Kirasupdates

Kirasupdates This page is dedicated to Kira’s Journey and fight with inoperable & cancerous brain tumor. OK, a lot of people are asking when/how this all happened. Thank you!

This page is for friends, family and supporters of Kira and her fight with brain cancer. This started Friday 11-3-17. We learned of the diagnosis 11-9-17…

Many people following this that are friends of Robert’s (dad), Wendy’s (mom) or Kira’s (Baby girl). Just wanted to give an idea how this played out. If You want, you can donate at https://www.gofundme.com/helpkirafight or directly to my paypal account (no fees) @ wendyastanley@gmail.com. Her Timeline:

Late September - Kira complained about double vision. We took her to an optometrist and they prescribed her new contacts. We know it sometimes takes a while to adjust so we gave it a little time but the double vision did not improve. Friday, Nov 3 – Kira complained of a bad headache which continued through the weekend. We made attempts to manage it with OTC meds, rest, dehydration, etc

Monday, Nov 6 – Wendy took Kira to urgent care because Kira still had the headache and was feeling dizzy. The urgent care doctor suggested that we call our primary care physician and make an appointment to either do an MRI (he was concerned more about the double vision) or have the doctor do a migraine “workup”. He told us to take Excedrin Migraine – which actually seemed to relieve her pain that night. Tuesday, Nov 7 – Kira woke up feeling dizzy again and the headache had returned. Wendy took her to the ER. The ER doctor did bloodwork to check for infection, cell counts, etc. All good. He recommended we keep our appointment for the general practice doctor (which I had scheduled for 2:30 that day). He suggested that the general doctor order an MRI. Same day, Tuesday, Nov 7 – General doctor visit. The doctor said he was concerned about the double vision and ordered an MRI stat. The imaging place could not make an appointment for us until Friday (ironically today – the day I’m writing this timeline). We went home and tried to manage the headache and rest. Wednesday, Nov 8 – Kira woke up nauseous and with a headache. She experienced slurred speech and dizziness and spinning. Wendy called the general doctor’s office and they told her to go directly to the ER (again). Same day, Wednesday, Nov 8 – Went to the ER in Encinitas. The ER doctor did a lumbar puncture (spinal tap) to test for meningitis. Those results came back negative. The ER doctor ordered an MRI which they did. After a long while of waiting, the doctor relayed the findings of the MRI to Wendy. Large mass in the base of the brain that appeared to be malignant. (side note: Robert had been in AZ for a work conference during all of this. He was not due back in San Diego until Saturday. He sped back home in Kira’s car (she coincidentally just bought that was in AZ)

Wednesday to the ER and arrived just after receiving this news about the tumor. He may have driven so fast that he broke the car :-/)

Same night, Wednesday, Nov 8 – transferred by ambulance to Rady Children’s Hospital ICU. They did another, more comprehensive MRI around 10pm. The doctors were gone for the night. Thursday, Nov 9 – Team of doctors, social workers, nurses and life specialists informed us that it was indeed a cancerous tumor. We have since been sorting through a flood of information about cancer, brain tumors, clinical trials, biopsies, pain management, quality of life, etc. Thank you to everyone for all your support and referrals and research and snacks and prayers and hums and positive vibes. Your positive energy is felt and appreciated.

This was 6 years ago… a day after my girl tried to take her own life after battling brain cancer for 2 years… because sh...
12/08/2025

This was 6 years ago… a day after my girl tried to take her own life after battling brain cancer for 2 years… because she didn’t want to be a burden - I would never hear her sweet voice again due to multiple intubations and extubations… she would never fully recover from this and I lost her less than a month later - for forever… it’s the realest thing anyone - you or me - can deal with. And I am still dealing with some of the most insignificant things that don’t even touch this part of ‘life’ - all I really want to say is…. Is what’s upsetting you right now really that important? Can you survive it? Is it just inconvenient or disappointing? The scale of suffering is eternal in all directions - and my intention isn’t to belittle anyone’s current struggles. Just posing some perspective. I hope all your current stress is temporary and will pass with much more ease than it seems in the moment. Love and hugs ❤️🤟❤️🤟❤️🤟





Added:

For those who did not see me original post opening up about these days I will post here and add the photos that help paint the story…::

I lied. Well, I wasn’t fully transparent. I didn’t know how to be. I think I was in shock. So many times, I had contemplated Kira’s sickness and wellness. But never under these circumstances….well, not “never”, but never really. The morning that Kira became unresponsive was indeed medication related. That part was true. But I knew more than I shared. So, I will share now…. 4 years later… the events of the scariest and most traumatic day of my life (so far).

