Team Maddie Strong - Fighting together

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NEW ACCOUNT.HER OLD ACCT WAS HACKED.Maddie was diagnosed with a rare form of brain/spine cancer.She also has a rare genetic mutation they can’t diagnois along with LiFraumeni.Her sister Avah was also diagnoised with LiFraumeni and one they can’t diagnois.

It’s been a day 😭 After 3 pokes and a very long afternoon , we finally made it home around 5:30. Some tears were shed bu...
05/07/2026

It’s been a day 😭
After 3 pokes and a very long afternoon , we finally made it home around 5:30. Some tears were shed but this girl is an absolute rock ⭐️ She sat there with tears running down her face saying owe owe and taking deep breathes and she made it through the labs. It was a very bad day for her veins . They just didn’t want to cooperate at all . Chemo ruined her veins and everytime she needs labs it’s like playing a horrible game. 😭😭 We will see what her labs comeback as . She saw the orthopedic oncologist at Lemon Holton today and bc her leg is having so much pain that they want to do an MRI with and without contrast . He’s not sure what it is but he doesn’t think it’s cancer . But with not 💯 sure what it is he wants some more imaging . So we will be scheduling that asap . Madison also had her eye appointment and also all get pictures of her eyes as well today. Her optical nerves still remain stable which is great news . Madison does have optic atrophy so she gets eye pictures along with frequent follow ups every 6 months . Madison was such a trooper and these days never get easier . Both girls will have their 3 month ultrasounds , labs and oncology appointments on May 22nd. But we will just take one minute at a time . Things are really really rough 😭 right now with just about everything in life . But all I know is watching Maddie today , watching her fight and stay strong and brave just makes me fight even harder !!!
Tomorrow I am heading to Greenfield Village with Hunters 5th grade classes. I’m ready to make memories with my favorite dude ☺️ Tomorrow I’m going to try and take it all in and enjoy the time we will have together making memories. Thank you for all your continued support, love and prayers . Please like , share and follow this page. We need all the support we can get. We love you all .

Oncology for leg , labs and eye appointments today for this warrior !! She is anxious but doing ok. This week has been ...
05/06/2026

Oncology for leg , labs and eye appointments today for this warrior !! She is anxious but doing ok. This week has been so hard And that’s an understatement 😭 but one minute at a time is all we can do . I woke up to my bank account being $6.66 😬😭😩 I am like NOOO . Money is nonexistent and It sucks. But I’m trying to stay positive and lots of praying 🙏 Please continue to pray and send positive vibes our way please !!! We need them . Please like, follow and share Maddies page .

05/02/2026

Please meet Madison:

Madison was diagnosed in January 2011 with a rare form of brain cancer. It's called choroid plexus .She was the youngest dx there at only 4 months old.She had a total of 11 cycles of chemo all before she turned 1. To many MRI's, spinal taps and inpatient stays in that short 8 months.The drs put her in remission when she was 13 months old but still was getting spinal taps, MRI's every 3 months . But unfortunately after her 9 month scan her dr called and told us that she had relapsed with two new brain tumors. She immediately went in and had a port placed and began outpatient chemo. But Nothing was working and they wanted to send her home on hospice but that wasn’t an option !! so on September 11, 2013 she underwent another tumor removal and had a tumor marker test done and it came back with 4 different chemos/ meds that will hopefully get rid of her cancer/tumors. She started the treatment the end of September 2013 and she stopped treatment September 2017.It was a clinical trial .she got the news that she was NED in August 2019. She continues to get mris every year now. She battles everyday with side effects that chemo and the cancer has left her including a shunt in her brain that malfunctioned twice last year and had to endure two more Brain surgeries in 6 months. We just try to take one day at a time . She is 14 years old and. She is a true miracle !! But after this last MRI they can’t really say she’s still cancer free. She has 5 new spots that they are thinking they are benign cysts . But she is being watched every 4 months with ultrasounds , labs and appointments with her oncologist.
Our motto .. Stay strong and never give up !!
Team Maddie Strong
Maddie did a clinical trial that saved her . Her drs have brought her case to other drs and hospitals all over the country
https://www.facebook.com/share/1Xrvp6axip/?mibextid=wwXIfr

The girls had their middle school choir concert tonight and even though Avah wasn’t feeling the best but she did great ....
04/30/2026

The girls had their middle school choir concert tonight and even though Avah wasn’t feeling the best but she did great . She stepped out of her comfort zone and tried out for the dual solos and made it . She had a dual solo and she did amazing 🥹 Madison did so good as well. She remembered all the songs . I’m so very proud of both of them. They both are growing up so fast . My babies 🥹 Madison also got through the concert with her leg pain. The standing and walking today was making her pretty miserable but she got through it . She inspires me so much !! Both of them are so brave and strong !! My hero’s !! Since having my Hida scan on Monday my stomach has been miserable, I’m hoping to hear from the general surgeon sooner than later . The rest of the week is full of appts and soccer . One day at a time , one minute at a time . I have missed alot of work with all the appointments etc and I’m grateful that they work with me and I’m able to take care of my babies. Life has so many ups and downs . The struggle is real 😭 we appreciate all your continued support. Thank you for walking this journey with us . 💞👭💞

Well today definitely did go as planned .. but lately the days never do 😢 woke up to a negative bank account . When I sa...
04/28/2026

