Sickle Cell Disease Association of America, Inc.

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Sickle Cell Disease Association of America, Inc.

The Official page of the National Sickle Cell Disease Association of America, Inc.
(420)

What SCDAA does:

* Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.

* Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

* Organize and/or participate in national and regional educational conferences.

* Develop and promote the implementation of service programs that will be in the best interest of the affected population.

* Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

* Assist in the organization and development of local chapters.

* Provide ongoing technical assistance to members and other interested groups or organizations.

* Encourage adequate support for research activities leading to improved treatment and eventual cure.

01/16/2026

Recent news and discussion about vaccinations can be confusing to the sickle cell community. SCDAA’s Medical and Research Advisory Committee (MARAC) strongly encourages those living with sickle cell disease to discuss vaccinations with their providers and to keep their vaccinations updated. Read more ➡️ https://buff.ly/Xl5ma7g

01/15/2026

Exiting news: this year’s Annual National Convention will be held in Concord, North Carolina! 🎉

MARK YOUR CALENDAR
📅 October 15-17, 2026
📍 Embassy Suites by Hilton Charlotte Concord Golf Resort & Spa

More information will be announced soon! We look forward to seeing you this fall.

01/13/2026

Want to get involved with SCDAA this year? Subscribe to our weekly e-newsletter for the most up-to-date news and opportunities. Click here to sign up: https://buff.ly/4cx8nvq

01/09/2026

Why do you give blood? 🩸🗣️

We know our purpose. Help raise awareness about the need for diverse blood donations. Share your why this month: https://sbrew.link/87kLZSny

Find a blood drive near you: https://sbrew.link/XtfqBO49

01/07/2026

Community check-in: what topics would you like to see more of in 2026? 💭

We’re planning for the upcoming year, and we want your input. 🗣️

🔹What themes interest you?

🔸What would you like to learn about?

🔹What stories would you like to see told?

Let us know in the comments!

01/05/2026

January is National Blood Donor Month! 💪

that many individuals with sickle cell disease rely on blood transfusions to stay healthy?

that Black blood donors help make sure matched blood is available?

Help us diversify the blood supply this month. Make a plan to give today!

Find a blood drive near you: https://sbrew.link/PabzrsuI

01/01/2026

Happy New Year from SCDAA! Wishing you health and joy in 2026 ✨

12/31/2025

⌛ As 2025 comes to a close, there’s still time to make your gift to SCDAA count this year.

Every donation today helps us advance our mission and bring hope to everyone impacted by sickle cell disease.

Give today ➡️ https://bit.ly/SCDAAdonate

12/27/2025

✋ Don’t miss the chance to take our survey about clinical research participation! Your response will help us guide the development of research protocols that more accurately reflect the needs of the sickle cell community. Share your thoughts ➡️ https://bit.ly/4i6NFHa

12/26/2025

Here’s your reminder to rest 💤

Are you still buzzing from the holidays? Watch our most recent masterclass and discover why taking time for yourself is so important during this season: https://youtu.be/F9JY6zSFYag

12/24/2025

Happy holidays from SCDAA! We wish you and yours peace and good health as we celebrate the holiday season. ✨

12/23/2025

📰 SCDAA's December Legislative Briefing is out now!

Read more about this year in advocacy and the important report from the National Academies of Sciences, Engineering, and Medicine (NASEM) report on sickle cell disease and Social Security disability evaluations ➡️ https://buff.ly/JcbTsBs

Address

7240 Parkway Drive, Ste 180
Hanover, MD
21076

Website

http://www.sicklecelldisease.org/

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