We woke up that morning. Evan was here (as he usually was). I was working early and already getting sucked into my day. Kira sent me a text message (from her room). It went like this:

8:15am – WENDY: I am not feeling well this morning. I am going to go to the gym at 9 and see if I can work it off. You should take your Ritalin now and then at 12/12:30.
8:16am - KIRA: OK
8:20am – KIRA: Took a Ritalin
9:18am – KIRA: Are you going to da gym 🙂. Work out extra hard for me.
9:18am – WENDY: Maybe. I’m getting slammed at work
9:20am – KIRA: Take work off 🙂 didn’t you say you needed this
9:20am – WENDY – Yes. What are you up to> Do you need me to leave? You can just say so you know. 😊
9:22am – KIRA: I just want you to do something good for yourself
9:22am – WENDY: OK. I’ll go. Thanks baby.
9:23am – KIRA: Good (two heart emojies)
9:23am – KIRA: Work out hard for me.
9:23am – WENDY: Ok baby

So, I got dressed and checked in on her and Evan. They seemed fine. I did my normal mommy freakout routine that I did before I left her any time… make sure she had her meds, I would ration them out so I could help her remember since there were so many, fill her water, ask her if she were hungry, see if she needed help to go to the bathroom, etc., asked if she and Evan were OK probably a thousand times until they both got annoyed with me…. And I left for the gym which is right up the street. I wasn’t feeling well… not sick, just emotionally and mentally exhausted. Working out does help. And as much as I was trying to talk myself out of it, I knew it was probably a good thing.

I was on the stairmaster for about 30 minutes and Evan called. Why is Evan calling? I immediately answer all sweaty and out of breath and he is panicked. He’s speaking really fast about Kira acting really weird and seemed really tired and had white stuff all over her. he was making breakfast and that she had asked him to get her meds out of my room and that he had only left her for like 5 minutes to make her breakfast… he was crying and panicking…. I jumped off the stairmaster, ran to my car, and drove so fast and panicked and recklessly to get back home. I sped through red lights, drove down middle turn lanes, illegally passing other cars, screeched into my parking lot and jumped out of my car (didn’t shut the door or even turn it off)….ran up the 3 flights of stairs to my condo, burst in the door to find Evan in a complete panic, crying and talking and trying to understand what was happening…. Momma bear was in full gear… I shoved passed him, found my girl almost completely unresponsive… I shook her. I yelled at her, “KIRA!!!! WAKE UP!” and she was just limp. I told Evan to call 911… he was fumbling around, still couldn’t pull himself together. I grabbed him and yelled at him (the first and only time that has ever happened) and said CALL 911!!!! He did, and I was on the phone with the emergency line and they were asking if she was breathing, I couldn’t tell. They walked me through how to tell, lean her head back, put your ear to her mouth and listen. See if her chest was moving. She started walking me through CPR…. Which I had never done before. I had seen it done, but it is much different when your head is spinning, and you’re crying and panicked and desperate and it’s your baby girl and you’re freaking the f**k out.

I sent Evan outside to find the paramedics and lead them here. I live in a maze of a complex. A few minutes later, they barreled in and took over…. I was in total shock. What happened? Why had she wanted more meds? Did she take the wrong ones? Most of the rest of what I wrote about over the next couple of days was accurate… but one thing I left out was this… As we were in the ambulance on the way to the hospital, Evan messaged me and said there was a note… A NOTE??? My brain exploded. I went into shock all over again in the front seat of that ambulance. I asked what it said… He texted it to me. I could barely read it through my tears. But I thought, they need to know this was intentional. I wanted the medics to know what they were dealing with so that they could save her. I didn’t realize the implications this would have – but I’ll get to that in a minute…. I told the driver, I have reason to believe this was intentional. AND, she has a very serious brain tumor. Everything shifted.

