Jen Z’s Parkinson’s Journey

Jen Z’s Parkinson’s Journey Diagnosed with Parkinson’s on 4/27/2023. This will be a page to document my journey.

03/24/2026

Valley of the Sun JCC is launching its Parkinson's Educational Speaker Series beginning in May. This monthly series will feature physicians, neurologists, and subject-matter experts who will share the latest updates on Parkinson's care, treatments, and medications. The program is designed to provide valuable, up-to-date information for individuals living with Parkinson's, as well as their caregivers and families.

The series will run monthly throughout 2026-27, and all are welcome to attend.

To sign up https://vos-jcc.my.site.com/s/free-programs

Managing Parkinson’s disease often means making the most of limited time with my Movement Disorder Specialist, whom I se...
03/22/2026

Managing Parkinson’s disease often means making the most of limited time with my Movement Disorder Specialist, whom I see every three months. During these visits, I’m expected to communicate everything—symptoms, changes, and concerns—but time constraints make it difficult to cover it all. This has reinforced my belief that health technology plays a critical role in capturing and sharing meaningful data between appointments.

Through educational webinars hosted by organizations such as the Parkinson's Foundation, Davis Phinney Foundation, Parkinson & Movement Disorder Alliance, The Michael J. Fox Foundation for Parkinson's Research and Neuro Challenge Foundation, I’ve learned how technology can support more informed healthcare decisions. It was through one of these sessions that I discovered ActualSignal.

Unlike other tools I’ve used, ActualSignal provides real-time insights that both I and my specialist can access. This allows for earlier identification of changes, more proactive adjustments to treatment, and more productive clinical visits. From personal experience, this technology has become an essential part of my care—helping me better understand my condition, communicate more effectively, and manage progression with greater confidence.

03/21/2026

These photos are from yesterdays fun at Alta Climbing in Gilbert with Up ENDing Parkinsons! Everyone climb high and it was successful. Lots of adrenaline and most importantly dopamine. The volunteers are absolutely wonderful people. They give of their time to help have a wonderful experience! I recommend anyone with PD to try this at least one time. You won’t regret it! 🧗

03/21/2026

Get ready! The Pedal to Phoenix 2026 starts in 1 month! Follow Team Route 66 Pedaling For Parkinson's Cycling Team for daily updates as they cycle from Chicago to Phoenix on the legendary Route 66.

This is exactly what happens to me!
03/21/2026

This is exactly what happens to me!

03/21/2026

For the first time, the World Parkinson Coalition is partnering with the Parkinson's Foundation to bring PD GENEration to the 7th World Parkinson Congress as part of the Clinical Research Village.

Join one of our live webinars to learn more about PD GENEration at the World Parkinson Congress. Register to sign up for the upcoming Spanish webinar on March 25.

Por primera vez, el World Parkinson Coalition se une a la Parkinson’s Foundation para llevar PD GENEration al 7.º World Parkinson Congress (WPC) como parte del Clinical Research Village.

Únase a uno de nuestros seminarios web en vivo para conocer más sobre PD GENEration en el World Parkinson Congress. Regístrese para inscribirse en el próximo seminario web en español el 25 de marzo. Register for Webinar: https://parkinson.zoom.us/webinar/register/WN_JSs91DBVQsueBhZpwiSXGQ #/registration

Learn more: https://wpc2026.org/genetictesting

This explains a lot for people who don’t understand the exhaustion that comes with PD when doing the smallest tasks!
03/19/2026

This explains a lot for people who don’t understand the exhaustion that comes with PD when doing the smallest tasks!

03/17/2026
03/15/2026
03/14/2026

Learn more about Parkinson's and find support: https://dpf.orgIn this webinar, Dr. Delaram Safarpour explains how deep brain stimulation (DBS) programming wo...

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