Ellie Jane's Journey

05/12/2024

We have a winner!

04/30/2024

Hey guys!
The quick update is that Eliie Jane is doing great!
Now for what we need your help with....
Many of you are probably aware that several of Ellie Jane's friends and family are supporting her dad, Justin in the Leukemia Lymphoma Society's Visionary of the Year Campaign as part of Team Constructing a Cure. As part of our fundraising efforts we have put together a Masters' package to raffle off. Tickets are $5 each and can be purchased through Cashapp, Venmo, PayPal, Zelle, or message us here for other options. Please note raffle or LLS when you send payments. We will post the winner here on May 12th, please purchase your tickets by May 11th. Also, because we have seen scammers on other giveaways...we will not announce the winner early, the drawing will be done on this page, we will not ask you for personal information or to follow any links. Please share this post and help us spread the word. Thanks in advance for all the support.

~Team Constructing a Cure

03/08/2024

Ellie has been getting monthly labs and port flushes since finishing chemo. Her body has been steadily replenishing itself and everything is looking good so we got the official go ahead to move forward with port removal soon!

On another note, we have been through so much these past few years and want to help other families facing cancer now. Ellie's family is participating in the 2024 Leukemia & Lymphoma Society's Visionaries of the Year campaign to fundraiser for cancer research, advocacy, and Patient support. You have have been such a support to us over these past few years. Help us pay it forward and support others!

Our vision is a world without blood cancers. Please support The Leukemia & Lymphoma Society (LLS) by making a donation to Visionaries of the Year! Every dollar raised on behalf of a candidate or campaign team member counts as one vote. The candidate whose team tallies the most votes by the end of th

11/24/2023

Today I'm thankful for our FIRST DAY OFF TREATMENT! That's right... after almost 2 1/2 years aka a third of her entire life... Ellie is done with cancer treatment!! We will still be followed closely by oncology including monthly labs for a year and then more spaced out but wow, what a Thanksgiving! Celebrating by casting some spells at Universal Orlando Resort.

11/18/2023

Good news! Ellie is back home! Counts aren't back up yet but since flu symptoms are stable her team felt like she could make new cells at home just as easy as she could in the hospital. Taking Tamiflu and antibiotics just to be on the safe side while her immunity recovers. Had to cancel a few days of Disney but looks like we will make it to cheer competition later in the week! Kicked off a family evening with popcorn and Home Alone!

11/15/2023

We are SO CLOSE to the end of treatment and it had to throw us for one more loop at the last minute. All of Ellie's counts have bottomed out (white cells, red cells, platelets) and she has the flu with a fever of 104. She got admitted to CHOG and just finished her platelet transfusion, now starting her blood transfusion. Hope we can kick this fast because we planned to go to Orlando next week for some family time and Ellie's cheer competition!

11/10/2023

Since we got all caught up on the year yesterday, I can post yesterday's update now. Ups and downs. She was doing so well on chemo that they recently upped her doses. Turns out it was too high and her counts dropped and she is bruising a lot. We are holding oral chemo for a week until we do labs to see if things are getting back to normal. But yesterday she had her FINAL SPINAL! No more lumbar punctures and spinal chemo after this. This is a huge milestone! They always result in headaches and back pain for her and combined with the low platelets, we are taking it easy and resting this weekend. Perfect weekend to start Christmas movies!

11/09/2023

We are way past due for an update. But that's mostly because we have been back to our regular lives! Here's whats been going on since Spring: Ellie did have one quick hospitalization over the Summer for fluids after a stomach bug. Other than that treatment was smooth sailing all Summer. Make-A-Wish Georgia granted Ellie's wish to go to Hawaii and she did everything you could do there! She went surfing, snorkled with giant sea turtles, performed at a luau, went on a sunset catamaran cruise, ate Dole Whip at the Dole Plantation, took a UTV tour of Kualoa Ranch, and more! She started second grade, is in the gifted program this year,, and is absolutely excelling. In August we made time for a quick trip to our favorite place: Universal Studios! Ellie gets tired easily so we have to build in nap times and sometimes piggyback her when her legs and feet hurt. But you wouldn't know it was a problem since she started CHEER this Fall! She has pushed so hard and put in so many hours all while still in treatment. But it's been so worth it because her team took home first place at locals and we are gearing up to compete in Regionals in a couple of weeks!!

03/31/2023

Had to cancel our infusion today because Ellie has a fever which means automatic ER workup. Hoping counts are good and it's just a respiratory virus we can deal with at home rather than get admitted!

01/30/2023

Big news: Ellie is the local LLS Hero of the Year! This weekend she had an opportunity to share a little of her story with 2023 LLS Visionary of the year candidates and team members.

12/16/2022

Thought we were done with clinic for 2022 but looks like we had another visit. Did physical therapy first thing this morning, now at the clinic getting premedications and port access to start an immunoglobulin infusion. Ellie is having a great day and getting spoiled with all the snacks!!

12/01/2022

Last clinic visit of 2022. Getting some port chemo (and maybe some immunoglobulin depending on labs) then off to the OR for spinal chemo. Got the all clear for Christmas vacation at Universal!