The note said this:

Everyone: - I am sorry I’ve let you all down. I love you all. I just want to sleep. I’m only thinking about myself in this, honestly, this is so selfish and I know it is… but I’m in pain and miserable and I need it to end…make my funeral fun/funny. Evan – I’m so sorry you had to find me like this. I’m so so sorry and I will never ever be sorry enough babies. I can’t write this out…without changing my mind and deciding to stay with you, in your arms, forever… but, baby, I hope you understand. I was in pain and now I’m not, thinking of sleeping forever makes me happy…and I know I have hurt you tremendously….and I am so sorry, but you have your sister, and parents, and puppies… I was in pain and struggling, please understand… find a nice girl, one that can walk lol and continue to live, with me, I am always always going to be right here for you. I’m just in so much pain and so uncomfortable. I really hope you understand.

When we got to the hospital, she was rushed in… they cut her shirt off of her to place monitors all over her chest and stomach and even though I knew they had to, my instinct was “cover her up”, “she’s a teenage girl” “have some respect” my stomach was sick. I was scared, I was protective, I was embarrassed on her behalf through this process….she’s very conservative. Robert met me in the room where they had her. A person coded next to us and did not make it. I really cant explain what was going on in my head. Total shock, I’m sure. I was freezing again. I had been working out and sweating and was still in my gym clothes….Robert gave me his jacket. I don’t remember when I ever finally took a shower.

What I posted over the next couple of days happened with the exception of not knowing exactly what caused it all. I couldn’t share that the reason she was strapped to the bed was not only because she was intubated and they didn’t want her to pull the tubes out if/when she became conscious, but that she was also a su***de risk. I didn’t share that it wasn’t good enough for Robert and me to be in there to watch her to make sure she didn’t do anything – but they had to have a professional sit in the room with us because suicidal people are more likely to manipulate the people who care about them the most. How could I share that? How could I process that? How could my baby girl fight so hard and finally give up. I know how…. But I couldn’t process it. How could I let all of you down? I was processing and afraid… and she didn’t wake up right away. We were in the hospital for a week. She was unconscious for half that time.

Very few people know this story. I am sure some people came to this conclusion on some level. I have moved from feeling protective about this particular trauma to feeling like it is important to know just how devastating this disease is and how much these kids endure – not just physically, but emotionally. Kira was a beast. But she was a human teenage girl beast. I share this with you now because I believe, even as hard as it is to process, it is an important part of our story. Kira never really recovered from this, but she did come home and we did a hard reset on what we were going to try for her treatment. You have probably seen the video of me dragging her out of the bathtub and leaving her on the floor the night we got her home from that weeklong hospital stay or of Evan walking with her with the walker around the room. She told me the night we got home from the hospital – once she was showered and cleaned up and fed and in bed with me that she was sorry and that she was glad she didn’t die. My heart was so incredibly broken with the thought that she was hurting that bad and that it was so bad that she wanted it to end. Knowing your child is dealing with this in their own heads – even if they are surrounded by people who love them constantly – that they could feel so alone. She made some strides after that, participated in PT and speech therapy and eating and drinking therapy. She had a renewed passion toward her recovery. And she would live 22 more days. Fighting. And laughing. And loving and being loved. She had a moment of ultimate despair – and I don’t think anyone could blame her and maybe many of us would have chosen to end things for ourselves way earlier in the journey. This experience bonded Evan and me in an unspeakable way also. We were simultaneously the most panicked and scared than either of us had ever been. You don’t go through something like that with another person and it not change you.

I have always used this platform to be transparent and share the days of this journey up to and since my sweet girl’s passing. This is the one thing that I ever felt like I needed to hold back on. But I believe it is time. Because it might help someone. It might help a kid going through this. It might help families with children going through similar journeys. And I believe with all my heart, that Kira would approve.

This is a long post. I haven’t done that in a while. But this day haunts me as much as December 25th – if not more. Thank you always for loving Kira and our family.



