Cerebral Palsy Research Network - CPRN

10/15/2025

💡 Thinking about living more independently?

If you or someone you know is living with a disability and wants to explore independent living, this FREE virtual session from Michigan Developmental Disabilities Institute's Community Transition Trainers (CTT) could be a great resource!

Hear from people with lived experiences, ask questions, and learn about your options for living in the community. 🌟

📅 Thursday, October 30
⏰ 1:00 – 2:00 PM
💻 Online via Zoom
🔗 Register here: https://tinyurl.com/3w5a6kup

💡 Looking for more tools to support adults with cerebral palsy? Check out the CPRN Adult Toolkit for tips on independent living, health, and community resources: https://cprn.org/the-adult-cerebral-palsy-tool-kit/

Are you or someone you know living with disabilities and thinking about living alone or becoming more independent?

Join MI-DDI’s Community Transition Trainers (CTT) for a FREE virtual session designed specifically for people with disabilities who want to explore independent living. Whether you're planning to move out, looking for more control in your current living situation, or just want to learn about your options, this session is for you!

Hear from others with lived experiences, ask questions, and get helpful insights on living in the community.

Thursday, October 30th
1:00 – 2:00 PM
Online via Zoom

Register here: https://tinyurl.com/3w5a6kup

[Alt Text] Flyer for the Community Transition Trainers online workshop. The top section has the title 'Community Transition Trainers' in large green text with a simple green house icon on a black background. Below is a photo of a man with a disability standing in a kitchen, holding a mug and looking out the window. Text at the bottom reads: 'Online workshop on living independently with a disability. October 30th, 1–2 PM.' The logo for MI-DDI (Michigan Developmental Disabilities Institute) appears in the lower right corner.

10/08/2025

💡 We want to hear from YOU!

What area of CP research do you feel deserves more attention now, or would you like to hear more about?

This is your chance to and share what matters most to you and the CP community. Your voice can help shape the future of research and care. 💚

Drop your thoughts in the comments ⬇️

10/06/2025

💚 It’s World Cerebral Palsy Day!

Show your support and spread awareness all year long — shop CPRN merch and help fund life-changing cerebral palsy research or make your donation to support our work today!

🛍️ Shop now: https://cprn.myspreadshop.com/all

To make your donation in honor of World CP Day https://cprn.org/donate/

10/06/2025

💚🌎 Continuing our World Cerebral Palsy Day celebration! 🌎💚

In this video, Fayza Jaleel, a member of our Community Action Committee who lives with cerebral palsy, shares what she would tell others about people with CP.

Her message is a powerful reminder that understanding and inclusion start with listening and learning. 💫

Watch now and the movement for greater awareness and acceptance.

10/06/2025

🌟 Changemaker Awards Winners Announced! 🌟

In honor of World CP Day, we’re thrilled to share that, together with Cerebral Palsy Alliance Research Foundation (CPARF), we are funding two new, community-selected cerebral palsy studies!

Santina Zanelli, MD (UVA) will test a computer-vision tool to improve newborn screening for CP.

Ed Hurvitz, MD & Mark Peterson, PhD (University of Michigan) will launch a large-scale study tracking the health of adults with CP across the U.S.

These $25,000 Accelerator Awards will advance research that fills critical gaps in CP care and knowledge.

👏 Congratulations to the winners and their teams!

Read more about the studies here 👉

Today the Cerebral Palsy Research Network announced two new CP research studies in honor of World CP Day.

10/06/2025

💚 Continuing our World Cerebral Palsy Day celebration, we hear from Dr. Wisniewski, who oversees our Data Coordinating Center at the University of Pittsburgh, where all of our network data/information is managed. His role includes providing scientific leadership, oversight of data management, coordination of statistical analyses, and ensuring the ethical conduct and professional administration of research projects.

In this video, he shares how the CP Research Network's focus on community-driven research drives powerful, groundbreaking, and meaningful research for the CP community.

🎥 Watch and learn below.

10/06/2025

💚🌎 World Cerebral Palsy Day 🌎💚

To celebrate , we asked Fayza Jaleel—a member of our Community Action Committee who lives with cerebral palsy—one simple but powerful personal question:

✨ “What is hope ?” ✨

Watch the video to hear Fayza’s response and join us in reflecting and sharing in the comments what hope means to you for World CP Day. 💫 We welcome the diverse experiences and concerns of our community members with lived experience, while also promoting the important message that people with CP should be embraced, loved and valued as they are with the freedom to feel and choose what hope looks like fo them.

10/06/2025

Today is World Cerebral Palsy Day 💚 We are here in the US creating a community for people with CP & their families to improve the care and treatment experiences they have. We aim to achieve our goals by continually striving for the best possible lifelong health and wellness of individuals with cerebral palsy and their families through high-quality research, education, and community programming. Our MyCP forum is a wonderful place to start if you're new to the CP Research Network community.

Through the forum, you can:

⭐️ Connect with clinician researchers
⭐️ Share your health experiences with other community members
⭐️ Begin seeding ideas for new CP research priorities

And it is completely FREE! Get started here ➡️ https://cprn.org/mycp/forum/

ID: A large group of smiling people gathered together for a photo, celebrating World Cerebral Palsy Day with the message “ .”

