Spina Bifida Association of California

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Spina Bifida Association of California

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Spina Bifida Association of California, 2000 Duke Street, Suite 300, Fort Myer, VA.

The Spina Bifida Association of California (SBA of CA) is an organization dedicated to building a better and brighter future for all people impacted by Spina Bifida.

05/01/2026

🎉🚨 REGISTRATION IS NOW OPEN for the 2026 Walk-N-Roll for Spina Bifida! 🚨🎉

It’s time to sign up, start fundraising, build your team, and get ready for an amazing season of community, celebration, and impact. We can’t wait to walk and roll with you! 💙

📍 Sacramento – September 26, 2026 – https://vist.ly/42mzd

The Los Angeles Walk-N-Roll is now Picnic & Purpose for Spina Bifida
📍 Los Angeles – November 21, 2026 – https://vist.ly/42mzc

Register today, start fundraising, and be part of something bigger! 🙌

Visit https://vist.ly/42mze for more information, fundraising tools, and to find out how to host a Walk-N-Roll in your area!

04/30/2026

📣 Community Information Session

Navigating Sexuality with Spina Bifida: Co-Creating Resources with Youth, Families, and Care Teams

Growing up includes learning about relationships, sexuality, and identity—but for many youth with disabilities, including Spina Bifida, these important topics are often overlooked.

Join us for a practical and supportive session exploring accessible ways youth, families, and providers can have meaningful conversations about:

• Healthy relationships
• Body image
• Identity
• Sexual health
• Emotional wellbeing

🎙️ Featuring Amy McPherson, PhD, RP
Senior Scientist at the Bloorview Research Institute in Toronto and Associate Professor at the University of Toronto.

📅 May 19, 2026
🕖 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

👉 Register: https://vist.ly/42f3r

04/26/2026

💬 Spina Bifida Adult Chat — Today, 4/26!
🗓 3–6 PM EDT

Happening today! Join us for a casual virtual hangout for adults living with Spina Bifida—no agenda, just community and conversation.

Hosted by Donna Jones & Will Dickey. 18+ only.

📧 Email sbadultchat@gmail.com for the link!

04/24/2026

Join researchers from Children’s Hospital of Philadelphia (CHOP) for a conversation on May 12, 2026, at 7 PM ET about how children from the MOMS Study are doing now as teens and young adults.

The MOMS studies compared two approaches to myelomeningocele (MMC) repair:
🔹 Surgery before birth
🔹 Surgery after birth

Earlier research followed children through early childhood. Now, MOMS 3 is exploring outcomes during the teen and young adult years, focusing on health, independence, mobility, and everyday life as children grow older.

During this session, the CHOP team will:
✨ Explain the earlier MOMS studies in simple terms
📊 Share what they’ve learned so far
🔍 Discuss the new MOMS 3 study
🤝 Explain how families can participate if interested

This is a valuable opportunity to learn, ask questions, and see how your family’s experience can help improve care for future generations. Families are welcome, and all questions are encouraged.

🔗 https://vist.ly/4zpw8

04/23/2026

Join Ability First Sports for their 41st Annual Summer Camp with expert coaching in multiple adapted sports designed for youth ages 6–18 with physical disabilities.

📍 Chico, California
📅 June 21–27

This camp continues to be a powerful space for growth, independence, friendship, and athletic achievement.

Interested in participating or learning more?

👉 Sign up to express interest: https://bit.ly/4hPFOxd or contact the Ability First Sports team directly.

📧 info@abilityfirstsports.org
📞 530-433-4237
🌐 https://vist.ly/4zkj2

04/23/2026

📣 Happening Today!

Community Information Session: Naming the Foe — It Isn’t You, It’s Ableism

Ableism affects people with disabilities every day in both obvious and subtle ways. Today’s session will explore how to recognize it, understand its impact, and learn ways to respond and advocate for change.

🎙️ Featuring Elizabeth Scriven, Psy.D.
Psychologist, educator, and person with Spina Bifida, bringing both lived experience and professional expertise.

🕖 Today at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

👉 Register: https://vist.ly/4zhvk

04/22/2026

Can’t make it to a Walk-N-Roll event? You can still join the fun with Walk-N-Roll Your Way®!

Choose a date, pick a location, and gather your friends, family, or community for your very own event. Whether it’s a neighborhood walk, workplace challenge, or backyard celebration, you can make it your own while supporting the Spina Bifida community.

We’ll provide the tools and support you need, and participants who fundraise are eligible for our incentive program!

Ready to create your own Walk-N-Roll Your Way event? Email us at walknroll@sbaa.org to get started today!

04/21/2026

Representation matters—especially for kids 💫

Might Be Just a Little Bit Different written by Kelly Jeffers, Adult with Spina Bifida, celebrates growing up with Spina Bifida and encourages kids to embrace what makes them unique.

🎉 Coming this August: A special webinar with the author hosted by the Spina Bifida Association of the Carolinas. Stay tuned!

Grab your copy today! 📚 Just scan the QR code on the flyer to order.

04/20/2026

🎓 IEP meetings shouldn’t feel confusing, intimidating, or one-sided.

If you’ve ever left a meeting thinking “I wish I had said something…” — this is for you.

The Spina Bifida Association of the Carolinas is hosting a powerful webinar to help you better understand the IEP process and confidently advocate for your child’s needs.

💡 This session will break it all down in a way that actually makes sense—so you can walk in prepared and walk out feeling heard.

✨ You’ll learn:
✔️ What an effective IEP really looks like
✔️ How to speak up (and be taken seriously)
✔️ Ways to avoid common mistakes that cost students support

🎤 Featuring: Hope Ratcliff, M.Ed
📅 Tuesday, May 12, 2026
⏰ 7:00 PM EDT
📌 Join: https://vist.ly/4xg88

04/18/2026

💬 Spina Bifida Adult Chat
Sun, Apr 26 | 3–6 PM EDT

Come join a friendly, casual hangout—no agenda, just conversation with other adults living with Spina Bifida. Hosted by Donna Jones & Will Dickey. Must be 18+.

📧 Email sbadultchat@gmail.com for the link!

04/17/2026

📣 Don’t Miss This Community Session

Naming the Foe: It Isn’t You, It’s Ableism

Ableism shows up in many ways—some easy to see, others more subtle—but all impact people with disabilities, including those living with Spina Bifida.

Join us on April 23, 2026 for a powerful conversation on how to recognize ableism, understand its impact, and take meaningful action.

🎙️ Featuring Elizabeth Scriven, Psy.D.
A psychologist, educator, and person with Spina Bifida who brings both lived experience and professional expertise.

📅 April 23, 2026
🕖 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

👉 Register: https://vist.ly/4yube

04/15/2026

Something exciting is rolling your way… Walk-N-Roll 2026 is almost here!

We’re getting everything ready behind the scenes, and you’ll want to be first in line when things go live 👀
Get ready to:
✨ Register and jump in
👯‍♂️ Build your team
💙 Start fundraising for an amazing cause
🎈 Join the fun, connection, and community you love

Trust us—you won’t want to miss what’s coming 😉

Address

2000 Duke Street, Suite 300
Fort Myer, VA
22314

Website

http://www.spinabifidaassociation.org/

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