Sickle Cell Disease Association of America, Inc.

Sickle Cell Disease Association of America, Inc. The Official page of the National Sickle Cell Disease Association of America, Inc.
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What SCDAA does:

* Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.

* Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

* Organize and/or participate in national and regional educational conferences.

* Develop and promote the implementation of service programs that will be in the best interest of the affected population.

* Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

* Assist in the organization and development of local chapters.

* Provide ongoing technical assistance to members and other interested groups or organizations.

* Encourage adequate support for research activities leading to improved treatment and eventual cure.

Congratulations to, Mary Murph, who was honored with the 2025 Advocacy Award from the Sickle Cell Disease Association of...
10/30/2025

Congratulations to, Mary Murph, who was honored with the 2025 Advocacy Award from the Sickle Cell Disease Association of America, Inc. Mary is the founder, president and CEO of the St. Petersburg Chapter of the Sickle Cell Disease Association of America and mother of two sickle cell warriors. She was recognized for her passionate, persistent efforts to raise awareness and provide support and resources to warriors. Thank you, Mary, for your unwavering dedication to the sickle cell community!

Congratulations to, U.S. Senators Cory Booker (D-NJ) MPH, and Tim Scott (R-SC), who were honored with the 2025 Champion ...
10/29/2025

Congratulations to, U.S. Senators Cory Booker (D-NJ) MPH, and Tim Scott (R-SC), who were honored with the 2025 Champion Award from the Sickle Cell Disease Association of America, Inc. They were recognized as influential leaders dedicated to advancing legislation and policies that improve the lives of the sickle cell community. Thank you, Senators for making a profound impact!

Congratulations to TaLana Hughes, MPH, who was honored with the 2025 President’s Award from the Sickle Cell Disease Asso...
10/28/2025

Congratulations to TaLana Hughes, MPH, who was honored with the 2025 President’s Award from the Sickle Cell Disease Association of America, Inc. President and CEO Regina Hartfield (left) presented the award to TaLana (right) during the convention earlier this month. Recognized for her accomplishments as the executive director of the Sickle Cell Disease Association of Illinois, TaLana’s passion and commitment have set a standard of excellence for advancing sickle cell advocacy, support and awareness. Thank you for your leadership TaLana!

Congratulations to Chondra Stone who was honored with the 2025 Community Health Worker Award from the Sickle Cell Diseas...
10/27/2025

Congratulations to Chondra Stone who was honored with the 2025 Community Health Worker Award from the Sickle Cell Disease Association of America, Inc. A certified community health worker, educator and counselor for the Sickle Cell Disease Association of America - Mobile Chapter, Inc., Chondra was recognized for her ability to connect with sickle cell warriors and her deep commitment to improving health outcomes. Thank you for going above and beyond Chondra!

October is National Emotional Wellness Month. Sickle cell warriors and their caregivers often prioritize physical health...
10/26/2025

October is National Emotional Wellness Month. Sickle cell warriors and their caregivers often prioritize physical health above all else. However, taking care of your mental health is essential for your overall well-being and should not be ignored. Learn more: https://buff.ly/LGLRe42

Congratulations to Wayne A. I. Frederick, M.D., MBA, who was honored with the 2025 Chairman Award from the Sickle Cell D...
10/25/2025

Congratulations to Wayne A. I. Frederick, M.D., MBA, who was honored with the 2025 Chairman Award from the Sickle Cell Disease Association of America, Inc. An internationally recognized expert on disparities in health care and medical education, Dr. Frederick was recognized for his dedicated leadership in the sickle cell community. Thank you, Dr. Frederick, for strengthening SCDAA’s mission!

Congratulations to Representative Danny K. Davis (D-IL-07), who was honored with the 2025 Lifetime Achievement Award fro...
10/25/2025

Congratulations to Representative Danny K. Davis (D-IL-07), who was honored with the 2025 Lifetime Achievement Award from the Sickle Cell Disease Association of America, Inc. President and CEO Regina Hartfield presented the award to Rep. Davis during last week’s annual convention. Among his many accomplishments, Rep. Davis has championed numerous pieces of legislation specific to sickle cell disease. Thank you, Rep. Davis, for your legacy of progress and hope for future generations!

Take your Community Health Worker (CHW) skills to the next level! Join us on November 13 at noon ET, for our upcoming on...
10/24/2025

Take your Community Health Worker (CHW) skills to the next level! Join us on November 13 at noon ET, for our upcoming online P.O.W.E.R. ECHO Community Health Worker Training by Chiesi. Dr. Anish Chackochan will present “Blood Transfusions and Iron Overload in Sickle Cell Disease.” Register today: https://buff.ly/zNotX4s

Stay updated with all the latest news from SCDAA! Connect with the sickle cell community and support a future where ever...
10/23/2025

Stay updated with all the latest news from SCDAA! Connect with the sickle cell community and support a future where every warrior receives the care they deserve. Sign up for our weekly e-newsletter here: https://buff.ly/CAb9CX1

You have the power to make a difference for someone living with sickle cell disease! Giving a blood donation can help en...
10/20/2025

You have the power to make a difference for someone living with sickle cell disease! Giving a blood donation can help ensure that sickle cell warriors receive the lifesaving transfusions they need. Donate today: https://buff.ly/aYAcYwS

Have you signed up for the SCDAA and MedicAlert pilot program? During a sickle cell pain crisis, warriors present their ...
10/19/2025

Have you signed up for the SCDAA and MedicAlert pilot program? During a sickle cell pain crisis, warriors present their Smart Medical ID Card to the emergency room staff, who can then easily get the information they need to streamline treatment and care. Learn more and sign up today: https://buff.ly/c8gxDLu

Today is the last day and it will not disappoint! Today’s highlights include our next SCDAA SCD Masterclass “Sickle Cell...
10/18/2025

Today is the last day and it will not disappoint! Today’s highlights include our next SCDAA SCD Masterclass “Sickle Cell in the Media: Scene and Heard” will be hosted by Agios Cheat Codes at 10:15 a.m. Starting at 11:20 a.m. Global Warriors: Achieving Solidarity Across the Globe will bring together the global perspectives of warriors from around the world. Our closing ceremony begins at 2:05 p.m. Thank you to everyone who joined us for our 53rd Annual National Convention!

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7240 Parkway Drive, Ste 180
Hanover, MD
21076

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