Breanna Rett Syndrome Warrior

01/16/2025

Please send some love and possibly support to another Rett syndrome warrior who gained her wings. 🙏

https://www.facebook.com/share/1H3gHMnCtV/

09/18/2024

My girl, my heart, and the reason I am now going for my CNA. I love you and miss you every time I breathe. I wish I could have done so much more. I love you always and forever.

07/21/2024

It really was a difficult choice to find the best match for my girls new car seat and stroller. It was an emotional rollercoaster for sure but worth it. Mia was in desperate need of this new wheelchair. The old one she has long grown out of and was bulky and so uncomfortable for her after her spine surgery. She was turned down by insurance after seeing this chair 😭 a strain all of us can relate to. I love that she can grow with it and her smile says it all. Her amazing mom of four girl's busted butt to make sure she got this for her girl. She is one busy mom keeping up with all her girls and needed something light weight and more comfortable. Please share some love for this amazing family. Meli Alvarez may my girl be an angel watching over Mia as she continues to be a Rett Syndrome Warrior.

05/30/2024

04/29/2024

Update on us. First, I want to thank those who have checked in on us or we run into and share their concerns. Those who have shared her link and donated to help us.

In some areas its getting a bit better but other areas I feel like it's getting tougher. Sleeping for longer stretches of time without waking up every hour to check on her, is improving. Falling asleep without crying is getting harder. Still got so many things I need to get to, like donating her stock pile briefs and her new car seat and matching stroller. Struggling to get that done though. I know eventually we need to donate her bed and hoyer lift, but right now I can't bring myself to move a single thing from her room. I've printed out and added more pictures to her bed, so it doesn't feel so empty when we go in there to talk and cry. Working and grieving has been the hardest part, especially when we struggle to sleep. We work two shifts a day almost twelve hours apart but still struggle with the added medical bills still coming in, not to mention gas prices putting a hit on our income doing deliveries. 😞 Our other kids bring us love and distractions but once they go back it leaves us feeling empty again.

I am continuing to fight to share awareness about Rett Syndrome. I will fight until my final breath. It's all I have left. The only way I can show love to a precious girl who changed our lives. A girl who's care was as great as her love. Who's now just a memory in our hearts and an angel guiding our path.



https://gofund.me/91db1a5c

04/19/2024

Cross post because it's hard to share on all forums.

So anyone who has followed my story, knows about my girl passing on March 11. Most know how like all of you, we struggled to survive and care for our girls. It's a fight like no other. Some of you you here have helped us by donating to her go fund me and have seen my updates on where the money we received has gone. Her cremation, her urn, her statue....so on. Yes we are still struggling financially because of all the left over medical bills coming in and weeks of not working to care for her and the week off with hospice as we stayed by her side.

My question is to those who have donated or are planning to, how do you feel about some of your donations going to local small causes for children in Breanna name? Things that would matter to kids. Like a kids fishing tournament, that give fishing gear to kids and teach them about fishing and care for our environment. This will spread the word about Rett Syndrome and be donating to a cause for kids. I will share the stories of donations and where your money donated is "actually" going. So your not left wondering. Please comment your opinion.

If you would like to donate or share her go fund me I will post it below. I can also accept money through the Facebook messenger app free of charge. Love that compared to go fund me honestly. I will also share the link to Breanna Rett Syndrome Warrior page so you can share and follow for updates.

https://gofund.me/0abc17b5

Breanna was born with Rett syndrome and was a Retts warrior until she passed March at 23 yo.

04/18/2024

More information about Rett Syndrome. Sadly Brea did have the most severe.

This rare genetic disorder affects the way the brain develops, causing a progressive inability to use muscles for eye and body movements and language.

04/18/2024

Oh how I miss that laugh.