Sickle Cell Disease Association of America, Inc.

Sickle Cell Disease Association of America, Inc. The Official page of the National Sickle Cell Disease Association of America, Inc.
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What SCDAA does:

* Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.

* Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

* Organize and/or participate in national and regional educational conferences.

* Develop and promote the implementation of service programs that will be in the best interest of the affected population.

* Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

* Assist in the organization and development of local chapters.

* Provide ongoing technical assistance to members and other interested groups or organizations.

* Encourage adequate support for research activities leading to improved treatment and eventual cure.

Today is Rare Disease Day! 📣 It’s a day to recognize conditions that are often misunderstood and communities that are to...
02/28/2026

Today is Rare Disease Day! 📣

It’s a day to recognize conditions that are often misunderstood and communities that are too often overlooked.

For the sickle cell community, this day is about visibility, dignity, and sustained support.

Thanks to supporters like you, SCDAA continues to advocate for access to care, educate providers and caregivers, and strengthen community-based support across the country.

Support our mission ➡️ https://buff.ly/IyDKVeV

Our final   of 2026 explores the life and career of Dr. Charles Drew, a pioneering physician whose work paved the way fo...
02/27/2026

Our final of 2026 explores the life and career of Dr. Charles Drew, a pioneering physician whose work paved the way for our modern-day blood banking system. Thanks to his research, individuals with sickle cell disease have access to safe and timely blood transfusions.

Dr. Drew was born in 1904 in Washington, D.C. He was a talented athlete and earned a partial scholarship to Amherst College in Massachusetts, where he was one of the few African Americans on campus. After graduating, he taught biology and coached at Morgan College (now Morgan State University) before attending medical school at McGill University in Canada. During his residency at Montreal Hospital, he developed an interest in blood transfusions and their effectiveness in treating shock.

He began his medical career at Howard University, practicing as a faculty instructor for pathology and later taking an appointment at the Freedman’s Hospital as a surgeon. In 1940, he completed his postdoctoral studies at Columbia University and became the first African American to earn a Doctor of Science in Medicine degree.

His postdoctoral thesis, titled “Banked Blood: A Study on Blood Preservation,” determined how to process and preserve blood plasma — a strategy that increased the length of time that blood could be stored. This research was completed in time to be of great use during World War II, and Dr. Drew led efforts to collect, preserve and internationally ship approximately 14,500 liters of blood through the Blood for Britain campaign.

In 1941, Dr. Drew was appointed assistant director of the first American Red Cross Blood Bank. During his time with the organization, he invented the “bloodmobile,” which allowed blood to be collected and transported on-the-go. Dr. Drew strongly objected to the blood bank segregating their blood storage and ultimately resigned from his position in protest of this racist policy.

Dr. Drew went on to rejoin faculty at Howard University, where he worked until he tragically passed away in a car accident at the age of 45. Dr. Drew’s research lay the foundation for safe and accessible blood transfusions, and his advocacy promoted equity in medicine — key elements of wellness for individuals with sickle cell disease across the globe.

Recent progress in sickle cell treatment has brought new hope. But progress alone doesn't guarantee access. As Rare Dise...
02/25/2026

Recent progress in sickle cell treatment has brought new hope. But progress alone doesn't guarantee access.

As Rare Disease Day approaches, help us continue our crucial mission and ensure that advances don't leave our communities behind.

Support SCDAA’s work and a make gift today ➡️ https://buff.ly/IIj57Ha

02/23/2026

What do sickle cell warriors need to know about vaccines? đź’­

SCDAA chief medical officer Dr. Edward Donnell Ivy shares insight from a recent Medical and Research Advisory Committee (MARAC) statement on this important topic.

📽️ Watch the video to learn more or visit ➡️ http://bit.ly/MARAC_Vaccinations

For this week's  , meet Dr. Marilyn Hughes Gaston, whose dedication and passion for health care led her to pave the way ...
02/20/2026

For this week's , meet Dr. Marilyn Hughes Gaston, whose dedication and passion for health care led her to pave the way for equity. Dr. Gaston’s special focus on sickle cell disease helped shape our understanding of the condition and its management.

Born in 1939, Dr. Gaston’s family faced poverty and discrimination, but she knew by age nine that she wanted to become a physician. When she was a teenager, her mother became ill with what would later be diagnosed as cervical cancer. The family had no health insurance and faced other barriers to access, which meant Dr. Gaston’s mother was not properly treated. After witnessing her mother collapse in their living room due to the lack of care, Dr. Gaston resolved to overcome the odds and pursue a career in medicine.

Dr. Gaston earned an undergraduate degree at the University of Miami before enrolling in the University of Cincinnati College of Medicine, where she was the only Black woman in her class. She became interested in sickle cell disease during her internship at Philadelphia General Hospital in 1964. According to Changing the Face of Medicine, “one evening, during her internship, Dr. Gaston admitted a baby with a badly swollen hand. No trauma was reported, and she could not find the cause of the swelling. Her supervising resident suggested she check the blood work for evidence of sickle cell disease. The child did have SCD, and his hand was swollen from infection. Gaston was appalled that she hadn't even considered checking for this condition and set out to learn everything she could about it.”

