Sickle Cell Disease Association of America, Inc.

Sickle Cell Disease Association of America, Inc. The Official page of the National Sickle Cell Disease Association of America, Inc.
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What SCDAA does:

* Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.

* Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

* Organize and/or participate in national and regional educational conferences.

* Develop and promote the implementation of service programs that will be in the best interest of the affected population.

* Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

* Assist in the organization and development of local chapters.

* Provide ongoing technical assistance to members and other interested groups or organizations.

* Encourage adequate support for research activities leading to improved treatment and eventual cure.

In observance of National Sickle Cell Disease Awareness Month, let’s learn from each other! Join us on Instagram Septemb...
09/10/2025

In observance of National Sickle Cell Disease Awareness Month, let’s learn from each other! Join us on Instagram September 22, 24 and 26 from 12-1 p.m., EST. SCDAA will pose thought-provoking questions for community discussion, and we look forward to hearing your thoughts! RSVP here: https://buff.ly/P5Xx78E

Join us in bringing attention to sickle cell disease during National Sickle Cell Awareness Month! We are excited to shar...
09/09/2025

Join us in bringing attention to sickle cell disease during National Sickle Cell Awareness Month! We are excited to share our Sickle Cell Disease Social Media Toolkit with resources and tools to help support your efforts. Download the toolkit here: https://buff.ly/tro8J4q

Thank you to everyone who supported our inaugural SCDAA Golf Classic in Georgia and made it a success! We appreciate you...
09/08/2025

Thank you to everyone who supported our inaugural SCDAA Golf Classic in Georgia and made it a success! We appreciate your commitment to raising awareness about sickle cell disease.

Celebrate Sickle Cell Awareness Month by joining the Department of Health and Human Services for a two-part webinar seri...
09/08/2025

Celebrate Sickle Cell Awareness Month by joining the Department of Health and Human Services for a two-part webinar series, on Sept. 18 and 25, highlighting best practices and federal programs designed to enhance gene therapy education and access.

Register for Part 1: https://buff.ly/eqX89oc

Register for Part 2: https://buff.ly/PQWuUjc

Are you traveling by plane to this year’s convention? Be sure to review the Chicago O’Hare Airport accessibility guide h...
09/07/2025

Are you traveling by plane to this year’s convention? Be sure to review the Chicago O’Hare Airport accessibility guide https://buff.ly/Xs9OsPd and make plans in advance with your airline for wheelchair assistance, medical requests and service animal management. We also encourage you to take advantage of the Hidden Disabilities Sunflower program https://buff.ly/hluFRNi which discreetly informs airport staff that you may need additional time and assistance.

A huge thank you to the Atlanta Braves and DHR Global for being hole sponsors at SCDAA’s inaugural Golf Classic on Septe...
09/06/2025

A huge thank you to the Atlanta Braves and DHR Global for being hole sponsors at SCDAA’s inaugural Golf Classic on September 5 at the Chapel Hills Golf Club in Douglasville, Georgia. We appreciate your support! Learn more: https://bit.ly/SCDAA_Golf2025

Are you ready for our first question in the National Sickle Cell Awareness Month “Knowledge is Power: SCD Trivia” series...
09/05/2025

Are you ready for our first question in the National Sickle Cell Awareness Month “Knowledge is Power: SCD Trivia” series? We're excited to see how popular culture is helping to raise awareness about sickle cell disease through various storylines. Do you know which of the following TV shows recently featured sickle cell disease? Please share your answer in the comments below and check back at 5 p.m. ET for the correct response!

Do you have your tickets for the 53rd Annual National Convention in October? Join us the Kwaku Ohene-Frempong, MD, Memor...
09/04/2025

Do you have your tickets for the 53rd Annual National Convention in October? Join us the Kwaku Ohene-Frempong, MD, Memorial Symposium, “What Cure Leaves Behind: Listening to the Lived Reality of Innovation,” presented by Dr. Marilyn Baffoe-Bonnie.

Dr. Baffoe-Bonnie is a medical sociologist and bioethicist whose work centers on how warriors and communities navigate sickle cell disease in a time of curative promise. She will share valuable insights on the ethical and social dimensions of emerging biomedical technologies, such as gene therapy and the lived experience of biomedical innovation. Learn more and register today: https://bit.ly/SCDAA-2025-Convention

We’re still accepting applications for our Community Health Worker (CHW) Training on Monday, September 8! Held virtually...
09/03/2025

We’re still accepting applications for our Community Health Worker (CHW) Training on Monday, September 8! Held virtually, this seven-week course will give you all the tools you need to excel as a CHW serving the sickle cell community. Learn more and register: https://buff.ly/h5zMY58

In recognition of National Sickle Cell Awareness Month, help us make a difference for sickle cell warriors by pledging t...
09/02/2025

In recognition of National Sickle Cell Awareness Month, help us make a difference for sickle cell warriors by pledging to donate blood. It only takes one hour, and you could save a life. Pledge here: https://buff.ly/Pq4tnWH

Happy Labor Day! Wishing everyone a safe and healthy holiday!
09/01/2025

Happy Labor Day! Wishing everyone a safe and healthy holiday!

Happy National Sickle Cell Awareness Month! SCDAA is committed to driving innovation and providing support for individua...
09/01/2025

Happy National Sickle Cell Awareness Month! SCDAA is committed to driving innovation and providing support for individuals living with sickle cell disease. We are leading initiatives that make a significant impact in our communities. Stay tuned for inspiring stories, educational resources and ways you can get involved this month! Learn more: https://buff.ly/7d91CrQ

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7240 Parkway Drive, Ste 180
Hanover, MD
21076

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