Down Syndrome Advocacy Foundation

Down Syndrome Advocacy Foundation Inclusion can be the rule...not the exception.

The Down Syndrome Advocacy Foundation is a not-for-profit organization [501 (c) (3)] founded by a group of individuals who have children or family members with Down syndrome. DSAF is dedicated to enhancing the lives of individuals with Down syndrome through advocacy and supporting inclusion within schools, communities, and the work place. A lack of consistency exists in the application of best practices for early intervention, education, and inclusion of individuals with Down syndrome in our communities, schools, and work environments. Many communities across the country provide individuals with Down syndrome access to the same educational, recreational, residential and employment opportunities available to those without Down syndrome. However, barriers still exist in some communities that prevent children, adolescents, and adults with Down syndrome from accessing the same opportunities as their typical peers.

JOIN US THURSDAY NOVEMBER 20th7:00 to 8:30pm Eastern Time via ZoomSOCIAL SECURITY INCOME: APPLYING, MAINTAINING ELIGIBIL...
11/20/2025

JOIN US THURSDAY NOVEMBER 20th
7:00 to 8:30pm Eastern Time via Zoom

SOCIAL SECURITY INCOME: APPLYING, MAINTAINING ELIGIBILITY & ACCESSING OTHER BENEFITS with Regina Brandow, Esq & Tina Behnstedt, WIP-C

Join us for an important workshop designed to help you plan and secure a strong financial future for your child with special needs. This session will walk families through practical steps for applying for Social Security Income (SSI), strategies for maintaining eligibility, and an overview of other key programs and supports that can benefit your family now and in the years ahead.

Open to ALL Families of Children with Developmental Disabilities

Register Here:
https://us02web.zoom.us/meeting/register/UDA61gDDQ3-eYjRAFFfrGQ #/registration

11/14/2025

Join us for this online workshop,What Is an Individualized Education Program (IEP)? For Families of School-Age Students (presented in English & Spanish)
¿Que es un Programa Educativo Individualizado? De Estudiantes de Edad Escolar (CSE)!

ℹ️The purpose of this workshop is for families/parents and caregivers to gain a foundational understanding of the Committee on Special Education (CSE) and the Individualized Education Program (IEP) development process, including the roles and responsibilities of the CSE, the various components of the IEP, and the transition planning process. Please bring your child's IEP if they have one, we will have blank copies available as well. We will go through every line on the IEP and explain what it means and how you can contribute!!

El propósito de este taller es que los padres, las familias y cuidadores adquieran una comprensión fundamental del Comité de Educación Especial (CSE) y el proceso de desarrollo del Programa Educativo Individualizado (IEP), incluyendo las funciones y responsabilidades del CSE, los diversos componentes del IEP y el proceso de planificación de la transición. Por favor, tenga a la mano el IEP de su hijo si lo tiene; también tendremos copias en blanco disponibles. Revisaremos cada línea del IEP y explicaremos su significado y cómo puede contribuir. Revisarán las herramientas y los recursos que pueden mejorar la participación familiar durante el proceso de desarollo del IEP.

🗓️Mark your calendars!
💬Share with friends and colleagues!
Scan QR code or click here to register: https://bit.ly/4mi4lwV
📧post-cci@liu.edu
☎️(516) 299-3812

11/14/2025

Toileting is an aspect of personal hygiene about which Katie Frank, PhD, OTR/L, the occupational therapist at the Adult Down Syndrome Center, often receives questions. Common challenges include:
🚽 difficulty with wiping after a bowel movement
⌚ forgetting to use the toilet due to distractions or not realizing they need to use the toilet
🧻 using too much or too little toilet paper

In the article linked below, Katie discusses this issue further and shares strategies for addressing these challenges.
🔗 https://adscresources.advocatehealth.com/toilet-hygiene/

11/13/2025

Join us for our November Ages & Stages: When Memory Changes: Guidance for Families of Adults with Down Syndrome hosted by Kathryn Pears, MPPM, Chief Operating Officer, National Tsk Group on Intellectual Disabilities and Dementia Practices (NTG)

🔹Wednesday, November 19, 2025
🔹1:00 PM - 2:30 PM

Register here > http://bit.ly/48JjWkL

11/13/2025

Join us for this online workshop, Co-Teaching: A Comprehensive Approach Modules 1, 2, & 3!

ℹ️ This two-part workshop addresses the following:

Module 1: Six Models of Co-Teaching
Participants will be able to:
understand co-teaching as a service delivery model.
learn the 6 models of co-teaching and how to effectively implement them.
gain skills for matching the co-teaching models to elements of their lessons.
identify a co-teaching model in a given scenario.

Module 2: Building Your Co-Teaching Team
Participants will be able to:
utilize the unique contributions of co-teaching partners to ensure high quality education and appropriate accommodations for diverse learners
identify key components of an effective co-teaching partnership
describe the three Co’s of co-teaching that contribute to an effective partnership
utilize reflection tools to continually strengthen a co-teaching partnership

Module 3: Planning for Instruction
Participants will be able to:
understand that co-planning is critical to the success of the co-teaching structure
gain knowledge of how to effectively and efficiently co-plan
describe the various types of co-planning that co-teachers might use
co-plan a lesson that uses the co-teaching models to address student needs and provide equitable access for all students

🗓️Mark your calendars!
💬Share with friends and colleagues!
Scan QR code or click here to register: https://bit.ly/3SB2rts
📧post-cci@liu.edu
☎️(516) 299-3812

Address

P. O. Box 12173
Hauppauge, NY
11788

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