02/28/2026
Rare Disease Day 💜
My journey has allowed me to meet some of the most astonishing, inspiring and resilient children and families!
These families are dealing with diagnoses most people have never even heard of! Many don’t have a name, and are a collection of letters and numbers that leave parents puzzled and uncertain. On top of that, these families are navigating a medical system that has more questions than answers!
Your children are not defined by a diagnosis. The diagnosis does not limit their potential!! Their potential is limitless, and thank you for letting me discover it with you!
You give my life so much purpose and meaning—I am truly forever grateful! 🥹🥹