Charlie Ann the Brave

09/22/2025

https://charity.pledgeit.org/c/KZcRn0BkWy/checkout/tickets

Here is the sign-up if anyone would like to do the Buddy walk with us this year. T-shirts are available if you sign up in the next hour!

https://charity.pledgeit.org/t/P3qtrcDxLd

I'm walking to show my love and support for my child—and for more than 400,000 individuals with Down syndrome across the U.S. Every dollar I raise brings us one step closer to ensuring that my child, and every individual, has the opportunity to reach their full potential. Your support will help fu...

09/18/2025

Day 9/85 cycle 3/6
Long day but everything went great! We got VIP treatment and I was able to go back with her until she went to sleep. Lumbar puncture was done. Chemo was given. Ears were checked. Hearing test was normal! She woke up before they could get me back to recovery but is resting in my arms now. Thank you for all the prayers! So relieved today is done.

09/18/2025

Day 8/85 cycle 3/6
Say an extra prayer for Charlie Ann (and her momma) as she goes to the hospital tomorrow. She’ll be getting her routine lumbar puncture with anesthesia but she’ll also be getting an Auditory Brainstem Response (ABR) Test which will add another hour under sedation. The lumbar puncture only takes a few minutes so we are not used to her being under that long. She hasn’t cooperated well enough while awake to get a good hearing test so we are taking advantage of her already getting anesthesia. Please pray for no complications and good results! Her stomach has been upset today so please pray that it resolves and doesn’t interfere with tomorrow. It’s taken about 6 months to coordinate tomorrow. Thank you all for your continued prayers. It warms our hearts to know so many are praying for her!

09/09/2025

Update on Everleigh 9-8-25…..we’re here in the hospital today waiting to do a dye on her tubes because they decided to start leaking yesterday 😣. We also just got her scheduled for an MRI tomorrow….they said it’s the longest, deepest one they do and she’ll be sedated for at least 4 hours for it. She’ll also get a spinal tap while she’s sedated to check and see if the leukemia is trying to come back. Please pray for all the things going on and for Dr wisdom. Pray her procedure would go smoothly as well as for the results to look good 💕. Pray for her tubes also please 🙏

09/09/2025

Day 84/85 cycle 2/6
Last night Charlie Ann had a sleep study. She was a trooper. We are seeing if her mild sleep apnea has changed any. Her follow up appt is 10/1 to discuss the results but it doesn’t appear to be worse which is good! Tomorrow she goes for her monthly IV antibiotics and IVIG. Her lumbar puncture will be on 9/18 so they can do a thorough audiology exam/test as well.
It’s been a busy but good summer! We were able to spend some time in Branson with family. Homebound School has started back and going great! She still receiving all of her therapies and has lots of drs appointments. Please continue to keep her in your prayers. Thank you all!

07/15/2025

Day 29/84 cycle 2/6
Today’s appt went great! Her numbers look good. Keeping chemo doses the same. She will come back next week for labs to see if they are still good so we can go visit with family. Last week in Alabama was uneventful which was such a relief! First time out of state since she was diagnosed last year.

07/15/2025

Day 28/84 cycle 2/6
We had a great week in Hamilton Alabama!

07/01/2025

She gets to go on vacation! We will still have to be super cautious bc if she gets sick, we will have to stay at whichever hospital is closest to her at the time until she is discharged. There’s no transferring her back to Plano.

07/01/2025

Day 15/84 cycle 2/6
Today she goes for labs to see if she gets to go on vacation or a staycation. Last Tuesday, her labs were good so she started back on chemo at 1/2 the dose. She has had a great week! Please pray for an easy lab draw and God’s will to be done.

06/21/2025

Day 4/84 cycle 2/6
The last few days have been much better than expected! She’s feeling good and tolerating the steroids well. We even ventured out yesterday to see cowboy Ken (while social distancing). She will go back for labs Tuesday to see if we can restart her chemo. Thank you for the continued prayers!

06/17/2025

06/17/2025