11/02/2025
Support For Today - Hope for Tomorrow
Prunebelly Syndrome (Eagle Barrett) is a rare disease that affects 1 in 40K. So rare that most doctors don't even know what to do or how to treat it.
This fundraiser is to bring awareness to Prunebelly syndrome, to help with Cj's medical expenses. staffed solely by volunteers and is dedicated to supporting those born with Prunebelly and their families.
Cj had two surgeries while he was in utero. When he was born, his Prunebelly was diagnosed, as well as only 1 functioning kidney, severe scoliosis, and other health issues associated with his rare disease. He immediately needed surgery to keep him alive. Cj is a fighter and beat the odds as most babies born with these issues don't survive those first few weeks.
This amazing, resilient little boy is now 11 years old. He loves his family, enjoys school, playing at the playground, building with Legos, and he even learned to swim and loves art and singing ! He takes each day in stride, hoping that he will not need to go to the ER or hospital. To date, he has had 51 surgeries and knows that he will need many more in his lifetime. CJ has endured more pain than any child should ever have to suffer through.
Cj feels strongly about trying to educate others about his disease . Cj is looking forward to meeting you and to thank you for supporting him and others with his disease. He can't wait to say hi!
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