11/26/2025

71st 25th…

A lot happened this past month…

Zane turned 26 and we had an amazing weekend with lots of friends in Mexico…

Zane’s and Kira’s brother (half) was born ❤️❤️❤️ Congrats Robert and Ally ❤️❤️❤️

Kira’s DX anniversary day… 11/9/2017

Shifting into one of the more challenging months - from early December all the way to Christmas… feelings and emotions come and go - sometimes subtly and occasionally violently… I can say this because I now have experience with this month. I used to be afraid of it and now, right now, there’s part of me that looks forward to it because, as low as the lows can be, I still feel such deep connection to my girl… and although we’re one month shy of 6 years… this coming month is etched in my brain, my heart, every part of my being. I don’t know if I’ll ever shake it. Every day of the next 30 days 6 years ago was pivotal - the shiftiest sands I’ve ever experienced. Tiny moments of hope, scary, scary moments of despair, torturous uncertainy and the tenderest moments of the biggest love I’ve ever felt.

Deep breaths…

❤️🤟❤️🤟❤️🤟



10/26/2025

70th 25th…

09/25/2025

69th 25th… I won’t be going to the beach today because of an early flight…. But I am going to do fun things with some of Kira’s favorite people… and mine, too… ❤️🤟❤️🤟❤️



Well you know if it took me two days to post about it, it must have been pretty spectacular! Spending Kira’s 24th birthd...
09/10/2025

Well you know if it took me two days to post about it, it must have been pretty spectacular! Spending Kira’s 24th birthday with all my ‘babies’ was exactly called for - I think for all of us. In fact, a couple of them may or may not still be crashed out on my couch. It was the best - really. Zane, Chris, Evan and Sonya all came over for what started out as a mellow birthday celebration with unraveling a huge bag of random cords, adapters and wires just to try to get the block rocker to pick up someone’s - anyone’s Bluetooth. We then went to the beach for the sunset and hung out and listened to the waves and some music and watched the sun go down. I forgot to bring the LED frisbees - but we got to those eventually. Back at my place, the cake decorating commenced… all very unique with deep concentration and a story behind them (which I hoped/knew would likely be the result) and then… all crazy broke loose… an EPIC cake in the face food fight - no face was spared! There was sugary icing and cake everywhere - on the floor, on the table, on the rug, in our ears, up our noses…. I haven’t laughed so hard since I don’t know when. That was followed by a soak (rinse, sorry HOA) in the hot tub. We had the best time… I love my kiddos so so so much. Kira would have absolutely loved this. And she was with us the whole time… we all felt her ❤️🤟❤️🤟❤️🤟

I could think of only one thing that would have made this a more perfect day…




So much love…

Even before September… I heard you… before the 25th of last month… I saw an uptick… as large as my ‘childhood cancer wor...
09/07/2025

Even before September… I heard you… before the 25th of last month… I saw an uptick… as large as my ‘childhood cancer world’ has become, there is a group here that wrenches my heart especially so. My Monterrey family… I see you… maybe you guys feel it, too… but I swear there’s been a recent vibe and movement. Some of you I haven’t seen post in a while… but it feels like there’s an uprising. Do you guys feel it?

September is… well, if you know, you know… childhood cancer… wtf. For our family, it’s also Kira’s birthday - 9/8/01… I still almost write that date or say it when asked ‘date of birth?’ - I have written it on more forms or said it to more pharmacists than I have my own.

But… that’s not my point. It’s the Monterrey, Mexico family group that I’ve been feeling lately. For you who don’t know, there was a group of parents who started before our journey with Kira but who became our co-warriors in the fight for all of our children’s lives. We all connected and became indescribably part of each others lives. Some more than others. And some still. We all were brought together in the incredible fight of our lives - the fight for our child’s life. And all - ALL - of our children have passed. All of them.

