Kason's Journey with Duchenne

07/23/2025

Hey everyone,
I just wanted to check in and let you all know what’s been going on with us. Our entire family has been hit pretty hard with Flu B, and it’s honestly taken us down one by one. Between fevers, chills, nausea, body aches, and just trying to keep up with basic care needs, it’s been a rough couple of weeks around here.

I know I haven’t posted much about Kason lately, and I appreciate everyone who’s reached out to check in. The truth is, I just haven’t had the energy to keep up with updates while also trying to recover myself and take care of the kids. Being sick while still needing to be a full-time caregiver is no easy task, and it’s been a real challenge.

That said — once we’re all feeling better and this flu is finally behind us, I’ll be sharing some really exciting news and updates about Kason and everything going on with our family. There’s a lot to catch up on, and I can’t wait to fill you all in when we’re in a better place physically and mentally.

Thank you so much for your patience, love, and support. Please keep us in your prayers as we continue to rest and recover. ❤️

Stay safe and healthy—this flu crap is no joke.

07/05/2025

🎆🇺🇸 Yesterday on the 4th of July, we celebrated more than just freedom — we celebrated strength, hope, and our hero, Kason. 🇺🇸🎆

Just last summer, Kason could still walk. He chased fireworks with joy in his heart. But Duchenne Muscular Dystrophy moves fast — and this year, it took that ability from him.

Now fully non-ambulatory, Kason faces every day in his wheelchair. But while Duchenne has taken his mobility, it hasn’t taken his fire, his laugh, or the love that surrounds him.

Every moment is more precious now. This disease doesn’t wait. There’s no slowing it down, no hitting pause. And we never know what tomorrow might bring — which is why getting the things Kason needs now is more important than ever. Equipment, home modifications, transportation, therapy — it all comes fast, and it all comes at a cost.

To everyone who’s shared, prayed, donated, or simply said Kason’s name with love — thank you. You are helping us carry the weight.

If you can, please continue to share our story. Help us get the word out and make sure Kason has what he needs today, because tomorrow is never promised.

👇 Here is the link to Kason’s GoFundMe:
https://gofund.me/781be5e3

From our family to yours — thank you for standing with us in this fight. 💛

07/03/2025

We want to start by saying thank you from the bottom of our hearts. Every single donation, share, and prayer has helped us feel a little less alone in this journey. You’ve brought us hope in a time that’s been full of hard decisions and even harder days—and we’re so incredibly grateful.

Muscular dystrophy is a disease that doesn’t wait. We don’t get to choose the timeline, and lately, things have been changing faster than we ever imagined. Kason is just 10 years old, and already so much of what he loves is slipping further from reach.

This is a photo of him on a tractor—one of the many things he loves more than anything. But even this simple joy has become harder to accommodate as his muscles weaken. It’s heartbreaking to watch him struggle with things that used to light him up with excitement. Things he used to be able to do all on his own before this awful condition . Its stripped away the majority of his independance and ability to do even little things he loves to do

We’ve been given some information about temporary wheelchair options, which I’m exploring as a short-term fix. But the reality is, Kason needs a custom-built wheelchair—one that fits his body, his needs, and can support him as things continue to change. It’s a big step, and a costly one—but it’s what will give him the most independence, comfort, and safety.

Please continue to share Kason’s story. Every share helps us reach more people who might be able to help. And most importantly, please keep praying for him. Your love and support are what keep us going.

We’ll continue using the hashtag —because even as things get harder, we’re not stopping. We’re moving forward with faith, hope, and all the love you’ve shown us so far. 💙

📎 GoFundMe link: https://gofund.me/781be5e3

07/01/2025

Hi everyone,

This is Kason — in a wheelchair that’s far too small and no longer meeting his needs. What you can’t always see is how uncomfortable it’s become… but what you can see are the tired wheels cracking, and the chair itself struggling to keep up with him. We’ve learned the hard way that not just any manual wheelchair will work — Kason needs a custom-built chair, made specifically for his body and the progression of his muscular dystrophy.

Without the right support, his current chair is putting extra strain on his muscles, causing daily discomfort and limiting his independence. It’s heartbreaking to watch, especially knowing there is a better option — we just need help getting there.

We’re urgently raising funds to get Kason a custom wheelchair that fits, supports, and empowers him. Insurance won’t cover what he truly needs, and time is not on our side.

Every share, every donation — no matter how small — brings us closer to getting him the equipment that will change his daily life. Thank you for walking this road with us and lifting Kason up. Your kindness and hope mean everything. 💙

As you can see in the first picture, Kason remains positive and hopeful in this world designed against him. His smile is our shining light that keeps us going.