Dr. Gaston dutifully began her studies of sickle cell disease, securing federal grants and establishing herself as a leading expert in the condition. In 1986, she published her landmark research on penicillin prophylaxis. Her national study determined that giving children with SCD preventative penicillin from birth reduced the complications of sickle cell disease. Her work indicated that newborn screening was key to identifying SCD early and treating it properly. Newborn screening now identifies many conditions beyond sickle cell and is standard practice in U.S. public health.

In addition to her groundbreaking work in the sickle cell space, Dr. Gaston spent many years as a medical expert with the National Institutes of Health and went on to become the director of the Bureau of Primary Health Care in the U.S. Health Resources and Services Administration. She was the first Black woman to direct a public health service bureau in the country. Her dedication to improving health care for poor and underserved families has left a lasting mark on history. Thank you, Dr. Gaston, for your commitment to our community.

Awareness matters. But so does what happens next.Supporting SCDAA means investing in advocacy, education, community heal...
02/19/2026

Awareness matters. But so does what happens next.

Supporting SCDAA means investing in advocacy, education, community health workers and research access—every single day.

This Rare Disease Month, we’re showing exactly how support turns into action.

Support SCDAA by making a gift today ➡️ https://buff.ly/IIj57Ha

SCDAA is proud to announce that we have earned a 2025 Candid Gold Seal of Transparency! 🏅 Candid is a nonprofit organiza...
02/17/2026

SCDAA is proud to announce that we have earned a 2025 Candid Gold Seal of Transparency! 🏅

Candid is a nonprofit organization that provides comprehensive data and insights about the social sector. The Gold Seal of Transparency demonstrates our commitment to trust and clarity. We encourage you to view our profile to learn more about our organization ➡️ https://buff.ly/TMWaY9x

Our next   shines a light on the life and legacy of the "father of sickle cell disease" - Dr. Roland B. Scott. Dr. Scott...
02/15/2026

Our next shines a light on the life and legacy of the "father of sickle cell disease" - Dr. Roland B. Scott. Dr. Scott's groundbreaking research and dedication to patients during a time of intense discrimination paved the way for progress in SCD treatment.

Dr. Scott was born in 1909 and graduated with his medical degree from Howard University in 1934. He spent the majority of his career in the pediatrics department of Howard University. During this time, he began to notice the high number of African American children in the emergency room experiencing sickle cell symptoms and complications.

Dr. Scott was a trained allergist, but he switched his focus to help improve treatment for this misunderstood disease. A compassionate pediatrician, Dr. Scott held office hours in the evenings during which he would see African American children and families who were discriminated against and denied access to medical treatment.

Dr. Scott would go on to publish hundreds of articles on sickle cell disease during his time at Howard University. Although he did not specialize in hematology, in 1948 Dr. Scott published a paper on the sickling of red blood cells in newborns. This paper established a better understanding of sickle cell disease and laid the groundwork for newborn screening as we know it today.

In addition to being a dedicated researcher, Dr. Scott was a fierce advocate for sickle cell disease. His advocacy played a large role in the federal government’s passing of the Sickle Cell Anemia Control Act of 1971, which ensured nationwide funding for SCD research and treatment.

In 1972, Dr. Scott founded the Howard University Center for Sickle Cell Disease, which continues to conduct research and provide care to sickle cell patients today. He passed away in 2002. Dr. Scott’s work and advocacy changed the landscape for sickle cell disease, and we owe so much of our capability to treat and understand sickle cell to his efforts.

02/13/2026

that today is World Anemia Awareness Day? 🩸

Sickle cell disease is also called sickle cell anemia, but what is anemia exactly? Learn more from Dr. Lewis Hsu (AKA Dr. "Seuss"), pediatric hematologist and SCDAA board member.

Exciting news: SCDAA's 2025 Impact Report is out now! 🎉2025 was a year like no other. Discover our impact, learn more ab...
02/12/2026

Exciting news: SCDAA's 2025 Impact Report is out now! 🎉

2025 was a year like no other. Discover our impact, learn more about our events and initiatives and reflect on the progress we made together in our Impact Report.

Read more ➡️ sicklecelldisease.org/impact-report

🗣️ Sickle cell disease is considered rare. Its impact is not.More than 100,000 people live with sickle cell disease in t...
02/11/2026

🗣️ Sickle cell disease is considered rare. Its impact is not.

More than 100,000 people live with sickle cell disease in the United States, and nearly 500,000 are impacted when families, caregivers and trait carriers are included.

That’s why this year we’re focusing on a distinction that matters: Sickle cell is a disease. Not a people.

All February long, during Rare Disease Month, we’re raising awareness and support for the work that happens every day to serve the sickle cell community.

Support SCDAA by making a gift today ➡️ https://bit.ly/SCDAA_Rare2026

It’s not too late to join us for our upcoming SCDAA Community Health Worker (CHW) Training! Our signature spring course ...
02/08/2026

It’s not too late to join us for our upcoming SCDAA Community Health Worker (CHW) Training!

Our signature spring course begins on March 2. Learn everything you need to know to become a CHW while deepening your sickle cell knowledge.

Learn more and apply ➡️ https://buff.ly/GZa0qFA

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7240 Parkway Drive, Ste 180
Hanover, MD
21076

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