The Juvenile Lupus Foundation of America

The  Juvenile Lupus Foundation of America Mission To educate and to provide any form of support, whether it is medical or educational, for these affected children and their families. living with lupus.

What is Lupus

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years. In lupus, something goes wrong with your immune system, which is the part of the body that fights off viruses, bacteria, and germs ("foreign invaders," like the flu). Normally our immune system produces proteins called antibodies that protect the body from these invaders. Autoimmune means your immune system cannot tell the difference between these foreign invaders and your body’s healthy tissues ("auto" means "self") and creates autoantibodies that attack and destroy healthy tissue. These autoantibodies cause inflammation, pain, and damage in various parts of the body. Lupus is also a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better). Lupus can range from mild to life-threatening and should always be treated by a doctor. With good medical care, most people with lupus can lead a full life. Lupus is not contagious, not even through sexual contact. You cannot "catch" lupus from someone or "give" lupus to someone. Lupus is not like or related to cancer. Cancer is a condition of malignant, abnormal tissues that grow rapidly and spread into surrounding tissues. Lupus is an autoimmune disease, as described above. Lupus is not like or related to HIV (Human Immune Deficiency Virus) or AIDS (Acquired Immune Deficiency Syndrome). In HIV or AIDS the immune system is underactive; in lupus, the immune system is overactive. Our research estimates that at least 1.5 million Americans have lupus. The actual number may be higher; however, there have been no large-scale studies to show the actual number of people in the U.S. It is believed that 5 million people throughout the world have a form of lupus. Lupus strikes mostly women of childbearing age (15-44). However, men, children, and teenagers develop lupus, too. Women of color are 2-3 times more likely to develop lupus. People of all races and ethnic groups can develop lupus. More than 16,000 new cases of lupus are reported annually across the country.

Scientists could be a step closer to identifying and treating early cases of lupus, before the onset of organ-damaging i...
08/02/2012

Scientists could be a step closer to identifying and treating early cases of lupus, before the onset of organ-damaging illness. Research results published in the latest issue of Arthritis Research & Therapy further confirm that it could be possible in the future to profile individual disease characteristics that predict lupus. Read more now!
http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=4639&zoneid=99

Scientists could be a step closer to identifying and treating early cases of lupus, before the onset of organ-damaging illness.

05/25/2012

Learning that your child has Lupus can be an overwhelming experience. Be proactive. As is any parent, you are your child’s biggest and best advocate!

Today's lupus fact: Only 10 percent of people with lupus will have a close relative who has lupus or may develop lupus, ...
05/24/2012

Today's lupus fact: Only 10 percent of people with lupus will have a close relative who has lupus or may develop lupus, and only five percent of children born to a mother with lupus will develop the disease. For more information about Lupus Awareness Month, please visit www.lupus.org/awareness.

May is Lupus Awareness Month. Join the Lupus Foundation of America and Band Together for Lupus Awareness

05/18/2012

Many of you might not know but, my mother has Lupus. She has had this autoimmune disease for about five years. As my family continues to research this disease, we have found that this disease is often misdiagnosed and because of the lack research many people of are living with Lupus and have no idea. As a result many of our nation’s children are hurting, with risk dying without treatment. It is my mission to close the gap in research, so that our children can rightfully be treated! When I started campaigning for GISD school board a lot of plans got on hold but, I’m happy to announce today we will officially launch this foundation. The month of May is National Lupus Awareness Month, so let’s get started!!!!

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