05/27/2023
We've had a great week.
First, Nutrition: Even though she has only gained a few ounces since March, she is still trending with her height (proportionate). The nutritionist didn't seem concerned. Although, she is going to keep her on the higher calorie regiment for now. She was 13.7 lbs on March 8th. Today, she was exactly 14.0 lbs. Even though nutrition doesn't seem concerned. I am still worked up about it. I will see what GI will say on Tuesday as a 2nd opinion and hopefully put some worry to ease.
Second, PM&R: He is VERY happy with her gains. She is doing exceptionally well in a lot of areas. There are some things he wants to continue to monitor. One is her right foot with the inward ankle and toe curling. She does have some asymmetrical areas in things she does. But, it is too premature to land at a cerebral palsy diagnosis. Although, that could still be on our horizon. He wants to wait for any feet orthotics. As, as many gains and progression she has had since the last visit, it could very well correct itself. Our next visit isn't scheduled until September after she turns a year. Where has the time gone!?!
We seen Miss Molly, our wonderful OT therapist, today. She did mention last time pending her progression at an OT standpoint that instead of every 4 weeks. She may change us to once a week. She did do that change today. So we will see her again next week. Em and I will take whatever services/therapy that are offered. NOW is the time. She will be getting a couple assistive devices to help her! An abductor brace for her hands as he thumb is in the palm greater than 50% of the time. And a weight bearing mitt, don't ask me exactly what that is but I know it keeps her hands in the correct position when she is weight bearing.
Oh, and lastly, birth to 3 contacted me. They are still working to get us set up with a permanent PT and OT. So she asked if I wanted someone temporarily. Absolutely, not living at the therapy center is absolutely a benefit, so I am waiting for that to get scheduled.
As much as I would like to not have so many therapies and such, I'm also trying to take advantage of all the things offered. 1. So we don't have to back peddle. 2. The brain with neuroplasticity, especially at a younger age , is easier to mold. The quicker the issue is noticed the quicker we can work on treatment, resulting in less long term problems. I certainly don't want to say when she is graduating high school or even in middle school, "I wish I would've."
XOXO
