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Natalie "sharky" Needs a Kidney

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Greenville, SC
Natalie "sharky" Needs a Kidney

Follow along for my transplant journey! Currently awaiting a Kindey + Pancreas 💚🩸
https://www.donatelifesc.org

03/03/2025

Happy 💚
Be a hero, save a life! There are estimated to be around 90,000 people awaiting a kidney transplant. God blessed us with two kidneys and has allowed us to be able to share one with another. Organ donation is such a selfless act. There are scholarships you can get for being a donor! There’s so many outreach programs and communities of people to reach out to if you have any questions. Call the closest transplant Center to you and see if you could be someone’s match. 💚💚💚

02/28/2025

It’s getting closer🙏🏻
Keep an eye on this page and my personal page. I will post when I have a confirmed match and I get the call for surgery. Keep on praying for me, the surgeons, and the future donor family.💚

02/03/2025

Hey everyone🫶🏻

Long time no post! Sorry about that. Many of you are on my personal page so you might be up to speed but in case you’re not, I’ll give you the updates I have.

I was officially approved for a pancreas along with a kidney (praise Jesus🙌🏻). Now this does mean I will be receiving a cadaver pancreas. So while reading this, please pray for the donor and the family.🙏🏻

They want to reduce the strain on the new kidney and this could also mean I’ll no longer be a type 1 diabetic!! All of the things that I’ve grown to know will no longer be present and it’s a sigh of relief but also a bit terrifying. Everything I’ve known will change, for the better! I believe our illnesses, trauma, pain, etc. slowly starts to become who you are. I had to grow up making sure all my friends, teachers, coworkers, knew if something happened that I was a T1D and later in life, in renal failure. But I also believe that I am healed, in Jesus name! I do not believe my “diseases” are solely who I am though but it plays a part. I am the daughter of the one true King, I am a daughter to the most amazing, loving parents, I’m a girlfriend to a hard working, caring and loving man, im an “adopted” daughter to my other family, I’m a dog mom, I’m an aunt, I’m a best friend, I still am a sister even though she’s no longer earth side, and so so much more. I am so many things beyond a t1d and in kidney failure. Now this is not a pity post, but if you know me then you know these things. I am so proud of my hardships, for they have made me who I am today and made me appreciate the things I already was and became! Soon I will be, Natalie- multi organ transplant warrior💚

All that to say, my next transplant meeting is February the 18th to over the surgical plan. My wait time has been reduced and I’m just waiting for a phone call now. I won’t lie, fear has caught up to me but it will not win.🙏🏻🙌🏻❤️‍🩹

11/05/2024

Due to an ongoing infection I landed myself in the hospital about 2 weeks ago and then again Sunday for the same thing. My internal neph tubes were placed in July and have had 0 issues with them until this infection. Now the infection has caused what they call stranding around the tissue from the infection. They started me on IV antibiotics and an emergency stent replacement was scheduled! Now I’m patiently waiting my turn. Hopefully I can get another 3-4 months out of the next ones, if not longer💚 My kidney function unfortunately decreased a bit and my creatinine is just a bit above my baseline (it’s usually about 3.3ish). Praying now that it will go back to base and this will not result in further damage.🙏🏻💚

09/12/2024

Hey everyone💚
Soooo much has happened since becoming tube free! It’s officially been 2 months as of 9/10. I have no more pain, no infections, the holes in my back have healed up nicely and I have so much more freedom! My bladder is holding up well. Also, not having to sit under a fluoroscope with all that radiation every 4 weeks is a HUGE plus. Im on Greenville’s transplant list still but I’m patiently waiting to hear back from Duke about getting added to their transplant list. My endocrinologist also discussed seeing if I can be added to Emory’s list. My kidneys have declined slightly so I’m being checked every 6 weeks instead of every 3 months. Nonetheless, I feel great but I truly believe that’s because of all the prayers! Jesus really takes care of his children and I’m blessed to see his blessings and love every single day. I’m getting more labs done next week so we can continue to try and match me with a donor.
That’s all for now💚

08/01/2024

Hey y’all, long time no update!
So far I’m doing GREAT without my nephrostomy tubes. It’s been such an adjustment but I’m so grateful for God’s working hand in all of this, he truly worked a miracle! The stents are doing great and so far my ureters seem to be holding up to them. I’ve been in contact with Duke University hospital and I’ll be getting added to their transplant list as well. Duke’s is a national registry so therefore my organ can come from just about anywhere and not just locally!! This would be a huge answer to prayer because the wait time would be greatly reduced. We will be trying to see if they will approve me for kidney + pancreas as well. So keep on praying and I promise to update when I have more answers💚

- Natalie

06/29/2024

In case anyone missed it on my personal page, I am tube free (kinda)🥹. I went from bilateral nephrostomy tubes to external ports with ureteral stents. I included some images to better explain before and after! I ended up back in the hospital a few hours after the procedure due to sepsis. Unfortunately the infection I had been trying to get addressed was never properly addressed…They “forgot” to send my labs off and call me in antibiotics. Anyhow, after a few days in the hospital I’m now experiencing life without tubes and it’s the most freeing feeling! I keep forgetting I don’t have them but all in all this is a huge step in the right direction and I pray everything cooperates until I get a kidney💚

06/20/2024

I’ve been praying and worshipping all morning in prep for this tube exchange. Today I could walk out of here with no bags and could live a somewhat “normal” life again! I know God has already orchestrated this procedure from start to finish and I’m praising his name no matter the outcome.🙏🏼

I’ll update everyone as soon as I can. No matter what happens, today is a great day and God is good!💚💚

06/18/2024

Hey my lovely support squad💚
I wish I had more of an update but it is what it is. This is just a big waiting game! So far no matches, I’ve had so many of you try to get tested but unfortunately nothing yet! But I’m still trusting in the Lord that my kidney will come when the time is right!!
They are going to see if I’m a candidate for getting my nephrostomy tubes internalized, which would mean no more external tubes or bags🙌🏻. Im praying that it all works out because that would be a HUGE answer to prayer! Just keep me in your thoughts and prayers during this waiting season. I appreciate all of you so much!!

Natalie🫶🏻

Address

Greenville, SC

Telephone

+18644551730

Website

facebook.com

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