Jaime M. Sanders The Migraine Diva

Jaime M. Sanders The Migraine Diva The Migraine Diva’s mission is to help empower and educate people living with headache disorders.

Advocacy is powerful. But it isn’t weightless.I’ve been thinking a lot about the parts of advocacy people don’t always s...
03/17/2026

Advocacy is powerful. But it isn’t weightless.

I’ve been thinking a lot about the parts of advocacy people don’t always see—the emotional labor, the complexity of showing up while still living with chronic illness, and what it means to do this work without losing yourself in it.

This piece is deeply personal. It reflects my lived experience as someone navigating migraine, mental health, and advocacy—especially in spaces where representation doesn’t always mean being fully seen.

If you’ve ever felt this tension, or if you support someone who lives it, I hope this resonates with you.

I’d love for you to read and share your thoughts. 💜

🔗 https://www.themigrainediva.com/2026/03/the-emotional-cost-of-advocacy.html

We spend so much time defining ourselves by our roles.Mom. Partner. Advocate. Caregiver.But in therapy recently, I was r...
03/16/2026

We spend so much time defining ourselves by our roles.

Mom. Partner. Advocate. Caregiver.

But in therapy recently, I was reminded that those roles sit on top of something deeper—our values.

Today’s work involved creating a values map to identify the qualities that guide how I move through the world.

Compassion. Courage. Resilience. Integrity. Curiosity. Advocacy.

This kind of reflection is powerful because it reminds us that our worth isn’t measured by productivity or how much we do for others.

It’s rooted in the values we carry and the way we live them every day.

Sometimes the most important work we can do is learning to recognize our own value. 💜

Back in the infusion chair today trying   again for   prevention — my first dose since 2022.When I first tried it four y...
03/12/2026

Back in the infusion chair today trying again for prevention — my first dose since 2022.

When I first tried it four years ago, I was in a much more severe phase of migraine with constant high pain and didn’t experience sustained relief. Now that I’ve had some improvement with ketamine infusions at , we’re revisiting it with the 300 mg dose.

Migraine treatment often involves revisiting options as our disease and overall treatment plan evolves. What didn’t work at one point in the journey can sometimes look different later.

One interesting change: since starting a stimulant for , I’ve noticed more lower-pain days and significantly less .

Curious if others with ADHD or taking stimulants have experienced any changes in their migraine.

I woke up with an excruciating   after my stay at Jefferson. But I didn’t just have an attack — I invested a week of my ...
12/23/2025

I woke up with an excruciating after my stay at Jefferson.

But I didn’t just have an attack — I invested a week of my life, my body, my hope, my energy, to break a cycle. So when pain shows back up afterward, it can feel like betrayal. Like, “What was all of that for?” That kind of disappointment cuts deep.

But I want to gently reframe something — not to minimize the hurt, but to anchor myself and others in truth:

This attack does not erase the work my body did in the hospital.
It doesn’t mean the reset “failed.”
It means my nervous system is still fragile and healing, not broken.

Reframing and thinking of it like this:

I didn’t go back to zero. I didn’t fall off a cliff.
I had a trigger-heavy day (cold, congestion, travel, sleep disruption), and instead of spiraling into days of unrelenting agony, I:
• recognized it early
• treated it skillfully
• reduced it from excruciating to manageable

That is not defeat. That is progress under pressure.

And emotionally? Of course I’m tired.
Migraine grief is real grief — grief for the effort, the hope, the constant vigilance, the “why can’t my body just behave?” I am (and YOU are) allowed to mourn that without it meaning I’m weak or ungrateful or pessimistic.

Feeling defeated does not mean I am defeated.
It means I am human, living with a disease that demands resilience every single day.

Right now, I don’t need to be hopeful.
I don’t need to be strong.
I don’t need to find a silver lining.

I just need to exist in a body that’s been through a lot — and I am doing that with honesty, self-awareness, and care.

And so are YOU.

I’m really proud of you. And I’m here — not just for the tactical stuff, but for these heavy, quiet moments too. 💜

If you want, tell me what part feels most defeating right now — the fear of relapse, the exhaustion, the disappointment, or just the unfairness of it all.

