National Organization of Vascular Anomalies (NOVA)

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Hemangioma andVascular Malformations

In 1994 my second child was born with a large hemangioma located in her diaper area. The hemangioma ulcerated, bleed and caused significant pain. All we were told by local physicians was to, “leave it alone it would go away.” After months of searching for a physician that could treat my daughter we finally found a physician with a great deal of experience in the diagnosis and treatment of infantile hemangioma. He referred us to a physician in our state that he had worked with and in ONE out patient procedure our daughters pain and suffering ended. Today my daughter is a healthy young woman who has a passion for working with children. As a result of the lengthy search for a treatment for my daughter we networked with several other families and started a support group called Hemangioma Newsline. We changed our name to be more inclusive of all types of vascular anomalies and are currently under federal ADBA (Also Doing Business As) known at the National Organization of Vascular Anomalies. NOVA is one of the few organizations that provides information and assistance to individuals and families affected by hemangioma and vascular malformations. For more information on how NOVA may assist you email us a [email protected]. NOVA is a 501c3 organization, all donations are tax deductible. www.novanews.org