https://www.facebook.com/120566924477314/

Baby Liam’s Heart Journey, Gretna, LA (2025)

09/01/2025

Day 607 of Baby Liam’s heart journey outside of mommy!

Liam will be 20 months old tomorrow!

We had an eventful weekend but also saw his Nola cardiologist last week. He was very calm for his echo and they are still showing some increased velocity around the baffle. Still not enough to do anything about at this time but we will see his Houston team in November and check again!

Liam is moving up to his new class tomorrow. He will be with kids around 3-4 months older than him because he was so advanced in his current class. This is super exciting for us because it means Liam is on track with his development physically and mentally and compared to other kids at his specific school - slightly ahead of the game! It also makes my mama heart sad because he’s growing so fast!
He moved to tables and chairs his height- no more high chairs 😞 (at least at school)

He has 4 teeth coming in now and only 4 more molars to come in after that!!!

He’s an eating machine eating almost anything he sees!

He loves trains, animals, trucks and being in the water! He loves his fur sister Baileys (and Charlie and Molly too)! He’s like a parrot trying to repeat everything he hears and we are working on stringing words together!

We saw dinosaurs, went to the train museum and had lots of swim time this weekend!

Thank you all for your continued prayers!

07/09/2025

Day 553 of Baby Liam’s Life Journey!

Liam did number 1 on the potty for the first time this morning, no I didn’t get a picture but we FaceTimed Nanny Tracy to celebrate!

18 months and 1 week old!

Here are a few pics from recently

06/11/2025

Day 524 of Baby Liam’s heart journey outside of mommy’s belly!

We traveled to Houston last week and met with Liam’s cardiologist!
GREAT NEWS - she confirmed his pulmonary arteries ARE in fact growing! Such a big win and I’m so happy about this!

We are now watching his baffle/patch that closed his VSD/hole between the two bottoms heart chambers. We know that the baffle itself doesn’t grow. It was made out of Liam’s pericardium (the heart sac) to be a little bigger so that it does have room to stretch as Liam grows and our hope is always that he never needs another intervention, however, it’s (unfortunately) common to have to go in and change out his baffle at some point or another. When this is the case, it’s (hopefully) usually when they are a teenager or young adult, but sometimes it’s sooner.

Obviously, this is not affecting Liam at this point in time (if you’ve seen him lately you know he’s none stop)!
The plan is to wait and watch and follow up with his Houston team in November for a sedated echocardiogram so that we can get a clear and accurate picture of what is actually going on.

We also met with his developmental team and Liam is ahead of the game when it comes to meeting his milestones which is super exciting and a huge relief!

We had another stomach virus which was not pretty!

We go see his ENT tomorrow and have a hearing test to check on the placement of his tubes!
*Update* Wed 6/11/25 - Liam has a double ear infection again and both tubes were clogged. They unclogged them via suction in office and he will be getting drops AND oral antibiotics again. Bummer 😞

Liam is running, sharing, loving life!
He loves bubbles and Baileys! He’s saying more and more words and is learning new signs every time we practice!
He shakes his head yes and no in the correct use. He loves helping and is super independent!

Oh- and he had his second hair cut 😭

Thank you all for your continued prayers!

06/03/2025

516 Days outside of Mommy’s belly

17 months old!

We go to Houston this week to check in with Liam’s team! Please keep us in your prayers and here are 17 pictures for 17 months!

04/29/2025

Day 481 outside of mommy

Today we were told Liam has an upper respiratory infection.

My mama heart is broken because he’s been battling a runny nose since December, had a double ear infection over Mardi Gras and another one and strep over Easter. Last week he got tubes in and his adenoids removed and had a little reaction to being intubated and had to get a breathing treatment and oxygen to help. After that he struggled coming out of the anesthesia and still seemed to be in pain so I opted to give him a small dose of morphine after Tylenol and Motrin had both been given and didn’t seem to help. He finally came to and we headed home. They told me having his adenoids removed should help with his snotty nose and it’s only made it worse.

He’s also been running fever on and off since April 10th, he’s been to the pediatrician 4 times, the ent, the cardiologist, the ER and his surgery…
Now this
Pray for us
Pray for a quick recovery and that this is it for illnesses for this sweet boy
Pray that I don’t have a sympathy illness
Pray that our dog Baileys overcomes her double ear infection and allergies 🫣
Pray that I am in fact Cinderella and that all this house work will return a Prince Charming
Pray that another holiday doesn’t bring another illness

Oh, and we visited global wildlife 🥰

04/13/2025

Saturday, April 12th 2025
465 days outside of mommy’s tummy

Yesterday Liam had quite a few doctor’s appointments…

1st we saw his ENT where she confirmed he does in fact have another double ear infection and said both eardrums are bulging 😞
She gave us a different antibiotic and has recommended tubes and having his adenoids removed. I’m consulting his Texas cardiology and anesthesiology teams to understand risks and decide if we will have them done here or in Texas at TCH.

2nd he had an EKG where he helped put his stickers that hold the monitors on and take them off the like a big boy!

3rd he had an echocardiogram where he laid pretty still and cooperatively for 40+ minutes

4th we met with his cardiologist where she told us that she thinks his pulmonary arteries are actually growing that everything looks wonderful with his heart! She went on to say that she doesn’t think Liam will need an intervention any time soon! This makes my mama heart so happy but I think I’ll truly believe it when I hear his TCH team confirm it in June.