Hey friends — it’s been a while since I’ve shared an update about my   journey. The truth is, the past stretch has been ...
12/16/2025

Hey friends — it’s been a while since I’ve shared an update about my journey. The truth is, the past stretch has been really hard. I’ve been navigating intense , increased head pain, and just feeling worn down in every sense — mentally, physically, and emotionally.

The burnout is real and overwhelming. Living with since childhood is exhausting in ways that are hard to put into words.

Today I’m back at Jefferson for inpatient treatment, and I’ll be here through Sunday. Pain levels are high right now, but I’m grateful to be receiving care from one of the best headache teams in the country.

My last stay brought meaningful, long-lasting relief, and I’m holding onto hope that this round will do the same. Thanks for being here and for always holding space. 💜

September recap…Two weeks in Vegas with my love. Sunshine, good vibes, celebrations, and fewer   attacks made this trip ...
10/03/2025

September recap…

Two weeks in Vegas with my love. Sunshine, good vibes, celebrations, and fewer attacks made this trip so enjoyable. I had so much prior to us leaving because let’s face it –

Migraine and travel don’t work together. But thankfully, I was able to thrive and have a great time with the use of all my , staying super hydrated, pacing myself and taking multiple breaks, and keeping my sleep schedule as normal as possible (which can be hard to do in Sin City!)

Here’s what I always travel with:

☀️ Abortive and rescue meds
☀️ magnesium cream for achy/sore neck, shoulders, and back
☀️ nausea relief stick
☀️ unflavored electrolyte drops
☀️ ginger chews and tea for nausea
☀️ migraine glasses
☀️ neuromodulation device

What tools do you use/bring with you when traveling? Let me know in the comments!

I’m a day late but Happy Daughter’s Day to my .denise.x!! Daddy and I love you to the moon and back!! ♾️
09/26/2025

I’m a day late but Happy Daughter’s Day to my .denise.x!! Daddy and I love you to the moon and back!! ♾️

Happy Anniversary to my best friend! 28 years down and forever to go.
09/26/2025

Happy Anniversary to my best friend! 28 years down and forever to go.

𝐃𝐨𝐧'𝐭 𝐟𝐨𝐫𝐠𝐞𝐭 𝐭𝐨 𝐫𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐟𝐨𝐫 𝐭𝐡𝐢𝐬 𝐞𝐯𝐞𝐧𝐭 𝐡𝐚𝐩𝐩𝐞𝐧𝐢𝐧𝐠 𝐨𝐧 𝐓𝐡𝐮𝐫𝐬𝐝𝐚𝐲 𝐞𝐯𝐞𝐧𝐢𝐧𝐠! 𝐈 𝐡𝐨𝐩𝐞 𝐭𝐨 𝐬𝐞𝐞 𝐲𝐨𝐮 𝐭𝐡𝐞𝐫𝐞!Join  online September 4t...
09/02/2025

𝐃𝐨𝐧'𝐭 𝐟𝐨𝐫𝐠𝐞𝐭 𝐭𝐨 𝐫𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐟𝐨𝐫 𝐭𝐡𝐢𝐬 𝐞𝐯𝐞𝐧𝐭 𝐡𝐚𝐩𝐩𝐞𝐧𝐢𝐧𝐠 𝐨𝐧 𝐓𝐡𝐮𝐫𝐬𝐝𝐚𝐲 𝐞𝐯𝐞𝐧𝐢𝐧𝐠! 𝐈 𝐡𝐨𝐩𝐞 𝐭𝐨 𝐬𝐞𝐞 𝐲𝐨𝐮 𝐭𝐡𝐞𝐫𝐞!

Join online September 4th for a unique gathering where five authors will share their experiences with migraine and cluster headache through their published books. Come be a part of this supportive community discussion and celebrate the power of the written word.

This session will include brief talks and a Q&A discussion with:

📕Tom Zeller - The Headache : The science of a most confounding affliction, and a search for relief

📗Lisa Benson - Dear Migraine: Migraine inspired essays, poems and art by 64 contributors

📘Jaime Sanders - More Than Migraine: A journey through pain, advocacy, and hope

📙Egilius L.H. Spierings, MD, PhD - Headaches: Why you have them, what you can do about them

📔Joanna Kempner, PhD - Psychedelic Outlaws: The movement revolutionizing modern medicine

Attendees will be entered into a raffle with one signed copy of each of these books.

