Team Maddie Strong - Fighting together

01/30/2026

This week again was filled with a snow day and appointments… every week is filled with so much . All this is definitely taking a toll on everyone 😥 but all we can do is take one minute at a time . We have been taking much needed family time by either playing games or watching movies . We are just trying to make memories and spend as much time together as possible . I had another vein procedure yesterday so trying to take it easy as well . Madison impresses me so much with all her hard work in school. She is such an inspiration. All 3 kids are doing so well considering what we go through on a daily basis . They are so strong and brave !! And The love they have for one another is priceless . Don’t get me wrong they definitely have their moments of sibling rivalry 🤣 but it’s short lived . They are my world and they are the reason I keep going . They are hoping for another snow day ❄️🥶 it’s suppose to be very cold 🥶 so Avah flushed an ice cube down the toilet in hopes it will help lol 😂🤞 We will see what Michigan has in store for us . Be safe everyone and thank you for all the continued prayers love and support . 💞👭💞

01/28/2026

Tough days, tough life... but we're tougher. Madison's been through a lot lately, and it's hard to see her in pain. But she's a fighter, and I'm honored to be her Mom. From stomach issues which may be caused from the spots on her liver or shunt complications and now eczema flare-ups, she's facing it all head-on. And you know what? We're going to keep on fighting, making memories, and enjoying time together as a family. Even on snowy days like today. Another snow day and all we want to do is stay indoors with hot chocolate and movies. We're grateful for your love and support - please keep praying, liking, following, and sharing Madison's page. We need your help to spread awareness and support her journey. 🥰

01/24/2026

01/24/2026

Snow days over the years ❄️

01/24/2026

Going through pictures .. I have lost so many due to losing Madison’s page a couple years ago . Been trying to rebuild her page every since . But just can’t seem to get the following and support we had before . We could still use all the prayers , love and support right now . We are going through so much, a lot of silent battles right now . The kids are feeling so many things right now and they are all dealing with a different way. Please continue to pray and comment positive vibes. The kids read them and I know it definitely helps knowing we have all you on here . Please continue to share , like and follow this page and her page too. 🎗️ Thank you all so much. Hope you all are staying warm and safe out there . Here in Michigan it’s so cold … -18 degrees right now . We haven’t seen temps like these in years. We had to have our furnace looked at bc it’s not working right and waiting on a part .

01/22/2026

It’s been a week … from two snow days , Hunter losing another tooth , Madison getting her pink strawberry scented Highland cow to lots and lots of cuddles from our doodles ❤️🥰 We have spent a lot of time together , watching movies , playing games and just hanging out together . We have needed this time together after all the tests and unknowns . Avah has been taking things really hard with Madison’s tests and hers too. This life full of hospitals , tests and drs appointments are so hard on everyone . This life doesn’t get easy but all we can do is be here for each together and hope it’s enough. Life is hard but they are strong and I know they can get through anything. I hope they know how much they are loved ❤️ they are my whole world . They mean everything to me , they are the reason I keep going and the reason I keep fighting each and everyday. I want to say thank you for all your continued love , prayers and support . Please keep them coming . 💞👭💞

01/20/2026

Talked with her oncologist and he said everything looks ok . No cancer he said !! She does have 10 new spots on her liver which one is 3.1cm. These are new from 3 months ago . Im not sure this is all , i just feel like we are missing something . My gut feels like this is not enough info . Wejust watch and wait . The one is pretty big and al of a sudden 10 new spots appear in just a few months. Maybe im looking to much into it but this is my daughter and she has Already fought cancer twice . She has a rare genetic sydrome that causes cancer . I know her team is good but i feel there is more . She is having headaches and abdominal pain still and no answers to that either . He said they are benign liver growths that can happen bc of hormones 🤷🏻‍♀️ He will order another mri in 3 months . This is what he said they were .. Hyperplasia which are generally harmless, found incidentally, and managed with monitoring, though sometimes they cause mild pain or a mass, and rarely, malignancy history (like previous cancer treatment) can be a factor. Diagnosis involves imaging (MRI/Ultrasound), and while often requiring no treatment, large or symptomatic lesions might need embolization or surgery, emphasizing conservative management for asymptomatic cases in teens. He said he will watch it every 3 months and if it does get bigger they may have to do an ablation. I’m still not 100% relieved with this news bc she is having pain in her stomach and along her brain where her shunt is . But I’m glad she’s being watched . It’s just so much for everyone !! The tests , the waiting ,. All of it . After cancer it never stops . We have been at this for 15 years and it never ends . It will never end for Madison . She will have this for the rest of her life . Avah will be doing tests and being watched as well. It just all is so unfair but I’m glad we have a good team to help guide us. I will never stop fighting !!! Thank you for all the prayers love and support . We appreciate it more than you know . I still feel like the weight is on my shoulders bc I feel we are missing something but I will have to put my trust into her team. 🙏 💞👭💞

01/19/2026

Home trying to stay warm .. Michigan is super cold and getting lots of snow . Winter storm happening ❄️🥶we are watching a movie and enjoying this time together ❤️ We have no results and this waiting is driving me insane 😭 please keep the positive vibes and prayers coming . Please like , follow and share ! We need all the support right now 🙏

01/17/2026

Home … she did amazing!! MRIs took 2.5 hours and she did great . It took two pokes to get the IV in but she was asleep thank goodness . She is tired and sore but she’s such a brave girl. Now we wait 🙏
Please keep the prayers coming … Like , share and follow her page !!! We need all the support we can get !!

01/16/2026

Just took her back 🙏 it never gets easy watching her go to sleep 😭 she should be done around an hour and half . Please keep those prayers coming !!