Team Maddie Strong - Fighting together

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NEW ACCOUNT.HER OLD ACCT WAS HACKED.Maddie was diagnosed with a rare form of brain/spine cancer.She also has a rare genetic mutation they can’t diagnois along with LiFraumeni.Her sister Avah was also diagnoised with LiFraumeni and one they can’t diagnois.

We are finally home … we are both exhausted and that is an understatement !! These hospital days just drain the life rig...
03/18/2026

We are finally home … we are both exhausted and that is an understatement !! These hospital days just drain the life right out of you !! Thank you for all the continued prayers , love and support !! It means so much to us . We talked with the nurse before we left and she said she sent a message over to Madison’s oncologist to remind him to look over the scans when they are ready . Hopefully will know something Friday !! Please keep the positive vibes and prayers coming !!! Share , like and follow her page . We need all the support we can get right now !!! Madison is my hero and I am so very proud of her . She amazes me with her strength and bravery !! We are team Maddie strong 💪

She did amazing for her Petscans … she inspires me so much , my hero !! She made it through the whole thing and did it l...
03/18/2026

She did amazing for her Petscans … she inspires me so much , my hero !! She made it through the whole thing and did it like she has done it before . We are now back in clinic for an hour of hydration and then she wants ice cream !! So I will definitely treat her to that !!! I’m so proud of her 🥹 she is so strong and brave !!! But now the waiting game … please keep the prayers coming !!! Team Maddie Strong 💪

Well we have arrived for her PetScan at Lemmon Holton Cancer Center . She had the radioactive injected into her IV now w...
03/18/2026

Well we have arrived for her PetScan at Lemmon Holton Cancer Center . She had the radioactive injected into her IV now we wait for it to do its job . (About 60-90 minutes) then she will go get her pictures taken. They said that should be about an hour all together for those . She is doing amazing ❤️ My hero ❤️

Well after looking and looking they called the vein tram to come and look at Maddie’s veins . After looking with the ult...
03/18/2026

Well after looking and looking they called the vein tram to come and look at Maddie’s veins . After looking with the ultrasound machine they found a vein and put her IV in . Now we are running fluids !! Poor Maddie has really bad veins , very hard to find ones too. She did an amazing job !! The team was amazing as well !!! She is reading her book , she just got into Twilight . Everything Twilight 🍎 just like her mama 😝 Well I was a huge fan when it came out years ago and now it’s making a come back . We are Team Edward ❤️ Please keep the prayers and positive vibes coming . Team Maddie strong 💪🎗️

We are here at clinic (oncology ) Madison will get her IV here and they will start her on hydration to prep her for her ...
03/18/2026

We are here at clinic (oncology ) Madison will get her IV here and they will start her on hydration to prep her for her Petscan. Please send prayers bad positive vibes … PTSD and anxiety is in full swing 😭 she’s so scared !! I hate this 😭😭

It’s been a week … lots of appointments already and it’s only Tuesday !!! Madison has had her no sugar and low carbohydr...
03/18/2026

It’s been a week … lots of appointments already and it’s only Tuesday !!! Madison has had her no sugar and low carbohydrates today !! We will be heading to clinic (oncology) tomorrow at 10:30am for her Iv hydration. Then we will head over to Lemmon Holton Cancer Center for Maddies 3 hour PetScan. Not sure what to expect since this is her very first one ever! We have avoided any form of radiation bc she can’t have it with her Li Fraumeni syndrome. But unfortunately she needs to have this scan done . We don’t know what these spots are on her liver . I just hope and pray this scan doesn’t cause anymore spots /cancer . Please keep us in your prayers and send all the positive vibes you can our way. Like , follow and share this page !! We need all the prayers right now !!! Madison is definitely worried and having a lot of anxiety with this . I’m doing everything I can to help keep her spirits lifted . But this is so hard one everyone involved . Childhood cancer tried to steal this life from Madison not once but twice …Cancer is never far from our minds , it’s always there tryin to steal her joy and spirit!! We won’t let it WIN!. This girl has fought , we have fought way too hard to let it win !!! We won’t ever give up not EVER!!! Whatever tomorrow brings we got this !! I know Madison will get through this tomorrow and be stronger than ever !!! I can’t say I’m ok .. because I’m far from it . I’m holding it together for Madison for Avah and hunter as well. These tests these hospital days are so very hard . The unexpected is even harder . The unknown … but I know all we can do is take one minute at a time … we got this !! I keep telling myself that . But tomorrow will not be easy .it will be hard and trying !!! PTSD and anxiety in full swing .But all I know is Madison is a fighter and I know her strength and bravery will keep me going. She’s my hero !!! Tomorrow I will also be dropping my car off to be looked at .. this car has been nothing but problems .I really hope they can fix it this time . Life has definitely thrown us our share of struggles and it just keeps coming, one thing after another !Stay positive and keep the faith is getting harder, the struggle is real!

