Ollie's Dash Past Langerhans Cell Histiocytosis

Ollie's Dash Past Langerhans Cell Histiocytosis Oliver fights against LCH!! In October 2025 - a lump was noticed on the side of his neck.

After several trips to the local hospital - and a 2nd opinion, LCH is the diagnosis. https://www.cancer.gov/types/langerhans/patient/langerhans-treatment-pdq

Hi friends, As you can see his tubie now hangs out the top of his jammies! Well! His port access needle was pushing a...
04/17/2026

Hi friends,

As you can see his tubie now hangs out the top of his jammies! Well! His port access needle was pushing against the wall of the artery!

The good news, we caught it, didnt force it, and came in, because if not it could have ended badly!



Overall we're on track to do our last treatment at home tomorrow, his new port access is now in a different position to try and prevent this for the future!

Chemo went great this week. Monday - counts were good, added a steroid. Oliver became pretty exhausted by Tuesday, b...
04/17/2026

Chemo went great this week.

Monday - counts were good, added a steroid. Oliver became pretty exhausted by Tuesday, but lots of cuddles and a nap, by Wednesday, we were released and told to take his chemo home!

So, last night we went to give his 4th dose, ans well, he has a blood clot in his tube of his port (better then in his chest)

After talking with the on call provider, she informed us to clamp it higher so it doesnt return to his body, and first thing in the morning to head back to G.R for medication swap!

So once we get Kaiya to school, we will be headed accross state

One of Gramma Js friends has cows! Oliver is absolutely obsessed, and he got to be the farm hand today working with the ...
04/10/2026

One of Gramma Js friends has cows! Oliver is absolutely obsessed, and he got to be the farm hand today working with the cows!!

Thanks Stacy and Tom!

"Sue's mad because I have cancer" Big shout out to Nikki with momma js apperal - my boy has the absolute best sweatsh...
03/21/2026

"Sue's mad because I have cancer"
Big shout out to Nikki with momma js apperal - my boy has the absolute best sweatshirt

Thankful for all the prayers thos week. Oliver is feeling better, we are home and mom has a severe migraine seeing auras...
03/20/2026

Thankful for all the prayers thos week.

Oliver is feeling better, we are home and mom has a severe migraine seeing auras!

So lets hope rest happens. We have a house in disarray, and work to get completed!

03/18/2026

Oliver is starting to feel better and is singing "left it in the river" and he wanted tk show his two favorite speech therapists how he is doing today!

Mrs Sam and Ms Erica please ignore my voice.

Well friends, Oliver is a fighter as we all know, however he has another obstacle to overcome. Although he is starting...
03/18/2026

Well friends, Oliver is a fighter as we all know, however he has another obstacle to overcome. Although he is starting to feel better (under the blanket resting on the way to treatment) he has been diagnosed with "Cyterabine Syndrome" aka his body is having a slight reaction to his chemo.

They have added a small dose of steroids to his week of chemo, and we are no longer coming home to do treatment at home the remainder of the week.

Thanks for all the prayers, please keep them coming

Unfortunately, we have hit fever protocol ans have been admitted into the ER for the afternoon. Fever : 102.9 Multipl...
03/17/2026

Unfortunately, we have hit fever protocol ans have been admitted into the ER for the afternoon.

Fever : 102.9

Multiple pokes and lots of tears from our boy! Please keep hin in your thoughts and prayers

Good morning. Happy St. Patrick's dayToday (day 2 of treatment 5) is a hard day, Ollie woke up saying he had a headache...
03/17/2026

Good morning.
Happy St. Patrick's day

Today (day 2 of treatment 5) is a hard day, Ollie woke up saying he had a headache 😞 this is something we are watching as this seems to be a new side effect that he never really had.

Very nauseated today and not wanting to eat anything and seems quite pale. Even the triage nurse mentioned he isnt his normal self.

Has a slightly elevated temperature but not to fever level yet so were going to be watching him today, and ordering a thermometer as I left ours at home.

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Grand Rapids, MI
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