Liam is full blown walking and starting to run! He stomps his feet, claps his hands, gives hugs, kisses and high fives, is learned fist bumps and to blow kisses. He says banana, bubbles, baileys, signs more, no and all done, he loves reading books, swinging and sliding and anything outside! He also loves music and mommy’s singing 🙂

Thank you all for your prayers and we continue to ask for them because obviously they are working!

04/02/2025

Wednesday, April 2nd, 2025

Day 455 outside of Mommy’s tummy

15 Months old

Liam is the sweetest little walking boy that I could have ever imagined having!
He gives hugs, kisses and high fives sparingly but will tell you no and mean it.
Unless you are Baileys, his dog, she gets all the hugs she can possibly handle and more! He loves that dog so much!

He’s a full blown walker now and we hope that it’s promoting excessive cardiac growth in all of the right places!

We met with OT and PT on Monday and he’s meeting his milestones with no concerns at this time.

He’s also starting to say a few words, Hi, ba-e (for baileys), nana (for banana), Gigi (for his great granny); he signs more and all done in the right context, points to what he wants, prefers straws over sippy cups, fed himself yogurt and spaghetti last night using a spoon (not at the same time lol) and loves blue berries!

At daycare he walks in by himself and waves bye bye to mommy with no tears; they lay his nap mat on the ground and he walks over and lays down for a nap with no pacifier and doesn’t need to be rocked or patted (this is not the case at home…I usually rock him to sleep and might cry if he didn’t want to be rocked to sleep).

He loved his first Mardi Gras and l loved watching him enjoy every moment of it. Being his mom is so much better than I could have ever dreamed…and trust me, I dreamed of being a mom for many many years.

We see his cardiologist in New Orleans next week so please keep him in your thoughts and prayers!

Thank you everyone for your prayers and support!

02/03/2025

Day 396

13 months old

1 YEAR HEARTIVERSARY!!!!

Can you believe it’s been one whole year already since Liam’s open heart surgery?!?
I sure can’t!

Liam had his first official physical therapy appointment on Friday and mommy learned all the tricks to help him start walking! He’s taking more and more steps together each day and is so brave and strong!

He says Hi, waves Bye Bye, gives high five, imitates an Indian, shows you his tongue and plays patty cake! He gives the sweetest hugs too!
We are working on our “hey mister throw me something” too!

Here are a few pictures to commemorate the day…Nanny Tracy and I tried but this boy just does not sit still! lol

Please continue to pray for Liam and the growth of his pulmonary arteries!

01/21/2025

Day 383

BABY LIAMS FIRST STEPS!

01/09/2025

Wednesday, January 8th 2025

Day 371 of Baby Liam’s Heart Journey outside of Mommy!

Liam had a checkup today with his cardiologist at TCH! He is THRIVING but his pulmonary arteries aren’t so much. His pulmonary arteries aren’t growing at the rate that they should be.
You may remember from last June we were watching because the left pa wasn’t growing as fast as the right pa but now they have both slowed with their growth.

There’s nothing to do at this time but wait and watch.

We HOPE AND PRAY that they will start to grow soon- this can be stimulated once Liam starts walking for various reasons. There’s a 75-80% chance that they will start to grow and will “catch up” but we will continue to see his cardiologists every 3 months to monitor this closely as he is considered to be sitting in that 20-25 percentile 😞

In other news he’s doing great. Starting to say some words in the correct context. Had his first birthday last week. Had his first haircut today 🥹 (mom cried the whole time) AND AS A SPECIAL SURPRISE, we got to see Dr. Orr (Liam’s lead surgeon) again today! We were so excited and thankful that she took time to come say hi to us! She got off the elevator and I literally ran and hugged her! Thank you Ashley for always making things happen for us!

Also, thank you to Courtney for making us the cutest duck cookies (to match the TCH duck blankies) to give away today as Thank Yous to the staff that has been so wonderful to us!

Please continue to pray for TODDLER Liam!

11/24/2024

Sunday, November 24th, 2024
326 Days of Baby Liam’s heart journey outside of mommy!

Liam got his first gingerbread house today from his Maw Duck!

He’s also got his first stomach virus so please send prayers for us!

We are so excited for the upcoming holidays and are so thankful for Liam and his overall health.

11/09/2024

Friday, November 8th 2024

Day 310 of Baby Liam’s heart journey outside of mommy!

Happy 10 Months (and a few days) my sweet Baby Liam!!!!

Liam started daycare and mommy started a new job at the same time. It hasn’t been easy at all!

Liam also cut 5 teeth this month in addition to adding a new routine and new people into his life.

Lots of change and growth happening in our little family!

Please keep us in your prayers this holiday season and enjoy some pics from this past month!

Baby Liam’s Heart Journey

09/01/2025

07/09/2025

06/11/2025

06/03/2025

04/29/2025

04/13/2025

04/02/2025

02/03/2025

01/21/2025

01/09/2025

11/24/2024

11/09/2024

Address

Telephone

Website

Alerts

Contact The Practice

Shortcuts

Share

Category