Landon Hall Tatum: CDH + CHD Journey, Greenville, SC (2025)

CDH = Congenital Diaphragmatic Hernia
CHD = Congenital Heart Defect (Tetraology of Fallot)

Landon spent 323 days in the hospital battling these two defects. We spent the majority of the time in St. Petersburg, FL at Johns Hopkins All Children’s with Dr. Kays and his CDH team. We also spent six weeks at Cincinnati Children’s Hospital while Landon received his full heart repair. We’ve dedicated thi

s page to sharing Landon’s progress. We are so thankful for the love and support we continue to receive. We cannot wait to keep sharing Landon with all of you!
-Zach and Taylor Tatum

01/22/2025

Six years ago today (ten days before his first birthday!) we brought Landon home to Greenville, SC from St. Petersburg, Florida.

Oh, what a good day that was! 💙

01/06/2025

Landon update! ♥️

This morning Landon had his yearly-ish exploratory bronch with ENT and pulmonology.

He did very well and everything looked good! We were told that he has a “healthy airway” and we couldn’t be more thankful for that. We will continue to follow up as normal with ENT and pulmonology.

Last week, Landon saw his cardiologist and had an echo done. His echo is still consistent with his previous echos. We are waiting for the right time to have his pulmonary valve procedure at MUSC. Until his team feels it’s the right time, we will continue what we are doing!

We are unbelievably blessed and overjoyed by the progress that Landon has made in all aspects of life. He has grown so much in the last few months (thank you, kindergarten and his therapy team!🤗) and is growing up right before our eyes.

Please pray for Landon and many more good days for him!

“And let the King of my heart, Be the wind inside my sails. The anchor in the wave, Oh oh, He is my song. Let the King of my heart be the fire inside my veins. The echo of my days. Oh oh, He is my song.”

07/24/2024

It’s been awhile since we’ve given an update on Landon!

He’s still getting all of his therapies: speech, PT and OT. Over the last few months he’s started walking independently and has been keeping us all on our toes. We’ve seen a lot of growth in him recently and feel blessed by his team that is always pushing him to be his best.

During speech therapy, we’ve slowly introduced small bites of purées but he still remains fully gtube fed. Landon had a swallow study this morning for us to get an idea of where we are with oral feeding and how everything looks when he swallows. The study went good! We did apple sauce and even tried a little bit of liquid and he did great. His swallowing looks great! We got the go ahead to continue on and introduce small amounts of liquid.

As far as his heart, Landon still doesn’t have a pulmonary valve and recently it was thought that a heart surgery may be necessary to place one much earlier than originally thought. Good news is, his last echo was “normal” and looked good enough to push off the ideas of surgery for quite sometime. With increase weight and growing he should be able to have a valve placed at a later date through a catheterization!

He finished preschool this past May and had a phenomenal year and a half with the best team and staff imaginable. In a few weeks he’ll start KINDERGARTEN! We are over the moon about the chance for him to be at “big school” and cannot wait to see all that he learns and how he’ll progress during his time there.

Landon has been doing so well and growing and in ways we never dreamed of. We could only pray and hope for. We are so thankful for him and everyone who continues to love on and pour into our family to help Landon get to where he is today!

Being his parents is a joy and we are so thankful the Lord saw us fit to love on and take care of him everyday!

10/03/2023

Landon’s cath procedure yesterday went great!

We have plans to meet with his cardiologist soon to go over all the findings and options moving forward. While Landon didn’t need any immediate intervention yesterday it seems there is a need for it sooner than later. What that will look like will be discussed by MUSC this week and relayed back to our team here.

Prayers that any intervention will be minimal and that it will be able to be prolonged as long as possible!

10/01/2023

Taking a trip to Charleston for a couple days…

Landon has a heart cath planned for early tomorrow morning at MUSC.

His cardiologist felt it has been long enough since his last and that we need an updated look at what may or may not be going on inside his heart. Landon still functions without a pulmonary valve but it could be time to address it.

We are praying for a quick procedure and a trip back home to wait and hear the results. Hopefully no intervention will be needed at all!

Pray for a quick and safe trip for all!💙

Address

Greenville, SC

Website

https://www.gofundme.com/landonhalltatum

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