Sickle Cell Disease Association of America, Inc.

Sickle Cell Disease Association of America, Inc. The Official page of the National Sickle Cell Disease Association of America, Inc.
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What SCDAA does:

* Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.

* Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

* Organize and/or participate in national and regional educational conferences.

* Develop and promote the implementation of service programs that will be in the best interest of the affected population.

* Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

* Assist in the organization and development of local chapters.

* Provide ongoing technical assistance to members and other interested groups or organizations.

* Encourage adequate support for research activities leading to improved treatment and eventual cure.

We are excited to share that three community-based organizations have recently joined SCDAA! Please help us welcome the ...
04/14/2026

We are excited to share that three community-based organizations have recently joined SCDAA! Please help us welcome the L.D. Barksdale Sickle Cell Foundation, The Riley Foundation for Sickle Cell Disease and Sickle Cell Association of Kentuckiana to our team! This addition expands our national reach into Kentucky, and we are excited to see how these partnerships make an impact.

P.S. - have you checked out our redesigned SCDAA Member Finder on the new website yet? This updated layout makes it easier than ever to find your local SCDAA member organization. Try it out today ➡️ https://buff.ly/y1PuPqh

Our convention theme is finally here! 🤩 💮You may know that the iconic dogwood is North Carolina's state flower, but did ...
04/13/2026

Our convention theme is finally here! 🤩 💮

You may know that the iconic dogwood is North Carolina's state flower, but did you know that it is also a symbol of hope and new beginnings? Our 54th Annual National Convention theme – HOPE: An Era of Healing Optimism, Perseverance and Excellence – pays tribute to our host state and recognizes our community's transition into a new era of sickle cell care.

Stay tuned for more information about registration and abstract submissions, but in the meantime – don't forget to mark your calendar for Oct. 15-17! 📅

Calling all scholars with sickle cell! 📖 The Vertex Foundation Scholarship for SCD & TDT Scholars is now open!This schol...
04/10/2026

Calling all scholars with sickle cell! 📖 The Vertex Foundation Scholarship for SCD & TDT Scholars is now open!

This scholarship provides financial support to individuals living with sickle cell disease (SCD) or transfusion-dependent beta thalassemia (TDT), as well as their families (siblings, spouses, children, and caregivers), to help them pursue two-year, three-year, four-year, or graduate degrees.
🔸 Award Amount: $5,000 USD/CAD
🔸 Eligibility: Open to legal permanent residents of the United States and Canada attending an accredited school in either country
🔸 Applications are open now through May 6, 2026
🔸 Recipients will be notified in June

For more information about this program and to apply, visit ➡️ https://buff.ly/GkAq4Ew

04/08/2026

Happening tomorrow! 📅 Don’t miss our next free P.O.W.E.R. ECHO Community Health Worker (CHW) Training session. Jolene Swain, MSW, joins us again to present on the differences between a community health worker (CHW) and a social worker.

Register ➡️ https://bit.ly/41vgtSd

Today is World Health Day. Sickle cell disease affects millions of people across the world. Internationally, 300,000+ ba...
04/07/2026

Today is World Health Day. Sickle cell disease affects millions of people across the world. Internationally, 300,000+ babies are born with sickle cell disease each year, with sub-Saharan Africa and India bearing half the global burden. On this important day, we remember that sickle cell disease does not discriminate as we continue to raise awareness and advocate for our community - in the United States, and around the globe.

