Congenital Hyperinsulinism International

Congenital Hyperinsulinism International CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.
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CHI supports the greater congenital hyperinsulinism (HI) community by providing educational and support activities (such as conferences and forums), and representing our community’s interests. CHI is guided in its activities by an outstanding scientific advisory group which includes the leading HI clinicians and researchers.

Who has a birthday 🥳 in May? CHI wants to give all our May babies a birthday shout-out! 🎈🎉 Send your birthdate, photo, a...
05/02/2026

Who has a birthday 🥳 in May? CHI wants to give all our May babies a birthday shout-out! 🎈🎉 Send your birthdate, photo, and a short message to lbarnett@congenitalhi.org or DM us!⁠ ⁠🎂⁠



| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Exciting news! Introducing HypoCare by CHI - your pocket guide for hyperinsulinism (HI) 📲Access trusted HI resources rig...
05/01/2026

Exciting news! Introducing HypoCare by CHI - your pocket guide for hyperinsulinism (HI) 📲

Access trusted HI resources right at your fingertips. 🤳 You’ll have a guide to reliable HI information, family support, research updates, the HI Global Registry, and so much more, all in one place.

Download the app today! Search “HypoCare by CHI” in the iOS App Store or Google Play for Android devices. If you have any trouble downloading it, please contact us at info@congenitalhi.org 📧


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

We have an exciting new event on the CHI calendar this year!Join us for the 2026 Giro del Vino Bike Ride, a stunning cyc...
04/30/2026

We have an exciting new event on the CHI calendar this year!

Join us for the 2026 Giro del Vino Bike Ride, a stunning cycling experience through Southern New Jersey's wine country—all while supporting individuals and families affected by Congenital Hyperinsulinism (HI).

The event will take place Sunday, October 4th in Hammonton, NJ, and is hosted by the TnT Cycling Club of New Jersey.

Ride through scenic routes, enjoy local wine, and make an impact that lasts far beyond the day. 💙

👉 Learn more about the routes & register or volunteer here: https://congenitalhi.org/2026-giro-del-vino-bike-ride/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

⚽️ Alexander loves to play soccer, but his mom worries about blood sugar drops when he does.❓️ What would you (or your c...
04/29/2026

⚽️ Alexander loves to play soccer, but his mom worries about blood sugar drops when he does.

❓️ What would you (or your child) do if you didn’t have to worry about lows?

🔗 Learn more about HI clinical trials for a at https://congenitalhi.org/clinical-research-trials/

Happy belated 5th birthday to Nora! 🥳 We hope you had a terrific day! 💙🩵         | Hyperinsulinism | Congenital | HI | H...
04/28/2026

Happy belated 5th birthday to Nora! 🥳 We hope you had a terrific day! 💙🩵


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

❗️ Recurrent hypoglycemia in newborns, infants and children is not normal. Learn the signs & symptoms of hypoglycemia to...
04/27/2026

❗️ Recurrent hypoglycemia in newborns, infants and children is not normal. Learn the signs & symptoms of hypoglycemia to prevent brain damage and death.⁠

🔁 Share this graphic to spread awareness of the dangers of hypoglycemia. ⁠

🔗 You can find CHI infographics at https://congenitalhi.org/chi-infographics/ and posters at https://congenitalhi.org/chi-posters/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Too often, the realities of living with congenital hyperinsulinism (cHI) go unseen.Rezolute’s VOICE study is here to cha...
04/26/2026

Too often, the realities of living with congenital hyperinsulinism (cHI) go unseen.

Rezolute’s VOICE study is here to change that—by listening, documenting, and honoring your experience.🧡

Your story matters. Let it be heard.

🔗 Sign up and share your story: https://sheconsulting.qualtrics.com/jfe/form/SV_9HVr5FoWE9t6dRc

"Your Voice Matters. Your Story Can Shape a Brighter Future."

🧬 Happy National DNA Day! 🧬Today we’re celebrating the science that helps unlock answers for the congenital hyperinsulin...
04/25/2026

🧬 Happy National DNA Day! 🧬

Today we’re celebrating the science that helps unlock answers for the congenital hyperinsulinism (HI) community. Genetics plays a vital role in understanding HI—guiding diagnosis, shaping treatment decisions, and driving research toward better outcomes.

