
11/26/2024
“Interoception was the missing piece”, Lynn Pankalla-Mother of neurodivergent child and “an ordinary but very motivated SLP”
Bringing this old post back because it asks such an important question: How do you advocate for less compliance and more regulation--especially when you feel like you are the only one in the room that believes in this imperative shift?
I was recently asked to help with a student---according to the referral he is a 17 year old autistic student who is currently "struggling" at school. He has been suspended multiple times this year for "aggressive and inappropriate behavior". Student has an IEP with Social Skills Goals and a recent FBA w/ updated Behavior Plan/Goals. Zero related services like speech or OT. Zero mention of supports for regulation, sensory, communication, predictability. Zero curiosity for his inner experience!!! When he becomes "aggressive" the plan is to get him to the "quiet room" which is a stark white room with nothing in it ("for safety of the student and staff" they say). If he continues to escalate and do things that “break school rules” he gets suspended. Every question I asked was met with a 'we tried that' or 'that would reinforce his behavior' or 'he needs to learn that this behavior is illegal, inappropriate, etc'. I felt so alone and activated in this meeting, but couldn’t stop thinking about how many million times worse this student might feel coming to school every day.
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Image description: a teen sits on a wall and thinks