COTA for Cams Heart

11/18/2025

Please say some extra prayers for our little buddy tonight. He has his heart cath and biopsy in the morning! Please pray his body handles the procedure well and that we have zero signs of rejection 🩵

11/13/2025

Happy Heartiversary Cam! We may never know who gave you this gift if life but we want them to know we are SO THANKFUL that you chose to turn your tragedy into our miracle.

Cam is doing big things! We are eating puréed foods by mouth! Not enough to be enough for him to be fully nurished but one day I believe we will get there! He is crawling and almost walking! He is wearing his new shoes and ankle braces home for the first time and he will be running in no time! We are still working on talking but hopefully in time we will be saying all the words and wishing for peace and quiet. Cam you are so strong and we are so proud of you! You are a true testimony of gods grace.

08/10/2025

❤️

"But they had surgery…aren’t they healed now?"

It’s a question we hear too often when talking about kids with congenital heart defects.

There’s a misconception that once surgery is done, the battle is over. But the truth is, for many of these kids, surgery is just the beginning of a lifelong journey.

What people don’t see is what happens behind the scenes.

They don’t see the handful of medications taken every day just to keep their heart functioning and their body in balance.

They don’t see the weekly blood draws. Tiny arms poked again and again to make sure medication levels are safe and effective.

They don’t see the monthly echos checking heart function, watching for valve leakage, or monitoring for new complications.

They don’t see the quiet battles these kids face each day just to keep up with their peers. The fatigue, the shortness of breath, the moments where their body says “no” when they desperately want to say “yes.”

They don’t see the hours spent in physical and occupational therapy to build strength and coordination that come more easily to others.

They don’t see the struggle to overcome oral aversions, to learn how to eat or drink when every bite or sip is a challenge.

They don’t see the fear that comes with every new test, every follow-up appointment, every whispered “we need to keep an eye on that.”

So no, they are not “healed” after surgery.

They are survivors. Fighters. Warriors.

Still facing the storm every single day with courage that most will never understand.

Please don’t assume the journey is over.

Sometimes, it’s only just begun.

07/22/2025

Cam is trying so hard to figure out this standing thing! We are so proud of you buddy! 💙

04/20/2025

Cam has been working really hard on his crawling 🥹💚

02/13/2025

Cam Elliot is so happy to be home! ❤️

02/10/2025

After 10 long days we are heading home! ❤️

02/07/2025

Wear Red for Cam tomorrow, February 7th and tag us ❤️❤️❤️

02/06/2025

Update on Cam:
He’s getting a little bit better every day. We seem to finally be able to keep his HIGH fevers under control. He’s on a round of IV antibiotics that will end on Monday because he developed pneumonia on top of his three viruses. He’s mostly fine as long as mommy holds him all day and night.