10/02/2025

🌟 Changemaker Awards Webinar Replay 🌟

Starter funds for research are hard to come by, but the Changemaker Awards are designed to change that! This program, sponsored by our strategic partner Cerebral Palsy Alliance Research Foundation (CPARF), empowers the CP community to play a direct role in selecting and funding new research projects.

During this special MyCP webinar, you’ll hear from CP Research Network investigators as they present three exciting new study ideas—developed by teams of clinician researchers and community co-investigators—that align with our patient-centered research agenda. Each presentation is about 12 minutes, followed by community voting to determine which project will receive the $25,000 Changemaker Award.

💡 The Changemaker Fund is a community driven monthly donation program that supports CP research and allows participants to vote on studies they wish to see funded.

📅 The winning project will be announced on World CP Day – October 6, 2025!

For More Information: https://cprn.org/community-callout-cast-your-vote-for-the-25000-changemaker-award/

During this joint webinar with Cerebral Palsy Alliance Research Foundation (CPARF) you will hear presentations from the top three scientific ideas recently d...

09/29/2025

🌟 Reminder! Tonight at 8 PM ET: Join the MyCP webinar with the Cerebral Palsy Research Network! 🌟

Hear from three groundbreaking research teams and help shape the future of CP care. 💡 Your voice matters—community members are part of every team.

Register for the webinar to participate live or to receive a link to the recording when it is posted on the CP Research Network’s YouTube channel: https://cprn.org/portfolio-item/changemakers-research-ideas/

🌟 Big News for the CP Community! 🌟

📅 Next Monday, September 29 at 8 pm ET, the Cerebral Palsy Research Network will host a special MyCP webinar where YOU get to help shape the future of CP research.

Thanks to our strategic partner Cerebral Palsy Alliance Research Foundation (CPARF), one of three groundbreaking projects will be awarded a $25,000 Changemaker Award—and the CP community of Changemaker donors will help decide the winner! 🙌

Here’s what’s on the table:
🌟 Aging with CP – exploring lifelong care and treatment updates
🌟Growth & Nutrition – uncovering the link between health, participation, and quality of life
🌟 Early Prediction Technology – using infant movement analysis to predict CP risk

💡 Each research team includes both clinicians and community members, ensuring that YOUR voice is part of the process.

👥 Anyone can attend the webinar, but voting is limited to Changemakers who signed up to donate to the Changemaker Award Fund. The winning project will be announced on World CP Day (Oct. 6th)! 🌍💚

👉 Here is how to get involved:

Make a recurring monthly donation to CPARF to become a Changemaker (https://cparf.org/changemakers/)

Register for the webinar to participate live or to receive a link to the recording when it is posted on the CP Research Network’s YouTube channel: https://cprn.org/portfolio-item/changemakers-research-ideas/

Cast your vote (we will send a voting link) by October 5th and be a part of making the decision!

09/26/2025

🌟 Big News for the CP Community! 🌟

📅 Next Monday, September 29 at 8 pm ET, the Cerebral Palsy Research Network will host a special MyCP webinar where YOU get to help shape the future of CP research.

Thanks to our strategic partner Cerebral Palsy Alliance Research Foundation (CPARF), one of three groundbreaking projects will be awarded a $25,000 Changemaker Award—and the CP community of Changemaker donors will help decide the winner! 🙌

Here’s what’s on the table:
🌟 Aging with CP – exploring lifelong care and treatment updates
🌟Growth & Nutrition – uncovering the link between health, participation, and quality of life
🌟 Early Prediction Technology – using infant movement analysis to predict CP risk

💡 Each research team includes both clinicians and community members, ensuring that YOUR voice is part of the process.

👥 Anyone can attend the webinar, but voting is limited to Changemakers who signed up to donate to the Changemaker Award Fund. The winning project will be announced on World CP Day (Oct. 6th)! 🌍💚

👉 Here is how to get involved:

Make a recurring monthly donation to CPARF to become a Changemaker (https://cparf.org/changemakers/)

Register for the webinar to participate live or to receive a link to the recording when it is posted on the CP Research Network’s YouTube channel: https://cprn.org/portfolio-item/changemakers-research-ideas/

Cast your vote (we will send a voting link) by October 5th and be a part of making the decision!

09/25/2025

🌟 September is Dystonia Awareness Month 💚

Last year, the Cerebral Palsy Research Network released the Dystonia in Cerebral Palsy Toolkit — a free resource that continues to support individuals with CP, families, caregivers, and healthcare providers.

The toolkit includes:
✅ Clear explanations of dystonia in CP
✅ Current treatment options
✅ Real-life experiences from the CP community

If you haven’t explored it yet, now’s the perfect time to check it out ➡️ https://cprn.org/our-toolkits/

To purchase a printed version: https://mixam.com/print-on-demand/67a679fab1eae2040e97d16f

Explore our YouTube Series on Dystonia: https://www.youtube.com/playlist?list=PLG9aBmtc0sPJ87y-qaDsm04SvJcZgRAVO

ID: Two woman one with gray hair wearing glasses and another with dark brown hair. They have a laptop in front of them and there is a graphic showing a picture of the Dytonia in CP Toolkit. There is also a CPRN logo on the bottom left of the graphic.