10/21/2025
Nadira Kharmai learned through early screening that her unborn son had trisomy 21, indicating Down syndrome. Her wife, Laura Freed, said, “We knew we’d be okay knowing the best care was right here at Helen DeVos Children’s Hospital.”
Rhys was born nearly a year ago, and his arrival was a joyful celebration. After spending 32 days in the NICU, the family of four - Rhys joining his big brother - was thrilled to be home, though they knew challenges lay ahead.
“Rhys was in infant heart failure for the first three months,” Nadira shared. “He had weekly home health visits, feeding and physical therapy, pediatrician appointments, blood draws, injections, and more.”
Asked how they cope, Nadira said, “We just get through it. Rhys is a shining star, and we’re proud to be part of the lucky few.”
Milestones are treasured, and a recent one was especially magical: Rhys was featured in Times Square by the National Down Syndrome Society. “It was surreal,” Nadira said. “To see our baby on the big screen in one of the most famous places in the world - it was amazing.”
Both moms reflect on how far they’ve come and remain grateful for their care team. “The system is incredible,” Laura said. “And its heartbeat is the people who’ve loved us like family.”
