05/30/2025
One of our wonderful families got to sit down with Special Books By Special Kids. Lucas and Lara truly are amazing kids. We love seeing them in the office and we are so happy these kids and their family get to share their story with the world. Full interview video in comments. π€π
Lara and Lucas are siblings diagnosed with Cockayne syndrome, a rare and fatal disease that causes rapid aging. When Lucas was born, doctors believed his disabilities were due to complications at birth. But when his sister Lara began showing similar symptoms a few years later, it was discovered that both children were living with the same devastating condition. Now, their family is focused on cherishing every moment and creating lasting memories together while they still have time. You can watch this interview in the comments below.