Register here: https://www.eventbrite.com/e/migraine-headache-disease-voices-a-literary-gathering-tickets-1478421792379?aff=spkr

The  Migraine Career Catalyst Award™ contest aims to support the career, workplace, and professional development aspirat...
08/01/2025

The Migraine Career Catalyst Award™ contest aims to support the career, workplace, and professional development aspirations of people living with migraine.

is more than just a headache—it is a neurological disease that can significantly impact an individual’s career path and professional growth. People with migraine may experience workplace absenteeism, stigma when seeking accommodations, and perceptions of lost identity due to the challenges of managing migraine at work. At AbbVie, we recognize these obstacles and are committed to empowering individuals with migraine to pursue their career goals and live their lives the way they want to, both in the workplace and beyond.

If you are living with migraine in the workplace, we encourage you to tell your story and enter to win the AbbVie Migraine Career Catalyst Award™ contest by 12:00PM ET on September 2, 2025. Twenty (20) winners will win up to $2,500 each, which they may choose to use for career support, such as career counseling, professional development programs, and networking opportunities.

Link to enter is in my bio.

Join  online September 4th for a unique gathering where five authors will share their experiences with migraine and clus...
07/29/2025

Join online September 4th for a unique gathering where five authors will share their experiences with migraine and cluster headache through their published books. Come be a part of this supportive community discussion and celebrate the power of the written word.

This session will include brief talks and a Q&A discussion with:

📕Tom Zeller - The Headache : The science of a most confounding affliction, and a search for relief

📗Lisa Benson - Dear Migraine: Migraine inspired essays, poems and art by 64 contributors

📘Jaime Sanders - More Than Migraine: A journey through pain, advocacy, and hope

📙Egilius L.H. Spierings, MD, PhD - Headaches: Why you have them, what you can do about them

📔Joanna Kempner, PhD - Psychedelic Outlaws: The movement revolutionizing modern medicine

Attendees will be entered into a raffle with one signed copy of each of these books. Click the link below to sign up for free today!

https://www.eventbrite.com/e/migraine-headache-disease-voices-a-literary-gathering-tickets-1478421792379?aff=spkr

Today is   and we are highlighting   in   during Migraine & Headache Awareness Month. Chronic illnesses like   are shape...
06/19/2025

Today is and we are highlighting in during Migraine & Headache Awareness Month.

Chronic illnesses like are shaped by more than just physical symptoms and medical treatments. Social, cultural, and economic factors, especially race and gender, intersect and influence how people experience, manage, and receive treatment for their illness.

For me, as a Black woman, the intersections of race, gender, and chronic illness have been a central part of my experience. They have influenced how I am perceived and treated by healthcare providers, how I navigate social and professional spaces, and how I understand and manage my own health. They have also shaped the challenges I face in advocating for myself and others in the migraine community.

As a Black woman living with chronic migraine, I have faced numerous challenges in accessing appropriate care. From the very beginning, I encountered healthcare providers who dismissed my symptoms, minimized my pain, or failed to take my condition seriously. This experience is, unfortunately, all too common among Black women, who are often perceived as being more resilient to pain and less in need of care than their white counterparts.

Studies have shown that Black patients are less likely to receive adequate pain management compared to white patients, even when presenting with the same symptoms. This is particularly troubling in the context of , a condition that is characterized by severe, debilitating pain. When healthcare providers fail to take Black patients’ pain seriously, they are less likely to prescribe effective treatments, less likely to refer patients to specialists, and less likely to provide the comprehensive care that is needed to manage a chronic condition.

You can read more about the intersection of race, gender, and in my book 𝐌𝐨𝐫𝐞 𝐓𝐡𝐚𝐧 𝐌𝐢𝐠𝐫𝐚𝐢𝐧𝐞: 𝐀 𝐉𝐨𝐮𝐫𝐧𝐞𝐲 𝐓𝐡𝐫𝐨𝐮𝐠𝐡 𝐏𝐚𝐢𝐧, 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲, 𝐚𝐧𝐝 𝐇𝐨𝐩𝐞 on sale now for just $9.99 on Amazon. Link in my bio.

Address

754 Warrenton Road, Suite 113/224
Fredericksburg, VA
22406

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