Case & Nova’s Fanconi Journey

Case & Nova’s Fanconi Journey This page is for us to keep everyone updated and allow you to follow along with us during this time!

Heading to Cincinnati with our girl for her dermatology and gastroenterology appointments. Prayers for good appointments...
09/04/2025

Heading to Cincinnati with our girl for her dermatology and gastroenterology appointments. Prayers for good appointments🩵

First day of 4th and 2nd grade🥹🥹
08/12/2025

First day of 4th and 2nd grade🥹🥹

We made and are all settled in for the early morning🩵🩵
08/08/2025

We made and are all settled in for the early morning🩵🩵

Heading to Cincinnati at the end of the week! Nova has her yearly bone marrow biopsy to see where we are at. Prayers for...
08/04/2025

Heading to Cincinnati at the end of the week! Nova has her yearly bone marrow biopsy to see where we are at. Prayers for safe travels and good results. Updated picture from last week when they got their hair cut😊🩵🩵

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07/23/2025

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06/28/2025

We are back home, everything went smoothly today. Case did amazing again today. Test results are in and he’s great! He got approved for sports and he goes back in a year for follow ups. He had his nose and throat scope today to make sure he has no lesions and he was clear on that too! I’m so happy our boy is healthy🩵 On to Miss Nova we will be going for her bone marrow biopsy August 8th, her numbers of course are low but we are still hanging in there. And her skin chronicles continue she has now been diagnosed with vitiligo, which is an autoimmune disease that attacks the pigmentation of her skin. It’s not cancerous and doesn’t affect anything else in her body. We can handle being different, it’s nothing new to us! Her psoriasis shots are working and doing their thing still. So all in all appointments went great and we are home and happy🩵🩵

All appointments are done for today and I have to brag a little bit. Case did amazing during his lung and echo testing. ...
06/26/2025

All appointments are done for today and I have to brag a little bit. Case did amazing during his lung and echo testing. Usually he is all over the place singing in the tube, squirming around and not listening. Today he did everything they asked and was nothing but cooperative🙌🏼one proud mama🩵🩵

We had a little down time today and got a few pictures🩵🩵
06/26/2025

We had a little down time today and got a few pictures🩵🩵

Our only appointment today is CBDI and we have a ton of appointments tomorrow. Also, why is he growing so fast, he’s up ...
06/25/2025

Our only appointment today is CBDI and we have a ton of appointments tomorrow. Also, why is he growing so fast, he’s up past my shoulders now🥺🥺

06/24/2025

We made it to Cincinnati! I’ll do a big update before we leave Friday🩵🩵

06/23/2025

We will be heading up to Cincinnati tomorrow for our follow up appointments this week. Prayers for safe travels and great results🩵🩵

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Glasgow, KY
42141

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