Elizabeth Long, End of Life Doula

Elizabeth Long, End of Life Doula I'm a Registered Nurse, certified in Hospice and Palliative Care. I'm also an END OF LIFE DOULA!

09/24/2024

I was sitting with a woman who was days before her death, fully conscious and aware of everything she was feeling and experiencing. She said to me, "can I share with you what this feels like?" I said yes, of course. I am always curious about the hours, days, and moments that lead to the very last br...

06/16/2024

This is a letter that Fiona Apple wrote to her fans when she decided to cancel her concert to stay home with her 14-year-old dog that was dying... I couldn't help but share it here, because it is so beautiful. This was several years, 2012-2013 I believe...

xo
Gabby

Here's the thing...

It’s 6 pm on Friday, and I’m writing to a few thousand friends I have not met yet. I am writing to ask them to change our plans and meet a little while later.

I have a dog, Janet, and she's been ill for about 2 years now, as a tumor has been idling in her chest, growing ever so slowly. She's almost 14 years old now. I got her when she was 4 months old. I was 21 then — an adult, officially — and she was my kid.

She is a pitbull, and was found in Echo Park, with a rope around her neck, and bites all over her ears and face.She was the one the dogfighters use to puff up the confidence of the contenders.
She's almost 14 and I've never seen her start a fight, or bite, or even growl, so I can understand why they chose her for that awful role. She's a pacifist.

Janet has been the most consistent relationship of my adult life, and that is just a fact. It's always really been just the two of us.
She slept in bed with me, her head on the pillow, and she accepted my hysterical, tearful face into her chest, with her paws around me, every time I was heartbroken, or spirit-broken, or just lost, and as years went by, she let me take the role of her child, as I fell asleep, with her chin resting above my head.

She was under the piano when I wrote songs, barked any time I tried to record anything, and she was in the studio with me, all the time we recorded the last album.

She has Addison's Disease, which makes it more dangerous for her to travel, since she needs regular injections of Cortisol, because she reacts to stress and excitement without the physiological tools which keep most of us from literally panicking to death.

Despite all this, she's effortlessly joyful & playful, and only stopped acting like a puppy about 3 years ago. She is my best friend, and my mother, and my daughter, my benefactor, and she's the one who taught me what love is.

I can't come to South America. Not now. When I got back from the last leg of the US tour, there was a big, big difference.
She doesn't even want to go for walks anymore. I know that she's not sad about aging or dying. Animals have a survival instinct, but a sense of mortality and vanity, they do not. That's why they are so much more present than people.

But I know she is coming close to the time where she will stop being a dog, and start instead to be part of everything. She'll be in the wind, and in the soil, and the snow, and in me, wherever I go.

I just can't leave her now, please understand.
If I go away again, I'm afraid she'll die and I won't have the honor of singing her to sleep, of escorting her out.

Sometimes it takes me 20 minutes just to decide what socks to wear to bed. But this decision is instant. These are the choices we make, which define us. I will not be the woman who puts her career ahead of love & friendship.

Many of us these days, we dread the death of a loved one. It is the ugly truth of life that keeps us feeling terrified & alone. I wish we could also appreciate the time that lies right beside the end of time. I know that I will feel the most overwhelming knowledge of her, and of her life and of my love for her, in the last moments.
I need to do my damnedest, to be there for that.

Because it will be the most beautiful, the most intense, the most enriching experience of life I've ever known. When she dies.
So I am staying home, and I am listening to her snore and wheeze, and I am revelling in the swampiest, most awful breath that ever emanated from an angel. And I'm asking for your blessing.

I'll be seeing you.
Love,
Fiona

05/18/2024

Read our 10 expert tips on Alzheimer’s communication strategies and learn how to communicate with a person who has dementia.

There’s a common misconception that someone must be imminently dying to be on hospice. But this is not the case. It’s go...
07/25/2023

There’s a common misconception that someone must be imminently dying to be on hospice. But this is not the case. It’s good to see former President Carter bringing light to this topic.

Former President Carter’s public disclosure in February that he was entering hospice care — where he remains nearly six months later — is shifting the perception of end-of-life care for patients an…

07/11/2023

I've decided to write a book! I'm working on a book about my experiences as a hospice nurse from a Christian perspective. I would love a few people to read it as I write it and offer feedback.
Job requirements: You need to be interactive. I would appreciate actual feedback. Don't just say- ok, great job. I need constructive criticism too.

Who's up for the challenge? I am thinking about creating a small group on Facebook to update so you can discuss it together.
Side note: if you have any fun hospice or end-of-life stories I should include in my book, hit me up!

The  #1 essential product I recommed for hospice patients is: a baby monitor! The baby monitor is used to hear your love...
02/20/2023

The #1 essential product I recommed for hospice patients is: a baby monitor! The baby monitor is used to hear your loved one when you're out of the room. This doesn't have to be an expensive monitor. You can usually find one on facebook marketplace or a freecycle group!

Even if you've already tried making lifestyle changes for your family, here's why hiring an end of life doula will still...
02/18/2023

Even if you've already tried making lifestyle changes for your family, here's why hiring an end of life doula will still work for you... You will have a personal coach to help you go through it with you- you will not be alone! Link in bio to work with me!

If I had to tell you my biggest piece of advice to hospice families i'd say- find someone to help walk you through the p...
02/15/2023

If I had to tell you my biggest piece of advice to hospice families i'd say- find someone to help walk you through the process!

What almost stopped me from becoming a death doula and why I'm glad I pushed through the pain......I had many moments wh...
02/14/2023

What almost stopped me from becoming a death doula and why I'm glad I pushed through the pain......

I had many moments where I was struggling myself. I didn't know if I could hold up someone else while trying to carry myself. I was afraid that I wouldn't be helpful. But in the end, I realized that I could help you to not feel so alone and afraid. I can't wait to help you work through this.

Link in bio to work with me.

All top athletes have a coach, and I am no exception. It's the mentors you choose to encircle yourself with that make al...
02/13/2023

All top athletes have a coach, and I am no exception. It's the mentors you choose to encircle yourself with that make all the difference. I have learned more knowledge than I can ever repay someone for from so many hospice nurses. They teach me daily and I am never hesitant to ask their opinion. Do you have a mentor?

I get asked all the time "how can I get extra support through the hospice process?" The answer is: Find a death doula in...
02/11/2023

I get asked all the time "how can I get extra support through the hospice process?" The answer is: Find a death doula in your area. If there isn't one in your area, find one that offers online services- like me! Link in bio to connect!

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