When my family joined this group, it was the beginning for some, the middle for some and the end for some… and all - desperate. We had a WhatsApp group thread of all these parents of kids who were desperately trying to connect dots. It was my lifeline for the most critical time in my life. We shared knowledge of treatments, tips on places to stay while in Mexico… we shared a driver who stole all our hearts… we shared medications and supplements and guidance and answered questions and welcomed new members. There was love and there was stress… We had disputes and agitation and care and concern and incredible support and acknowledgment that I will never ever forget. We not only fought for our kids, but we fought for the doctors and the right to continue treatment in the Monterrey hospital. We raised money and awareness. I felt like we shook the world with our stories.

Clearly not everyone on the DIPG journey went our way… and clearly, we have not found the light at the end of this tunnel.

But I have been seeing you guys… and I have been wanting to say so… my heart is still with all of you. I cannot believe - but am so grateful for - you in my life.

Here is a video compilation of 52 hours in Monterrey that Kira put togeher. You may have seen it before… and if you havent, this is what we experienced every two weeks for two years…

Thank you to my Monterrey family. I love you and you and your baby will always hold a special place in my heart.

https://youtu.be/iPqfIKIgSMM?si=wR924YRmS5KgEpGU





❤️🤟❤️🤟❤️🤟❤️ trere

Here is my trip to Mexico for my 11th treatment in the fight to beat D.I.P.G brain cancer. If you don't know what D.I.P.G brain cancer is.. well I don't exac...

08/26/2025

68th 25th…. ❤️🤟❤️🤟❤️🤟❤️

67th 25th… Kira loved music…  if she wasn’t listening to it, she was representing it or talking about it and learning li...
07/26/2025

67th 25th… Kira loved music… if she wasn’t listening to it, she was representing it or talking about it and learning life stories of the artists…

and it’s been a big week for music lovers… so this feels appropriate…

Kira and I were talking one day about what we could do to always feel close - even if we were apart… and we came up with the idea to make a joint playlist… we both added songs to it over time and it’s one of my favorite things in life… i have shared it before… and I’ll share it again now…

https://open.spotify.com/playlist/67O8FsBWgXm2eTLsg0cjj1?si=J0peouFURziYVgiJueTZlQ&pi=g2ug51hqTuqnVydis

🤘❤️🤟❤️🤘❤️🤟❤️🤘





R.I.P. Ozzy 🤘🤘🤘🤘

Finally caught up with my baby girl last night for an experimental chicken Florentine recipe… Zane is so smart, so impre...
07/12/2025

Finally caught up with my baby girl last night for an experimental chicken Florentine recipe… Zane is so smart, so impressive… she has officially launched her own company which offers graphic design and branding. You’ve seen her journey over the years - she’s putting it into action. Her website, which she developed, is https://www.dumostudio.com - she is open for business! As any new entrepreneur, she is eager to get things started - she has experience with big and small companies and she wants to take that experience and education and implement it in her own unique approach of helping others. Please check her out and feel free to share with friends. Dumo is open!! ❤️❤️❤️

66th 25th…. Just saying on month 6    Kira has been visiting me and many others in the last week. No joke. She’s all ove...
06/26/2025

66th 25th…. Just saying on month 6 Kira has been visiting me and many others in the last week. No joke. She’s all over and I love it. I was feeling heavy about it and then I started getting message after message from people I have not heard from in months and some years… thank you always for reaching out and telling me she crossed your mind. I love it more than I can say… something’s happening. I don’t know what. But I feel it coming…

65th 25th… ❤️🤟❤️🤟❤️
05/26/2025

65th 25th… ❤️🤟❤️🤟❤️




Didn’t get to see any of my kiddos for various reasons yesterday. But in anticipation of them coming over, I cleaned up ...
05/12/2025

Didn’t get to see any of my kiddos for various reasons yesterday. But in anticipation of them coming over, I cleaned up my house… so kinda like my own gift to myself 🙂 gonna try to catch up with Zane and Chris and possibly Evan today or this week. This has been an interesting Mother’s Day. Heard from some people I haven’t heard from in a long time. It was nice… I just relaxed which was beneficial after and very long week with all our employees in town… for those of you who know my introvert status. It was a lot of ‘peopling’ last week All is well… love to all you special moms out there… and thank you for all the ones who reached out to me specifically…

Much much love ❤️🤟❤️🤟❤️




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