Well today definitely did go as planned .. but lately the days never do 😢 woke up to a negative bank account . When I say things are rough that is an understatement 😭 Maddies orthopedic oncologist appointment got rescheduled for next Wednesday due to the dr being sick . Found out I get to meet with a surgeon and have my gall bladder taken out 😭 Today has been a day but it’s not over .. Ava is currently having a soccer game while Maddie and I sit and talk in the car . Hunter is out playing soccer with a friend on the side lines . Trying to enjoy this moment while the sun is shining ☀️ even though I feel like crying !! Life is hard but these 3 keep me going . Staying positive and praying is all we can do right now . 🙏😭 ❤️ ❤️

This mama is Ending her day finally at the hospital.. well for today anyways . I’m exhausted , hungry and so very sore ....
04/27/2026

This mama is Ending her day finally at the hospital.. well for today anyways . I’m exhausted , hungry and so very sore . Tomorrow is another day here and this time with Madison 😬 please continue to pray and show support. These days are filled with unknowns , PTSD , so much anxiety and so very exhausting. 😢

Waiting to get called back … today is day one of testing for me !!! Friday will be another long day for some more testi...
04/27/2026

Waiting to get called back … today is day one of testing for me !!! Friday will be another long day for some more testing . Tomorrow is Madison’s orthopedic oncologist . It’s a very busy week full of unknowns , appointments, testing and soccer ⚽️
Please continue to pray and send positive vibes

Madison made a card for her student teacher 🩷 her last day is May 1st . Her class is all making cards and or giving smal...
04/27/2026

Madison made a card for her student teacher 🩷 her last day is May 1st . Her class is all making cards and or giving small gifts to say thank you 🩷 so Maddie decided to make a card for her this weekend. Madison loves to draw . Shes doing so well at it . Avah went to the middle school dance on Friday with a friend and she sent me these pics of her and her friend. 🥰 Maddie didn’t want to go bc her friends weren’t going but that’s ok. I’m just happy that Maddie is having some good days lately . She hasn’t had leg pain or stomach pain in the last two days and I’m grateful for that. Tuesday we will be meeting with the orthopedic oncologist to discuss her tumor on her knee. Still waiting on the neurosurgeon to discuss her shunt . Both girls will have their ultrasounds, labs and oncology appointments on May 22nd. Please continue to send positive vibes and prayer our way .
Tomorrow I will be having a Hida Scan to check my gall bladder . The drs think it’s not working right so they want to check it out . Then on Friday I will be having another cardiologist appointment with an echo and stress test . Things are def hard right now but all we can do is take one minute at a time right now . Send all the prayers and positive vibes our way . We could use all the support we can get right now . Please like , follow and share this page . We need all the support we can get . Remember today is a gift , cherish every moment and hugs your loved ones.

When I say things are tough .that is an understatement. I mean struggling on a daily basis with just about everything. B...
04/24/2026

When I say things are tough .that is an understatement. I mean struggling on a daily basis with just about everything. Between all the appointments, tests and specialists things are very stressful 😭 I try to stay positive and pray but some days it’s just so hard. But I continue to pray harder and stay positive even if I feel like it’s not enough . God is good and Madison is proof of that . She was suppose to be home on hospice when she was just 4 years old . But we fought hard and she proved her drs wrong . Now at 15 she is still fighting every single day to live . To show cancer who’s boss to prove that she just wants to be a “normal “ 15 years old old girl. She is very strong and brave and she inspires me every single day!! My kids are the reason I still fight ! But some days are def harder than others . But I still try and stay positive and pray !! Pray harder on the days that feel like I can’t fight anymore . Those days are more and more unfortunately 😢 the struggle In life is real and everyone is fighting their own battles . I do get messages asking wha can I do . I don’t ask for help and won’t . I don’t want negative comments or messages . I have dealt my fair share and I just can’t handle that right now. I have been asked to start a GOFUND ME , I won’t do that either . But I will say that if you feel like helping in some way .. pray for us , help with a bill , gas , food etc . We have PayPal , Cash App and Venmo . But again I’m not asking for anything. I’m just sharing what I have been asked . If you can buy that friend a coffee , give them a hug , send positive vibes , pray for them . Any little gesture could change their whole day. Life If full of ups and downs and everything in between. Everyone is fighting a battle of their own and they may not talk about it or post it on social media . So if you see someone , hold that door open , say hi , pay it forward if you can or just send that friend a text . Whatever it may be just show a little kindness . Please know we appreciate all the support of prayers and positive vibes so much . We couldn’t get through these days without you all. We love you all .Thanks again for being here fighting along side us.

https://venmo.com/u/Tracy-HovingaPagel

https://cash.app/$TracyPagel42

https://www.paypal.me/TeamMaddieStrong

It’s been a very busy week .. two soccer games .. they lost Tuesday but today they won 5-1 !! Im so proud of Avah and he...
04/24/2026

It’s been a very busy week .. two soccer games .. they lost Tuesday but today they won 5-1 !! Im so proud of Avah and her team. They played hard even with the heat !! It was such a good game . Had lots of appointments and tomorrow Hunter will be at the hospital for his . Madison has been having a lot of leg pain , headaches and stomach pain. I wish we could get some answers . Maddie will have her orthopedic oncologist on Tuesday next week . Please continue to send positive vibes and prayers. I will be having some tests done on Monday and Friday next week as well . Lots of appointments and tests coming up for all. Life is definitely hard and testing everything lately . It’s been so hard to just do daily life let alone all these medical things. It’s been very hard . Struggling to live life !! But all we can do is take one day at a time and one minute at a time .. remember today is a gift . Thank you for all your continued support, love and prayers. ❤️

Address

Grand Rapids, MI
49508

Website

https://www.amazon.com/hz/wishlist/ls/82B06UQ9PDK4?ref_=wl_share, https://www.am

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