Soren’s Light

Soren’s Light Life with lissencephaly. A place to share the ups and downs with family and friends.

✨ Our sweet Soren is turning THREE! ✨It’s hard to believe how much he’s grown this year — he’s made so much progress and...
10/10/2025

✨ Our sweet Soren is turning THREE! ✨
It’s hard to believe how much he’s grown this year — he’s made so much progress and continues to amaze us every single day.
A few people have asked what kinds of things he’s into or what would be helpful for him right now, so I put together a small list of toys and therapy items that fit his abilities and support his development as he keeps growing and exploring.
There’s absolutely no pressure to get him anything — your love, encouragement, and support mean the most to us. 💛 But if you’d like to take a look, here’s the link to his birthday list: https://www.amazon.com/hz/wishlist/ls/8T1STSNDS9BY?ref_=wl_share
Thank you for always cheering Soren on — he’s one loved little boy. 💫

Yay for an upgrade on Soren’s  goto seat! Nearly one year ago Soren won the fall giveaway from firefly, but he has grown...
09/04/2025

Yay for an upgrade on Soren’s goto seat! Nearly one year ago Soren won the fall giveaway from firefly, but he has grown so much since then and the size 1 was getting too small for him. We were lucky enough to find a size 2 seat from a mom whose son needed a size 1 so we traded and each shipped our seat to the other person. I’m so grateful for the special needs community. Being the mom to a disabled child can be so hard, it can be lonely, and it sometimes can feel like the world is against our kids. Equipment that helps our children participate in the way others do is expensive, toys are expensive, and the list goes on. Finding others who understand this struggle, and community where we all help each other is one thing that continues to shows us that we aren’t alone ❤️

08/28/2025
Thank you so much  for this beautiful blanket🥹 It meant so much to read your note, this blanket will be so treasured by ...
07/01/2025

Thank you so much for this beautiful blanket🥹 It meant so much to read your note, this blanket will be so treasured by us, it’s the perfect size for us to bring with us to appointments, use with his wheelchair, in the car seat etc!

Grateful for an amazing deaf community 🤍🤟  the amount of amazing things you do for this community makes me so thankful t...
04/19/2025

Grateful for an amazing deaf community 🤍🤟 the amount of amazing things you do for this community makes me so thankful to know you and for my children to be surrounded by so much love and support! We love you!

This little beach bum is so excited for our first summer being just a quick walk to the beach  🏖️ 🌊☀️
04/15/2025

This little beach bum is so excited for our first summer being just a quick walk to the beach 🏖️ 🌊☀️

Sunday fun in the rain out at the hatchery celebrating his big cousins FIFTH birthday! Soren loved watching the rainbow ...
04/07/2025

Sunday fun in the rain out at the hatchery celebrating his big cousins FIFTH birthday! Soren loved watching the rainbow trout jump and go crazy for food every time we tossed a handful in to them!

Fun new things happening in therapy for Soren at the moment 🤍 e-stim and learning to use a theratog! Then a little car n...
04/03/2025

Fun new things happening in therapy for Soren at the moment 🤍 e-stim and learning to use a theratog! Then a little car nap after working hard!!

Friday feels with Sorens bestie 🤟
03/21/2025

Friday feels with Sorens bestie 🤟

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