To learn more about the international impact of sickle cell disease, visit the Global Alliance of Sickle Cell Disease Organizations ➡️ www.globalscd.org

April is National Minority Health Month. While sickle cell disease impacts people from all backgrounds, most of these in...
04/03/2026

April is National Minority Health Month. While sickle cell disease impacts people from all backgrounds, most of these individuals belong to a minority group. This month, we highlight the unique issues faced by our minority populations, including barriers to care and resource gaps. Learn more ➡️ https://buff.ly/QcUtlSE

It's back 🙌 Registration is now open for the SCDAA Summer Community Health Worker (CHW) Training! This signature course ...
04/02/2026

It's back 🙌 Registration is now open for the SCDAA Summer Community Health Worker (CHW) Training! This signature course will give you all the tools you need to start your career as a CHW or take your skills to the next level. The course's special focus on sickle cell disease will leave you uniquely prepared to serve our community. Learn more ➡️ https://bit.ly/SCDAACHW

04/02/2026

GASCDO Global Theme Announcement – June 19, World Sickle Cell Day

This year, GASCDO is calling for global alignment under one unified theme:

“Closing the Survival Gap: Equity in Sickle Cell Disease.”

Let’s be clear: the survival gap in sickle cell disease is not new—and it is not acceptable. In too many parts of the world, children are still dying from a condition that others are living with into adulthood. This is not just a health issue. It is an equity failure.

Fragmented messaging weakens our impact. A divided voice delays progress.

As the global alliance of sickle cell organizations, GASCDO is urging all stakeholders—patient organizations, healthcare providers, researchers, industry, and governments—to formally endorse and actively use this theme in their June 19 campaigns and beyond.

Global challenges require global alignment.

This is the moment to move as one community, with one message, and one clear demand: to close the survival gap and ensure equitable care for all.

We encourage every organization and partner to adopt this theme and stand visibly with the global movement!

Share and Stay tuned for more information

03/31/2026

Replay time! 🔄 If you missed the first session of our 2026 P.O.W.E.R. ECHO CHW Training or want to rewatch the seminar, the recording is here! Thanks to presenter Jolene Swain, MSW, for joining us.

Watch the full training session ➡️ https://buff.ly/GMrKUhP

Join us on April 12 at 12 p.m. ET to learn about “The Difference Between a CHW & Social Worker” ➡️ https://buff.ly/8UFBcrD

Thank you to our sponsor Pfizer for supporting this program!

Happy Doctors’ Day to all the extraordinary physicians who devote their careers to caring for and supporting people with...
03/30/2026

Happy Doctors’ Day to all the extraordinary physicians who devote their careers to caring for and supporting people with sickle cell disease. 👨‍⚕️ 🏥 🩺

On this meaningful day, pause and share a story about a doctor who has inspired you. 🫶

Thank you to our 2025 sickle cell champions! 👏 🏛️ Earlier this month, Regina Hartfield, SCDAA president and CEO, had the...
03/27/2026

Thank you to our 2025 sickle cell champions! 👏 🏛️

Earlier this month, Regina Hartfield, SCDAA president and CEO, had the opportunity to visit Senator Tim Scott and Senator Cory Booker's offices to present them with the 2025 Champion Awards. Senators Scott and Booker were unable to accept their awards in person at our 2025 Annual National Convention in October, and we were honored to be able to celebrate them once more for their commitment to the sickle cell community.

The Champion Awards recognize individuals who have demonstrated exceptional dedication to advancing the cause of sickle cell disease through leadership advocacy and/or action. Learn more ➡️ https://buff.ly/W4PZnRU

📷️ Senator Scott and Gloria Nunez, staffer with the office of Senator Booker

📅 Save the date! The National Heart, Lung, and Blood Institute (NHLBI) and the Sickle Cell Disease Association of Americ...
03/26/2026

📅 Save the date! The National Heart, Lung, and Blood Institute (NHLBI) and the Sickle Cell Disease Association of America, Inc. (SCDAA) are excited to partner and host a free community forum open to the public. “Research That Heals: Partnering with Patients to Transform SCD Care” will be held June 25-26, 2026. Join the sickle cell community, including individuals with SCD and their caregivers, healthcare providers and community-based organizations to discuss and develop solutions to enhance care and improve the quality of life for children and adults living with sickle cell disease. Attendees can join in-person or virtually.

Registration opens soon. Stay tuned!

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7240 Parkway Drive, Ste 180
Hanover, MD
21076

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