Congenital Hyperinsulinism International

11/25/2025

A Juice Box Saved My Life!

As giving season approaches, we’re excited to spotlight the incredible grassroots advocacy within the HI community and invite you to join our newest campaign: The Juice Box Challenge.

Watch our launch video, made by HI parents Shubham and Deepti, summarizing the grassroots awareness campaign.

Learn how you can participate in the Juice Box Challenge on our website: https://congenitalhi.org/juice-box-challenge/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

11/24/2025

"Being part of this community means making sure we never ride the highs and lows of HI alone."

In her new blog post, HI mom and HIGR Ambassador Sandra describes her son Guilherme’s early days in his HI-Story.

Finally getting home from the hospital, Sandra writes that once she found CHI "a new part of the journey was about to begin, but we weren’t alone anymore. We were part of a community with many goals and purposes, a community to which we could also contribute."

Sandra and her family continue to contribute through the HI Global Registry (HIGR). She and her family are "helping increase knowledge about HI while making sure our voices, as patients and families, are taken into account, and heard, understood, and valued."

To read the full post, please visit https://congenitalhi.org/guilhermes-hi-story/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

11/23/2025

Newsletter from Rezolute now available!

Learn more about Rezolute's newsletter - The Rezolution - here: https://rezolutebio.com/join-the-rezolution/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

11/22/2025

"Hi everyone, I present to you Edoardo, affected by diazoxide-resistant congenital hyperinsulinism.

In 10 days he will be 1 year old and we are super happy.
We have agreed to connect his glucometer with HIGR to advance research on this disease, we are happy and we hope that in the future other therapies will be discovered."

Sharing your glucose values helps HI researchers understand the unique glucose patterns in people with HI. ⁠
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Visit higlobalregistry.org to log in and start sharing your glucometer and/or continuous glucose monitor (CGM) values. ⁠
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Reminder: Your data is always de-identified in all reporting and research. ⁠
⁠
Not registered yet? It’s not too late to contribute your experiences to HI research! Learn more at higlobalregistry.org and sign up today. ⁠
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| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

11/21/2025

We are excited to share our photos from the 2025 Sugar Soirée with you!

The evening was truly special, as we brought together longtime CHI champions and new supporters of the Sweetest Cause, united by one mission: improving the lives of people with HI worldwide.

Visit our webpage to view a slideshow from the unforgettable evening: https://congenitalhi.org/2025-sugar-soiree/

A heartfelt thank you to our industry partners, individual donors, and foundation sponsors for making this event possible. Together, we filled the room with determination to Raise It Now.


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

11/20/2025

Repost from Global Pediatric Endocrinology and Diabetes! 🔄

Hyperinsulinism Symposium | GPED Annual Meeting 2025

📅 Day 1 – 29 November 2025

Join us for an in-depth session on congenital hyperinsulinism (CHI) — from diagnosis to advocacy — with a focus on real-world challenges in resource-limited settings.

Topics include:
🔹 Diagnosis of Hyperinsulinism: Role of Genetic Testing in Resource-Limited Settings
🔹 Managing Congenital Hyperinsulinism: Challenges and Practical Solutions
🔹 Parents as Advocates for Access to Diazoxide

💻 Register now: https://site.pheedloop.com/event/GPEDMeeting2025/home?fbclid=IwY2xjawOMHrxleHRuA2FlbQIxMABicmlkETFRQ2EwenNJZVNESkdqUHNRc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHqcdegQ7r-rwtNrOgrZeUvdi64O5F68u8juIqLIGo0Tnipr4XEJ-F05TxG5B_aem_1R7q_pH-eXxZcmyV_kRyNA

💲 Fee: USD 15 | Group rate: USD 10 per person (min. 5 participants)

11/19/2025

Meet Felecia and Hannah: A Mother-Daughter HI Journey

Both were born with congenital hyperinsulinism (HI). Hannah received two pancreatectomies, and her diagnosis led Felecia to discover her own HI. Today, both have transitioned to life with diabetes, showing incredible strength and resilience. 💙

More HI-Stories are available on our website: https://congenitalhi.org/histories/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

11/18/2025

Education about hyperinsulinism and hypoglycemia doesn't have to be complicated!⁠

This , we are sharing materials all week long to help educate about the importance of recognizing and treating hypoglycemia to protect brain health.

Our infographics are available in English, Spanish, French, Dutch, Italian, Romanian, and Russian.

Learn more about hyperinsulinism, hypoglycemia, and , at https://congenitalhi.org/chi-infographics/



⁠ | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

11/17/2025

11/17/2025

Theo contributing to HI research by connecting his CGM to HIGR, while watering his plants.

Sharing your glucose values helps HI researchers understand the unique glucose patterns in people with HI. ⁠
⁠
Visit higlobalregistry.org at the link in our bio to log in and start sharing your glucometer and/or continuous glucose monitor (CGM) values. ⁠
⁠
Reminder: Your data is always de-identified in all reporting and research. ⁠
⁠
Not registered yet? It’s not too late to contribute your experiences to HI research! Learn more at higlobalregistry.org and sign up today. ⁠
⁠
⁠
⁠
| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

11/16/2025

What an unforgettable night!

The 2025 Sugar Soirée was a tremendous success, bringing together longtime champions and new supporters of the Sweetest Cause, all united by one mission: improving the lives of people with hyperinsulinism worldwide.

A heartfelt thank you to our incredible industry partners, individual donors, and foundation sponsors for making this evening possible. Together, we filled the room with hope, inspiration, and determination to .


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease