The Migraine Diva

10/09/2023

I can’t get out of bed. The exhaustion from it all has me in a crippling flare.

The results of the gastric emptying study came back normal immediately after it was completed on Thursday. I still have no clue what’s going on.

No answers AGAIN. I’ve been in a seriously dark place since then.

I don’t want to deal with any of this anymore. I just don’t.

I’m forever stuck in pain with way too many pain disorders.

The ability to eat has been compromised for almost five months, losing weight as a result and having horrible fatigue.

I don’t want any of this. I didn’t ask for it. How am I supposed to be resilient while jumping through hoops without an end in sight?

I’m sad, frustrated, angry, lonely, exhausted, anxious, depleted, empty.

This life and body cause more pain and anguish than joy and happiness.

I know it’s not my fault but it still feels like a punishment.

10/05/2023

ReMMiD

Click Therapeutics, Inc.cruiting for a clinical trial to test investigational mobile apps designed to prevent migraines. This fully virtual study lasts about 19 weeks, and you will be asked to complete online surveys, attend remote calls, and use a study app daily. About 558 participants will be enrolled in this study. Some basic requirements:

• Live in the US
• Diagnosed with migraine for 1 year or more
• Use 1 or more prescription medications to manage migraine
• Not currently taking a CGRP

To read more information and see if you are eligible, please click here: https://clickstudy.info/advocacy

10/05/2023

Nothing like having a yummy breakfast at 7:30 in the morning, lol.

I’m undergoing a to measure the time it takes for food to empty out of my stomach. The study will help determine whether I have , a condition where the stomach takes longer than normal to empty.

This test takes four hours. After eating, the radiologist took images of my abdomen to watch the movement of the radioactive tracer in the scrambled eggs through my stomach.

More images will be taken one, two, and four hours after ingesting the tracer.

The results of the upper endoscopy and colonoscopy were normal leaving me with no answers.

I’m currently down 21 pounds without trying to lose weight and am still dealing with feeling full after a few bites of food, nausea, bloating, abdominal pain, and loss of appetite.

I truly do not want another health issue but I desperately need a diagnosis so I can finally know what’s going on.

Let’s see if test number eight yields results.

08/28/2023

It was so great being with my beautiful family in Tampa.

We always have a good time, share lots of laughs, eat great food, and most of all, we love the heck out of each other!

Case in point: my daddy is comforting me in the second picture after I took my meds. Just being able to be daddy’s little girl in the flesh, in real-time, felt like being wrapped in the world’s best security blanket.

I miss you guys so much! ❤️❤️❤️❤️

- Best Auntie ever and 2ⁿᵈ mom!
crooks.16 - Strongest woman I know and my superwoman momma!

- The sweetest, kindest, and purest human being on the plant and my sissy.
denise.x - My BFF from the womb and ride or die daughter.

08/26/2023

GI UPDATE:

For anyone just now following my GI saga, for the last year, but mainly since May, I have been having debilitating GI issues.

My symptoms are nausea, stomach and intestinal cramping, diarrhea, vomiting, the inability to eat, and weight loss.

I have undergone the following tests with normal results:

✔︎ H. Pylori breath test
✔︎ Salmonella, Shiga toxins, shigella culture, and parasitic stool culture
✔︎ Allergy testing
✔︎ CT of the abdomen and pelvic area

On Tuesday, I had an or (Esophagogastroduodenoscopy) and . Biopsies were taken of the antrum and fundus (in the stomach) due to erythema or redness in the lining of the duodenum, colon, and re**um.

could indicate that an underlying condition or irritation has caused inflammation, which has increased blood flow to the mucosa and made it red.

of the colon was seen.

The ampulla, a small reservoir where the common bile and pancreatic duct meet that collects bile and pancreatic juices, is prominent.

This possible blockage could explain the nausea, vomiting, abdominal pain, and weight loss if the ampulla obstructs the biliary or pancreatic duct.

It will take three weeks to get the results of the biopsies back. Early Friday morning, I had a horrible episode of diarrhea and vomiting simultaneously. I hate it.

This waiting game while I still have these symptoms is exhausting and exacerbates the and I experience daily.

I can’t wait to get some answers.

08/21/2023

Part one of three tests to determine what is going on with my GI tract was completed this morning.

testing for food and environmental allergens all came back negative.

Part two is tonight – I’m scheduled for an abdomen and pelvis CT.

Part three is an upper endoscopy and colonoscopy tomorrow afternoon.

I am still unable to eat most foods without stomach upset, nausea, and getting full almost immediately.

I have been following a low diet for the past two weeks, which has been somewhat helpful but I’m still not eating like I would like to.

All of this sucks and I’m exhausted.

08/09/2023

Portrait of a Black Queen and her daughters.

06/01/2023

Kickoff with Stronger than Migraines and enter to win this bundle of products valued at over $100. The rules are easy!

✨ Follow and The Migraine Diva

✨ Like and share with friends

✨ Tag 3 people

Contest ends June 15ᵗʰ at 11:59 PM EST.

