Anatomy Gifts Registry-A Program of Anatomic Gift Foundation, Inc.

10/28/2025

Interesting article on some CTE research findings possible through brain donations.

Key Takeaways

10/19/2025

A great article about body donation, specifically in Singapore, but the research endeavors, and need for transplant too, are applicable in the US, as well

Death becomes him: Donating his brain, whole body to medical science

Former civil servant Luo Chen Jun suggests having a single national registry linking organ, body, and brain donations. Read more at straitstimes.com. Read more at straitstimes.com.

09/12/2025

Well written op ed on the decision for whole body donation

Even though my body won’t be at my funeral, it doesn’t bother me.

01/09/2025

If you have HHT and want to be a participant in a study (one you don't have to wait to pass away to be a part of), see below!

Cure HHT and Diagonal Therapeutics are teaming up to launch an observational study and we need your help!

By tracking your nosebleeds, healthcare visits, and quality of life over a year, you’ll help researchers gain a clearer picture of living with HHT.

Together we can pave the way for better understanding and care!


What’s Involved?

Remote Participation: Record daily experiences from your phone.

Year-Long Study: Committed to tracking nosebleeds and healthcare needs over time.

Share Your Story: Your experience is essential to understanding the HHT journey—help researchers see what you truly go through.

Eligibility:

✓ Are you 18 years or older living in the US?

✓ Have a confirmed HHT diagnosis and moderate to severe nosebleeds?

✓ Willing to log regular updates for over a course of a year?

Does this sound like you? Click the button below to access our questionnaire and see if you qualify.

Thank you for considering this opportunity to make an IMPACT for the future of HHT research and care.

If you have any questions, reach out to us at Research@curehht.org


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The Cornerstone of the HHT Community

© 2024 CureHHT. All Rights Reserved
© 2024 Copyright HHT Foundation International, Inc.
Mailing

P.O. Box 329, Monkton, MD 21111 USA
www.curehht.org
Contact Us

phone | 410-357-9932
fax | 410-472-5559
email | hhtinfo@curehht.org

HHT disease is a genetic blood vessel disorder that affects 1 in 5,000 people - 90% of whom are undiagnosed. Our mission is to find a cure for HHT.

12/12/2024

Nice article about considerations with deciding to donate body to science. Of note, they mention organ donation for transplants and brain donation with science may or may not occur with some programs. To clarify, AGR encourages organ donation, and will accept organ and eye donation from anywhere, and even musculoskeletal tissue donors are accepted from nearby states to us. Also we can coordinate brain donations or accept after brain donation to another program has occurred!

Why I also want to donate my body to medical science and the surprising number of options to do so

09/28/2024

AGR is at the Infinite Legacy donate life family fun run today, if you're there, stop by and say hi to Erin and Rozeann!

08/13/2024

Today is World Organ Donation Day, and we want to remind prospective AGR donors and their families that organ, eye, and even tissue* donation for transplant does not preclude whole body donation to Anatomy Gifts Registry.

https://wtgf.org/event/world-organ-donation-day-2024/

*(must be a donor within driving distance to AGR for whole body donation after tissue recovery)

For over 35 years the World Transplant Games Federation has been staging international sporting events and promoting education around transplantation in order to promote the physical success of transplant surgery and the need to raise public awareness and increase organ donation.

07/26/2024

HEARING AIDS: They Can Prevent Suicide, Too.

Renown Gerontologist Louise Aronson says"...hearing loss in old age is associated with functional loss, isolation, family discord, medical miscommunications, depression, anxiety and paranoia." In people with adequate hearing, several of these consequences would be recognized as a risk factor for suicide. Yet in older folks, because hearing loss is so common as to be expected, the link between hearing problems and suicide goes undiagnosed.

04/05/2024

If you or your loved ones have MS, please set up donation for MS research. AGR wants our donor families to know that not only do we still accept whole body donations after brain donation, but we encourage it, and routinely coordinate these donations.

This article talks about the potential for real advancements in understanding and slowing progression of MS through these donations.

Columbia neurologists helped establish a new national multiple sclerosis brain bank to advance the understanding of multiple sclerosis and move research forward toward a cure and prevention.

03/29/2024

An article with frontotemporal dementia findings from researchers who are recipients of AGR directed donations!

Mayo Clinic researchers and collaborators zeroed in on the mechanism by which different forms of a protein associated with frontotemporal [...]

03/22/2024

New MS disease research findings based on donated tissues

https://www.nationalmssociety.org/About-the-Society/News/Researchers-Unearth-Clues-to-MS-Development-by-Map

03/21/2024

Interesting research findings regarding Alzheimer's disease from donated tissue!

In a cross-sectional study, researchers addressed the association between air pollution and Alzheimer disease pathology.