04/22/2026
Monday at the Capitol was powerful.
For our 1st Annual California SCD Advocacy Day, we stood together. SCD warriors, families, advocates, and allies all made it clear that our community deserves equitable care, consistent treatment, and the resources to thrive.
We came with two specific asks: $15 million over three years to sustain Cayenne Wellness Center's wraparound services that keep Warriors alive and supported. This means mental health counseling, transportation assistance, respite care, and other critical services hospitals alone can't provide. And we also called for enforceable standardized, evidence-based guidelines in the state of California so every person with SCD gets quality care no matter which hospital they walk into.
Thank you to everyone who showed up for each other. Your presence mattered. Your voices matter. This is just the beginning.
The conversation continues with our legislators. If you haven't already, reach out to your assembly-members and senators. Let them know why these asks matter to you, why Sickle Cell Disease matters, why consistent care and community support matters.
We're not slowing down. We're here to fight for and with you for better care, for dignity, for change.
