10/15/2025
Pain is the most common symptom experienced by people living with EDS/HSD and yet it is so often undertreated and misunderstood.
Pain can feel complicated (you’re given conflicting answers! you’re gaslit! you’re told a million different things to do, to try!) and to treat pain, it’s important that we begin with an understanding of it.
First things first, your pain is real. Period. (don’t let anyone tell you that it isn’t)
We can experience different types of pain and there are oh so many flavors of pain that come with living with EDS/HSD.
One differentiation is acute vs chronic pain. With EDS/HSD, people experience BOTH types all the time and treatment needs to address each to be effective!
Not addressing both types of pain is one of the biggest mistakes I see with PTs who don’t specialize in treating EDS and hypermobility-related syndromes.
There are a lot of things we can do to treat pain… in PT and beyond… so don’t give up! Keep trying until you find what works for you!