Gofundme: https://gofund.me/781be5e3

06/30/2025

💙 Our son Kason is 10 years old. He loves 18-wheelers and dreams of hauling cattle one day.

But he’s also living with Duchenne Muscular Dystrophy, and this year, he lost his ability to walk 100%

We have also learned just how impossible even the littlest of things are

We’re raising funds for a manual wheelchair, Hoyer lift, home accessibility, and an accessible vehicle — all things insurance only partially covers or doesn’t cover at all.

It’s hard to ask, but we can’t do this alone anymore.
👉 https://gofund.me/1061abd0

Please donate, share, or just send love. Every bit helps us give Kason the life he deserves.
🚛

As parents, we’ve done everything we can to provide a good life for our son, Kason. But… Jaimie Miller needs your support for Help Kason live like a kid again

11/12/2024

I’m currently working on a project for Kason’s Christmas present. Unfortunately this is going to be Kason’s last Christmas with some mobility left. Kason has grown significantly weaker than this time last year and is losing a lot of strength in his legs. This has been frustrating for Kason and he’s struggling with it.

With that being said, I am putting together the ultimate “movie/slideshow” for him that he can watch for some happiness now and for years to come. Kason has a true passion for 18 wheelers, trucks rolling “black coal” four wheelers, dirt bikes, tractors and honestly anything that goes vroom outside. I’m asking for people to send me videos or pictures of their things. His favorite things are Jake brakes in a big truck, a big truck in general, black coal rolling and loud things. If you have a cool little story to go along with it please share as I’d love to use these things for Kason as a positive light when he’s feeling down.

Please feel free to share this post with others, the more videos and pictures I can get, the better! 🥰

08/12/2024

We had an appointment with the spine specialist today. Kason does have scoliosis, however right now we’re just going to monitor it. We do not need surgery at this time, we’re afraid the down time afterwards would wipe out what mobility he does still have remaining. And we want Kason to stay mobile as long as possible!!
In the future he will have to have spinal fusion surgery, but for now we’re gonna keep cruising how we are.
We are so very thankful today ended with good news!! ❤️❤️❤️❤️❤️

07/25/2024

Kason had appointments yesterday and the day before. Kason fractured his foot a few weeks ago. They tried a walking boot and he was unable to manage using it. So we went Tuesday for a follow up with orthotics and he was cleared. His body has healed the fracture on its own and he will not need a boot, cast or surgery!

Yesterday ended with mostly good news, the lung dr says his lung function has stayed the same. We are “cruising” along. Which is exactly what we want! He will see them again in January.

The neurologist appointment was mostly good news, however Kason had a scoliosis scan done yesterday and we should get the results of it in the next few days. Kasons mobility has declined and he is now more dependent on his wheelchair than before. Paperwork is in the works for an electric power chair, bath chair and a hoyer lift to assist with Kason’s needs.
Kason is also scheduled to have a sleep study done next weekend, and we anticipate that he will have either a bipap or cpap machine added at nighttime to help support his lungs.

As we begin entering the non-ambulatory phase, please pray for us. Pray for understanding for Kason’s little heart, pray for Emalynn as she has to watch her brother go through things beyond her understanding and pray that as his momma I can have the strength to power through. Kason is fighting so hard to stay ambulatory and his body is fighting against him. He’s lost a lot of strength in the last few months.

Watching my child go from a running, jumping, and playful little boy to a wheelchair has been one of the hardest things to endure. We are working hard everyday to find ways to make Kason’s life easier.

Kason has a positive spirit and he is working hard everyday to keep going. If you’d like to send Kason a card or a hat with some encouraging words, a funny story or just to say you love him, please message me and I will send you our address or make arrangements to meet you.

We are so thankful for the support and love we have received and continue to receive 🙏🥰

04/04/2024

The t-shirt delivery arrived today!! 😊 If you selected to have your shirt shipped to me, please message me so we can set up a date to get the shirt to you! 😄

04/03/2024

💖💖💖

04/03/2024

We've made an Amazon wishlist of the things we need for our new house. We appreciate anything anyone can help with 💞

04/02/2024

We have some exciting news!
We have found a home to better suit Kason's needs currently ❤️ we signed a lease and got the key today! We couldn't have done this without the help of the amazing village we have 💖 thank you so much for the support, donations, love and help we've received.

I've also ordered Kason a brand new bed that will make his life so much easier! Exciting things are happening and we look forward to sharing them with you ❤️