Congenital Hyperinsulinism International

Congenital Hyperinsulinism International CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.

CHI supports the greater congenital hyperinsulinism (HI) community by providing educational and support activities (such as conferences and forums), and representing our community’s interests. CHI is guided in its activities by an outstanding scientific advisory group which includes the leading HI clinicians and researchers.

Who has a birthday 🥳 in September? CHI wants to give all our September babies a birthday shout-out! 🎈🎉 Send your birthda...
09/01/2025

Who has a birthday 🥳 in September? CHI wants to give all our September babies a birthday shout-out! 🎈🎉 Send your birthdate, photo, and a short message to lbarnett@congenitalhi.org or DM us!⁠ ⁠🎂⁠
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| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Best of luck at school this year, George! 🏫 CHI wishes you a terrific first day of school! 🖍️⁠⁠Do you have a back-to-sch...
08/31/2025

Best of luck at school this year, George! 🏫 CHI wishes you a terrific first day of school! 🖍️⁠
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Do you have a back-to-school photo you would like to share with us? DM us on social media or email Lbarnett@congenitalhi.org⁠
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Our CHI Family Conference with Children's Hospital of Philadelphia (CHOP) is approaching!Swipe through to view all the f...
08/30/2025

Our CHI Family Conference with Children's Hospital of Philadelphia (CHOP) is approaching!

Swipe through to view all the fun from our past conferences in Fort Worth, Liverpool, and Copenhagen. More fantastic memories await us in Philadelphia!

Our discounted hotel room block closes September 3 - book your room and register with us today! Visit https://congenitalhi.org/2025-congenital-hyperinsulinism-family-conference-in-philadelphia/ for more information.


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Best of luck at school this year, Nora! 🏫 CHI wishes you a terrific first day of school! 🖍️⁠⁠Do you have a back-to-schoo...
08/29/2025

Best of luck at school this year, Nora! 🏫 CHI wishes you a terrific first day of school! 🖍️⁠
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Do you have a back-to-school photo you would like to share with us? DM us on social media or email Lbarnett@congenitalhi.org⁠
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Best of luck at school this year, Aislinn! 🏫 CHI wishes you a terrific first day of school! 🖍️Do you have a back-to-scho...
08/27/2025

Best of luck at school this year, Aislinn! 🏫 CHI wishes you a terrific first day of school! 🖍️

Do you have a back-to-school photo you would like to share with us? DM us on social media or email Lbarnett@congenitalhi.org⁠
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Dr. N. Scott Adzick will be speaking at our upcoming CHI Family Conference with CHOP! 🎉🏥 Dr. Adzick is the Surgeon-in-Ch...
08/27/2025

Dr. N. Scott Adzick will be speaking at our upcoming CHI Family Conference with CHOP! 🎉

🏥 Dr. Adzick is the Surgeon-in-Chief at Children’s Hospital of Philadelphia (CHOP).

➡️ He is also the founder and director of the Center for Fetal Diagnosis and Treatment.

💙 Dr. Adzick will be presenting on Surgical Update in the Treatment of HI.

🔗 For more information on programming, registration, scholarships, and hotels, visit https://congenitalhi.org/2025-congenital-hyperinsulinism-family-conference-in-philadelphia/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Happy National Dog Day from CHI! Pictured here are just a few sweet members of our community with their pups. Send us yo...
08/26/2025

Happy National Dog Day from CHI! Pictured here are just a few sweet members of our community with their pups. Send us your dog photos today to celebrate!


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Happy birthday to Niccolò! 🥳We received this sweet message from his mom: "Ciao a tutti oggi compio 2 anni ed è dalla nas...
08/25/2025

Happy birthday to Niccolò! 🥳We received this sweet message from his mom: "Ciao a tutti oggi compio 2 anni ed è dalla nascita che convivo con Iperinsulinismo, piano piano crescendo va molto meglio; imparo a conviverci ed a condurre una vita uguale a tutti i bambini ❤️"


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Our HI awareness posters are available in 26 languages!These can be used to raise awareness of congenital hyperinsulinis...
08/24/2025

Our HI awareness posters are available in 26 languages!

These can be used to raise awareness of congenital hyperinsulinism and the signs and symptoms of hypoglycemia.

Do you speak English and a language in which we don’t have a poster? If yes, help CHI improve accessibility for our community by translating.⁠
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Email lbarnett@congenitalhi.org to help us continue to help HI families across the world with free awareness resources. View our available posters here: https://congenitalhi.org/chi-posters/
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Supporting research doesn’t have to be hard. "Connecting my son's glucose meter was simple to do, all through my phone. ...
08/23/2025

Supporting research doesn’t have to be hard.

"Connecting my son's glucose meter was simple to do, all through my phone. He established a long time ago that he'd do anything to help other kids like him."

Sharing your glucose values helps HI researchers understand the unique glucose patterns in people with HI.

Visit higlobalregistry.org to log in and start sharing your glucometer and/or continuous glucose monitor (CGM) values.

Reminder: Your data is always de-identified in all reporting and research.

Not registered yet? It’s not too late to contribute your experiences to HI research! Learn more at higlobalregistry.org at the link in our bio and sign up today.


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Donate to our silent auction and help transform the lives of people with hyperinsulinism. ⁠ Do you have a product, servi...
08/22/2025

Donate to our silent auction and help transform the lives of people with hyperinsulinism.
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Do you have a product, service, or experience you'd love to showcase at our 2025 Sugar Soirée Silent Auction? Donating to our silent auction supports a cause that truly matters. Items can be from anywhere, as our auction will be virtual, so you can bid from anywhere! ⁠
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What we’re looking for: ⁠
• Wine or spirits
• Vacation homes
• Event tickets ⁠
• Gift Certificates ⁠
• Unique experiences ⁠
• Sweet treats & more! ⁠
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If you have any questions or would like to donate to the silent auction, email Jennifer at jschmitt@congenitalhi.org or send us a DM! ⁠
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Tickets & Details about the Sugar Soirée are available at the link in our bio.⁠


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

New article on diazoxide now available! "Real-world experience with the use of diazoxide among people living with congen...
08/21/2025

New article on diazoxide now available!

"Real-world experience with the use of diazoxide among people living with congenital hyperinsulinism and their caregivers” is published in Frontiers, available at https://www.frontiersin.org/journals/endocrinology/articles/10.3389/fendo.2025.1628125/full

This article, written by CHI staff and members of our Collaborative Research Network (CRN), uses data from the HI Global Registry (HIGR) as well as qualitative interviews.

Major topics covered in the research include taking diazoxide, side effects, diet and feeding issues, blood sugar control, ongoing monitoring, managing HI, and the daily impact of HI and diazoxide on quality of life.


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

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Glen Ridge, NJ
07028

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Tuesday 8am - 6pm
Wednesday 8am - 6pm
Thursday 8am - 6pm
Friday 8am - 6pm

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