In honor of , we’re sharing the latest blog post by CHI Associate Director of Research Kristen Rohli, PhD, on why genetics matters and how advances in genetic research are impacting individuals and families affected by HI.

"When people share genetic reports, diagnostic information, and updates about their health, researchers gain a much clearer picture of what HI looks like across the community. Each data point helps identify patterns, ask better questions, and design better ways to diagnose and treat HI in the future.

Today, in honor of DNA Day, we encourage you to take a small but meaningful step. Consider joining the HI Global Registry (higlobalregistry.org) or logging back in, uploading a genetic report if you have one, completing or updating the Diagnosis survey, or completing another survey to share how you or your child is doing today. Progress in genetics happens one shared experience at a time."

👉 Read the full blog: Celebrating DNA Day and Why Genetics Matters
🔗 https://congenitalhi.org/celebrating-dna-day-and-why-genetics-matters/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

How often do people with hyperinsulinism (HI) experience developmental delays? ✅ 48% of participants reported delays in ...
04/24/2026

How often do people with hyperinsulinism (HI) experience developmental delays?

✅ 48% of participants reported delays in reaching developmental milestones.

Most common areas of delay:
🔹 Gross motor skills (e.g., sitting, crawling, walking) (70%)
🔹 Language, speech, or communication (61%)

Additionally:
🔹 About 25% described delays in areas not listed in the survey, most commonly related to feeding issues.

These insights and more are featured in our 2025 HI Global Registry Annual Report, available at https://congenitalhi.org/higr-annual-reports-and-publications/

What is HIGR? It’s the only patient-powered hyperinsulinism (HI) registry, and your input drives critical research.

Not registered yet? It’s not too late to share your experiences and feel the power of your data! Learn more at higlobalregistry.org at the link in our bio and sign up today.


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

🌟 Last call for our Family Conference in Antalya! 🌟We’re excited to share that the next CHI Family Conference will take ...
04/23/2026

🌟 Last call for our Family Conference in Antalya! 🌟
We’re excited to share that the next CHI Family Conference will take place May 7–9, 2026 at the beautiful Royal Seginus Hotel in Antalya, Turkey.

Families, clinicians, researchers, and HI community members from around the world are invited to connect, learn, and recharge together. Expect inspiring talks, small‑group sessions, HI‑Stories, fun kids’ activities, and the chance to meet leading HI experts—all in a stunning coastal setting.

🧸 Translation + babysitting provided
👨‍⚕️ Featuring world‑renowned HI physicians & researchers
🤝 Hosted by CHI with Dr. Huseyin Demirbilek & KOHHA-DER

👉 Register now to save your spot!
https://congenitalhi.org/2026-chi-family-conference-in-turkey/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

🚴‍♂️ Ride (or walk!) for hyperinsulinism research with us!Congenital Hyperinsulinism International is honored to take pa...
04/22/2026

🚴‍♂️ Ride (or walk!) for hyperinsulinism research with us!

Congenital Hyperinsulinism International is honored to take part in the 2026 Million Dollar Bike Ride, supporting a hyperinsulinism pilot research project.

This event empowers organizations and advocates to directly fund innovative scientific research—and every contribution makes a difference.

Join us on Saturday, June 13, 2026, at the University of Pennsylvania campus in Philadelphia, PA! Learn how to get involved and join Team CHIbra:
🔗 https://congenitalhi.org/the-2026-million-dollar-bike-ride/


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

🔁 Share this graphic to spread awareness of congenital hyperinsulinism and  ⁠🔗 You can find CHI infographics and posters...
04/21/2026

🔁 Share this graphic to spread awareness of congenital hyperinsulinism and

🔗 You can find CHI infographics and posters available in English, Spanish, French, German, Italian and Russian here: https://congenitalhi.org/chi-infographics/


Address

Glen Ridge, NJ
07028

Opening Hours

Monday 8am - 6pm
Tuesday 8am - 6pm
Wednesday 8am - 6pm
Thursday 8am - 6pm
Friday 8am - 6pm

Telephone

+19735448372

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