LA Kelley Communications, Inc.

03/13/2026

It's Bleeding Disorders Awareness Month!

03/11/2026

Apply for the Calvin Dawson Scholarship!
https://bit.ly/46NMSGu

03/09/2026

This week on HemaBlog...
Catch Their Eye! Using Visuals Effectively
https://bit.ly/4b1ZaOc

03/06/2026

Webinar: Health Care Policy Changes in 2026

Educational webinar series, hosted by Accessia Health, with a goal of improving health education and literacy.

03/04/2026

Apply for The Soozie Courter Scholarship!
https://bit.ly/4rMFzY9

03/02/2026

BioMarin Pulls Hem A Gene Therapy Drug from Market

Just three months after further scaling back its support for the struggling hemophilia A gene therapy Roctavian, BioMarin is walking away altogether by pulling the treatment from the market. < | Just three months after further scaling back its support for the struggling hemophilia A gene therapy Roc...

02/27/2026

The Amazing Journey of Advocate Dana Kuhn

What happens when life-saving treatment becomes life-altering — and the systems meant to protect families move too slowly to prevent harm?

02/25/2026

Apply for the Medexus B More™ Scholarship!

At Medexus Pharma, the goal is to help people with hemophilia B by providing high-quality, specialized therapies, connecting with people to learn about their needs, and developing empowering programs that enrich peoples’ lives. This program just for people with hemophilia B helps deliver a brighte...

02/24/2026

This week on HemaBlog...
Music: Something That Outlives It All
https://bit.ly/4rcGe49

02/20/2026

Ibrar sends thanks for scholarship support from our Maximum Impact program!

02/18/2026

Apply for the Brothers Healthcare Scholarship!
https://bit.ly/4rihPuA

02/16/2026

February 14 was World Congenital Heart Defect Awareness Day. I am proud to say that for the past two years, my company has sponsored an outreach program to identify adults with congenital heart defects, to create a patient registry for the first time in Uruguay. Like in hemophilia, many patients "disappear" from the medical radar screen once they become adults--here after age 15. No one knew what became of them, and as they age, they still need care and testing. Great progress has been made by the team, spearheaded by Dr. Roberto Canessa (of "Alive" fame), and a new patient advocacy group was formed for the first time! I'm hoping to visit in June to celebrate their success so far. I plan to support this initiative for the next two years.

Here is the patient group with Dr. Canessa: Grandes Corazones!