Spina Bifida Association of California

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Spina Bifida Association of California

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Spina Bifida Association of California, 2000 Duke Street, Suite 300, Fort Myer, VA.

The Spina Bifida Association of California (SBA of CA) is an organization dedicated to building a better and brighter future for all people impacted by Spina Bifida.

12/08/2025

🎄 Spina Bifida Adult Chat – Holiday Edition! ❄️💬

The holiday season is here, and we’d love for you to join us for an afternoon of cheer, connection, and community with fellow adults (18+) living with Spina Bifida. Feel free to come in your coziest festive pajamas or anything that makes the season bright! ✨

Bring your favorite winter drink or treat, settle in, and enjoy a relaxed space to share stories, laugh, and celebrate together.

🗓 Sunday, December 14, 2025
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Will Dickey & Donna Jones

📧 To get your Zoom link, email sbadultchat@gmail.com
We can’t wait to celebrate with you!

12/06/2025

Community Information Session: Bladder Cancer in People with Spina Bifida

📅 Thursday, December 18, 2025
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
📌 Register: https://give.sbaa.org/event/community-information-session-bladder-cancer-in-people-with-spina-bifida/e743265

Join us for a discussion on diagnosing and treating bladder cancer in adults with Spina Bifida, understanding unique risks, exploring treatment options, and considering screening. This session is open to adults with Spina Bifida, caregivers, advocates, and clinicians.

🎤 Speakers
Mary Dobson, MA, BA, AEA – Spina Bifida advocate, counselor, and bladder cancer survivor.
Jonathan Routh, MD – Pediatric urologist at Duke and national leader in Spina Bifida research.

This is a chance to hear from both lived experience and clinical expertise on a critical, often overlooked health issue in the Spina Bifida community.

12/04/2025

🎄 You’re Invited to the Spina Bifida Adult Chat: Holiday Edition! ❄️💬

The holiday season is here! ✨ Join us on Sunday, December 14, for an afternoon of cheer, connection, and community with fellow adults (18+) living with Spina Bifida. Grab your favorite winter drink or treat, wear something festive if you’d like, and join us as we share stories, laugh, and celebrate the season together!

🗓 Sunday, December 14, 2025
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Will Dickey & Donna Jones

📧 Email sbadultchat@gmail.com to get your Zoom link.

11/30/2025

🚨 Today is the LAST DAY to fundraise at least $100 to qualify for our incentive prizes! Don’t miss out — every dollar helps and the deadline is tonight, 11/30 at midnight! 💙

11/28/2025

💃🕺 Groove Movers Club! 🕺💃

A big shoutout to Abby C., our newest $250+ Groove Mover! 🎉 Her commitment helps keep the Walk-N-Roll momentum strong for the Spina Bifida community. 💙🎶

Every dollar you raise fuels connection, support, and meaningful impact. 🌟

Join Abby! With the year wrapping up, there’s no better time to boost your fundraising impact. 🚀

11/28/2025

📣 New Voices for Spina Bifida – Are You Ready for the New Billing Codes for Hydrophilic Catheters?

If you or your loved one uses hydrophilic intermittent catheters, big changes are coming soon. New billing codes go into effect on January 1, 2026, and you may need to update your prescription to keep receiving your current catheter supplies.

Join us for this must-attend webinar presented by Coloplast, featuring speakers Maryellen Kelly, DNP, CPNP, MHSc and Rick Rayome, RN, BSN, CCCN.

You’ll learn:
✅ Why the billing codes are changing
✅ What this means for your supplies
✅ What actions you should take now
✅ What to say to your supplier or prescribing clinician

🗓 December 9, 2025
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
💻 Virtual Event

Can't attend live? Register anyway and receive the recordng.

👉 Register here: https://give.sbaa.org/event/new-voices-for-sb-are-you-ready-for-the-new-billing-codes-for-catheters/e743183

11/28/2025

🚀 Roll Out Rookies Alert! 🚀

Let’s give a big shoutout to our newest Roll Out Rookies — fundraisers who’ve reached the $100 level and are helping power SBA's mission forward for the Spina Bifida community! 🌟

💙Gilda G.
💙 Hannah H.
💙Steven P.

Thank you for your hard work and commitment — every dollar raised strengthens care, connection, and support. 💪

11/26/2025

🎉 Good News — We’ve Extended the Deadline! 🎉

There’s still time to qualify for this year’s Walk-N-Roll fundraising incentives!
We’ve extended the deadline to give you more time to reach your goals and earn exclusive rewards. 💙

🗓️ New Incentive Deadline:
Sunday, November 30

Every dollar you raise supports the Spina Bifida community through advocacy, resources, connection, and care. Let’s finish the season strong together! 💫

11/26/2025

🧡🦃 Happy Thanksgiving!

We’re thankful for YOU—our Walk-N-Roll families, teams, volunteers, and sponsors who make every season meaningful. Your energy, generosity, and dedication make Walk-N-Roll more than an event…it’s a family.

—The Walk-N-Roll Team

11/19/2025

🌟 Walk-N-Roll Team Spotlight! 🌟
Rising Star Team: Calliope’s Roundup! ⭐💙

We’re excited to recognize Calliope’s Roundup as this year’s Rising Star Team, awarded to the team that has grown the most in size over the years! Your continued growth, enthusiasm, and commitment shine so brightly in the Walk-N-Roll community. 👏✨

Thank you, Calliope’s Roundup, for bringing more and more supporters together each year and for your dedication to individuals and families living with Spina Bifida. 💙

11/19/2025

🌟 Walk-N-Roll Team Spotlight! 🌟

We're excited to celebrate Team D’kai, this year’s Early Bird Team! 🐦

Thank you, Team D’kai, for registering early, rallying your supporters, and helping us build momentum from the very start. Your enthusiasm made a big difference and helped set the tone for a fantastic Walk-N-Roll! 💙

11/19/2025

🌟 Walk-N-Roll Team Spotlight! 🌟
Highest Fundraising Team Overall: Allie-Gators! 💙

We’re excited to celebrate team Allie-Gators, this year’s Highest Fundraising Team Overall! 👏✨

Thank you, Allie-Gators, for your incredible dedication, generosity, and spirit. Your leadership and commitment are making a powerful impact for individuals and families living with Spina Bifida. 💙

Address

2000 Duke Street, Suite 300
Fort Myer, VA
22314

Website

http://www.spinabifidaassociation.org/

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