𝐎𝐏𝐄𝐍 𝐓𝐎 𝐔.𝐒. 𝐑𝐄𝐒𝐈𝐃𝐄𝐍𝐓𝐒 𝐎𝐍𝐋𝐘 𝟏𝟖+ 𝐚𝐧𝐝 𝐎𝐋𝐃𝐄𝐑

Winner will receive these products:

🎁Headache Relief Hat
🎁Vertigo Ease
🎁 Electrolyte Drops
🎁 Nausea Relief Inhaler
🎁 Migraine Stick (Regular + Extra Strength)
🎁 Pain Block Roll-on

𝙎𝙖𝙫𝙚 15% 𝙨𝙩𝙤𝙧𝙚𝙬𝙞𝙙𝙚 𝙩𝙝𝙧𝙤𝙪𝙜𝙝𝙤𝙪𝙩 𝙅𝙪𝙣𝙚 𝙬𝙞𝙩𝙝 𝙙𝙞𝙨𝙘𝙤𝙪𝙣𝙩 𝙘𝙤𝙙𝙚 𝘿𝙄𝙑𝘼15 𝙖𝙩 𝙘𝙝𝙚𝙘𝙠𝙤𝙪𝙩 - https://buff.ly/3OO5jCz

05/01/2023

Jaime Sanders of The Migraine Diva always felt internalized blame for not controlling her . She was exhausted from continually being disappointed by her prescribed medications not working. That was until a neurologist said her migraine might be medication resistant. He validated that it was a complication of the disease – not her – that was at fault for still having chronic migraine episodes. Despite numerous therapies and lifestyle modifications,she has yet to break the 15-year pain cycle she is in. In her latest article for Healthgrades, Jaime writes about what it is like to have and the treatment program she is about to embark on. Read more: https://bit.ly/3UR00mZ

04/23/2023

Staying comfy with my poncho made by the one and only - my momma and my Coalition for Headache and Migraine Patients blanket during my stay at Jefferson Health.

It’s important to have comforts from home when in typically uncomfortable places. But the care team is amazing and making my stay as comfy as possible!

04/20/2023

Hi guys. It looks like I’ll be discharged next Tuesday however our flight to go back to Virginia is on Sunday.

If anyone is able to contribute to help us extend our stay we’d be extremely grateful for the support and help.

I love you all!

04/19/2023

Living with daily migraine for over 15 years has taken its toll on me physically and mentally. Only 1% of people with migraine are , and I am part of that 1%. I am exhausted from putting my energy into a disease that shows no mercy and needs a better outcome. The phrase “Hold on, pain ends” means less to me now than ever, and it just hasn’t been my truth or experience. Will I ever experience migraine freedom? I write about this struggle in my newest article for - .

Jaime Sanders has lived with migraine for most of her life, but the constant pain of intractable migraine can be a challenge. She shares the reality of life with intractable migraine in hopes that others won’t feel so alone.

04/12/2023

Tonight at 7 pm EST, Coalition for Headache and Migraine Patients and the Disparities in Headache Advisory Council ( ) is hosting a movie club night where we will talk about the Hulu docuseries The 1619 Project and . You can sign up at: https://buff.ly/3mnxGvT

04/11/2023

is recruiting for a clinical trial to test an investigational mobile app designed to prevent . This fully virtual study lasts about 19 weeks, and you will be asked to complete online surveys, attend remote calls, and use a study app daily.

Some basic requirements:

📱 Live in the US
📱 Diagnosed with migraine for 1 year or more
📱 Use 1 or more prescription medications to manage migraine
📱 Not currently taking a CGRP

To read more information and see if you are eligible, scan the code in the photo to get started or visit the link in my bio.

04/11/2023

Click Therapeutics, Inc. is recruiting for a clinical trial to test an investigational mobile app designed to prevent . This fully virtual study lasts about 19 weeks, and you will be asked to complete online surveys, attend remote calls, and use a study app daily.

Some basic requirements:

📱 Live in the US
📱 Diagnosed with migraine for 1 year or more
📱 Use 1 or more prescription medications to manage migraine
📱 Not currently taking a CGRP

To read more information and see if you are eligible, scan the code in the photo to get started



https://clickstudy.info/advocacy

04/09/2023

Hi, my name is Jaime and I’ve lived with migraine disease for almost 43 years. Since 2008, I have been dealing with daily migraine, or status migrainosus.

Migraine is an extremely disabling neurobiological disease that affects around 40 million Americans. Status migrainosus is a migraine that lasts longer than 72 hours.

Less than 1% of people with migraine have status migrainosus. This is a rare subtype of migraine disease. Imagine having migraine symptoms every day nonstop for fifteen years. It’s no way to live.

Over that time, I have exhausted therapies used to treat or prevent migraine with no relief. At this point, intensive inpatient treatment is my only option.

I’ll be admitted to Jefferson Methodist Hospital in Philadelphia for about a week to undergo integrative infusion therapy to help finally stop this migraine attack that hasn’t gone away.

My husband is my caretaker and source of financial support and he just cannot carry the weight of this on his own. Between travel, lodging, food, and copays it is becoming hard for us to afford to get me to Philadelphia and pay for our travel back and forth to the hospital.

Being disabled and unable to work, I feel like an incredible burden to my family. Any help I can get to offset the financial burden put on my husband would be greatly appreciated.

Thank you from the bottom of my heart.

https://gofund.me/aa0b9f91

03/23/2023

Migraine Again with .repost
・・・
Jaime Sanders (aka ) shares how the key findings of a Headache & Migraine Policy Forum study highlight the need for better access to migraine care:
🗝️ People with migraine are the 4th highest users of the ER
🗝️ Black people with migraine are a whopping 46% more likely to go to the ER 😢

https://www.migraineagain.com/black-people-migraine-suboptimal-care/