Making memories today ❤️ we were invited to the Grand Rapids Gold Basketball game today at The Van Andel Arena . Thanks ...
03/16/2026

Making memories today ❤️ we were invited to the Grand Rapids Gold Basketball game today at The Van Andel Arena . Thanks to A Kid Again organization ❤️We all had a blast ❤️ The kids got to sit in the bench warmers seats before the game and watch them practice . It was a good time for all . It was our first professional basketball game ever !! Thank you to A kid again for making this possible . We definitely needed this today . This week is stressful for us all and this let us have some much needed family time . We made memories and enjoyed ourselves . Today was a good day !! Tomorrow I have an appointment and Avah starts soccer practice . Tuesday my car goes in to get looked at 😭 It has been a very stressful here with everything. My blender , my convection oven and my slow cooker is done . I’m waiting for something else to go wrong . Our sump pump was acting up got that worked out but there seems to always bee something. Life keeps testing us but trying to stay positive is hard .
I’m waiting for my cardiologist appointment and my ultrasound to be scheduled . Madison has to be at clinic at Helen Devos Childrens Hospital at 1030 on Wednesday for IV hydration and then noon starts her Petscan at Lemmon Holton Cancer Center . It will be a very long exhausting day but all we can do is take it one minute at a time . Please continue to send positive vibes and prayers . Please like , follow and share her page. We could use all the support we can get. Thank you for all your continued love and support . We love you all

These two pups know when things are tough … they are always by our side ❤️ They are our comfort when we are sad ❤️ It’s ...
03/13/2026

These two pups know when things are tough … they are always by our side ❤️ They are our comfort when we are sad ❤️ It’s been a week …appointments for me and the kids , soccer try outs for Avah and everything in between. Today I had to make another appointment for me . I have been having some dizzy spells and I have fell a couple times in the last couple of weeks . The last few days I have been having a lot of abdominal pain and some other pain in my chest area. So my dr wanted me to get labs and she referred me to see a cardiologist. Things are really tough right now 😭 I’m struggling emotionally and physically. The daily stress of everyday life is hard let alone add Madison’s medical stuff, now mine and our financial struggles too. Please keep us in your prayers . We have a lot we are trying to deal with. Thank you for all your continued love , prayers and support . It means so much to us .

It’s been a week full of appointments but one thing is for sure these kids and our pups make my heart happy ❤️ today we ...
03/06/2026

It’s been a week full of appointments but one thing is for sure these kids and our pups make my heart happy ❤️ today we schedule Madison’s petscan for March 18th. She can’t at or drink but needs to be hydrated so we will first have a clinic appointment for hydration and then her petscan is scheduled for noon. It will be a very long and stressful day . Madison is pretty worried about the test and most of all the IV. She doesn’t have good veins they call them chemo veins . She has been through so much in 15 years. This never gets easy 😭 This will be her very first Petscan. So this is new to both of us . We have not needed one until now . We try to avoid any form of radiation bc of her genetic mutation Li Fraumeni Syndrome. So I am a bit worried about having this done but unfortunately she has to have it . So I will hope and pray hard that this doesn’t cause any other problems with her body. Cancer sucks and her body has been through so much and continues to . But I know she’s strong and she will do amazing !!! All we can do is focus on today and just take one minute at a time . That is all we can do 😭🙏 please continue to like , follow and share her page . We need all the support we can get !! Thank you for all your continued prayers love and support . We love you all .

Well .. not the news we had hoped for 😭 her spots did grow so her oncologist is ordering a full body Petscan. Hopefully ...
03/03/2026

Well .. not the news we had hoped for 😭 her spots did grow so her oncologist is ordering a full body Petscan. Hopefully that will get ordered sooner than later . Please keep the prayers and positive vibes coming. Madison is so brave and strong 🙏🎗️ she keeps me going each and everyday !! She did so good today , she was a champion!!! She inspires me so much 🥺 My hero !!! Thank you for all the continued prayers love and support . We appreciate it all so very much !! Life is so hard right now but I know all we can do is take one day at a time 😭 Today is a gift .

Here we go again …. Labs , ultrasounds and oncology appointments. 🙏🎗️ She’s hungry ! She can’t eat or drink anything unt...
03/03/2026

Here we go again …. Labs , ultrasounds and oncology appointments. 🙏🎗️ She’s hungry ! She can’t eat or drink anything until after her ultrasounds . Please keep us in your prayers and send positive vibes ❤️🎗️🙏 I hate cancer !! She has fought to live every single day since she was 4 months old !! This isn’t fair !!! 😭 but she is a fighter and will never give up !! I won’t ever give up !!!

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Grand Rapids, MI
49508

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