kid Rock after the musician said the R-word during a live television broadcast to describe what he was going as for Halloween.

11/14/2025
11/14/2025

Welcome! You are invited to join a meeting: EAC Training 3 - Secondary-Transition Planning. After registering, you will receive a confirmation email about joining the meeting.

11/14/2025

The love parents have for their kids with disabilities is a fierce one.

It rages under the threat of exclusion.
It swells with each small victory.
It despairs under the weight of fear.
It grows with each passing day.
It moves steps ahead so they don’t get left behind.
It pushes against injustice.
It roars of their worth.

We tire, tire of advocating, tire of doctor and therapy appointments, tire of planning for their future even though the future is still so far.

&- our love does not.

It is always beating, it is always planning, it is always acting.

This is a reflection of what the Divine has given us through this unexpected life and how we have changed through these children we get to cherish.

Our children with a disabilities have grown our hearts and the capacity to love and to love well.

&- we are undone.
&- we are remade.
&- we are grateful for this fierce kind of love.
If this spoke to you, my new book Overwhelmed & Grateful will too: https://amzn.to/45fhRLp (aff)

11/14/2025

These OT recommended activiteis build skills and encourage play using household items. Use everyday items found in the home to help kids build skills.

11/13/2025

Sensory Processing Disorder can make any mom sing the baby blues. What if your infant has SPD and cries non stop?

11/13/2025

via The Therapist Parent

11/13/2025

Did you know that 352,000 American children are currently living with diabetes? Kids with this special health care need require specialized care and advocacy in school and in the health care system. Check out our resources developed by youth to help manage special health care needs at https://familyvoices.org/resource/youth-health/.

11/13/2025

Let’s talk about stimming.

You may notice a child flap their hands when excited, tap their pencils repeatedly, hum softly, rock back and forth, or pick at their fingers. These movements are known as self-stimulatory behaviours — or ‘stimming’.

Stimming is not attention-seeking.
It’s not misbehaviour.
And it’s certainly not something to be 'trained out'.

Stimming is a regulation tool.
For many neurodivergent young people, it helps calm the nervous system, release built-up energy, manage sensory overwhelm, or express joy.

When we understand stimming as communication and regulation, our response changes.
Instead of “stop that”, we move towards curiosity, support, and providing safe forms of sensory expression.

Save this and share with anyone who supports a young person.

11/12/2025

Stay up to date on early childhood developments in North Dakota. The Early Childhood News page is the central source for provider updates, learning opportunities, practical tips, grant announcements and other information that supports your work. Visit the link in bio to read the Early Childhood News!
www.hhs.nd.gov/ec-news

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Non Profit At 312 2nd Avenue W/PO Box 163
Edgeley, ND
58433

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Our Story

Family Voices of ND- "Navigating Crossroads to Hope"

Caring for children with special needs and disabilities can be at times overwhelming, exhausting and complex. Often families and caregivers struggle to find the resources and services their child and family may need. Family Voices of North Dakota is there to help families because we are too are parents who have children/youth and young adults with chronic health, physical, developmental and mental health challenges.

Family Voices of North Dakota (FVND) is a statewide health information and education center for families who have children with a special health need or disability from birth to age 26 and for the professionals that serve them. A special health care need is a broad definition and includes: disability, chronic illness and physical or mental health condition. We are a free service to families which operates on grants, fundraising and private donations. We are a non-profit 501(c)(3) organization.

When families are faced with a prenatal, at birth or later diagnosis, FVND assures that families receive informational and emotional support in caring for their child with a chronic illness or disability. Nearly 20,000 children in our state have some kind of health care need and over 40 percent of these children have a health condition that limits their play and school activities. That means 1 in 5 families within our area have children living with physical, mental or emotional disabilities; others live with a chronic illness and many present a brief, but life-threatening medical problem.