Unstoppable Donnah

04/22/2024

Beautiful day with this beauty.

03/30/2024

It sucks having to not go to events because you know your kid can't join in. That's why we don't go a lot of places these days.

“Being the mom of a disabled child is not for the weak. You have to think of things no one else does. You have to plan around your child’s immobility.

How accessible is something going to be? Will I be able to use the lift on my van?

The extra stuff you have to bring. The weather. Meltdowns. And so much more.

Our world is not accessible. Not even close to it.

Our world is not fair to all. It’s not inclusive.

Today was Mary’s Easter party and I was reminded of just how exhausting, secluded, and sad this life is.

The egg hunt was switched to outside on a soaking wet playground with rubber mulch instead of in the gym or library where the balloons I brought would work.

Now it was not accessible or inclusive.

When the students all walked outside to the playground, Mary was at the back with her aide.

Once the sidewalk stopped at the rubber mulch, that’s where Mary stopped.

Her grade continued on, over the mulch, over the barrier, and into a grassy tree area far from Mary.

Her teachers pumped the students up, told them the rules of the hunt, and off they went.

But Mary sat in her chair, watching her friends scramble for eggs.

I got her out of her wheelchair and walked her through the stupid blue rubber mulch that I hate so much.

If you don’t have a child who struggles with mobility, you really have no idea how much it sucks.

The balloons blew all over the place so she struggled to grab them.

Once the egg hunt was over, we went back inside to play a game.

Once again, Mary was at the back of the class watching everyone else have fun.

Do you know how exhausting it is to be the only one to think of accessibility, inclusion, and more?

Always being the crazy mom asking 100 questions about something as simple as an egg hunt.

Begging for your child to be included. It shouldn’t be this way.

Inclusion should be the norm. The entire school should be accessible. Public places should.

The disabled deserve so much better. Include them. Help them access the world because it’s the right thing to do.

I fight for accessibility and inclusion because my daughter depends on it!”

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Shared with permission via Kalyn Pedigo

03/29/2024

Unstoppable Donnah can not go because it’s not handicap Please Share

Flashlight Easter Egg Hunt tonight! We hope to see you there!

03/16/2024

Today marks one year since surgery. It has been a long and trying year but we are so thankful to have Donnah in our lives. We still have a long road ahead of us but with God by our sides we know we will get there. Today also marks Donnah's first baseball game. She had so much fun and was smiling and cheering the whole game.

03/07/2024

Got Donnah's car seat today. She loves it. It's her "captain chair"

02/28/2024

Stopped at donnahs favorite gas station (loves in moody) and got to meet a ring tail lemur. It kept licking donnah. She loved it!

02/19/2024

11 months have passed (I know I'm 3 days late) it has been a long 11 months but I'm so blessed to have this little girl in my life. She's sassy, strong headed, and silly. I have never seen a kid like her. She's one of a kind. God has big plans for her and I know she is going to turn this world upside-down. I love you Donnah Mae.

01/17/2024

Today marks 10 months. She has had a busy month and we have gotten some answers and new medication. Maybe things will get better soon. She's a true fighter and I thank God every day for my kids.

01/11/2024

Donnah first time eating at a restaurant

01/10/2024

Nights like tonight are hard and you wish that you could just get some sleep but then you realize there is people out there wishing their kid could wake them up one more time. I'm so thankful for these 2. I am truly blessed. They are my heros. One day they will be grown and not need me to rock them back to sleep so I am just going to lay here rocking them a little longer because one day this could all be gone. Love them while you can become one second can change everything.

01/06/2024

2nd normal EEG since surgery. Hopefully they keep coming back normal. It's not easy but hopefully things are turning around. Going to start practicing walking soon.

12/17/2023

Today marks 9 months since surgery. Hopefully we will get her new AFOs in the mail soon so we can start working on walking. Today was the first time since surgery she actually picked up and was able to hold her arm up without the help from her other arm. Might not seem like a big win but it was. If she keeps trying maybe she will use that arm again. Hopefully we start OT soon and can get help using it. PT starts Tuesday. Maybe we can finally get the help we need to help her. It's been a long 9 months and it hasn't been easy but maybe we can start getting the help we need for Donnah. Thank you everyone that has/still prays for her. She's truly a fighter and so silly.

12/10/2023

A year ago today was one of the scariest days of my life. Donnah was on life support after having a bad seizure after dinner. They wouldn't let me in there with her while they was doing everything. I was in the hall crying because I thought my baby wouldn't make it. That's when we knew we had to do something, anything. It was so scary and I pray no one ever have to see their child like that. I'm so thankful I have my babies. I'm so thankful every day that I get to live this craziness.

11/25/2023

There isn't a lot of information about after care for hemispherectomy or what to expect when you/your child has the surgery. They don't tell you all the side affects or treatment, the does or don't. They don't have all the answers to your questions because they just don't know. We walk through this without knowing. It's not easy but it is the best chance at a better life for the ones that have the surgery. We have been though a lot in 8 months that we never expected. God as our leader we will follow hes path forever.

11/16/2023

Today marks 8 months since Donnah had her surgery. We are waiting on her 3rd AFO to be in. This one will go up to her hip. We found out she was anemic so started her on iron now shes back to her crazy self. She's been moving the right side more this week then she has since surgery. It has been a wild ride but this girl is STRONG! She is showing that God can make ANYTHING happen. I'm so blessed to be seeing God's work first hand. 🙏

11/08/2023

Please everyone say a prayer for donnah. We are resetting the seizure clock tonight. She just had 5 focal seizures. She is now back to sleep and we pray they stop and don't turn into a big seizure.

11/06/2023

We really need help and prayers right now.

Hi my name Debra my Daughter had a wreck October 31 she was drive a special van for granddau… Debra Bright needs your support for Robin get a van for Donnah

10/17/2023

7 months......... wow...... today marks 7 months since surgery. A lot has happened in these 7 months. A lot of high highs and low lows. I never thought we would make it to where we are today. This little girl is a fighter. One day she will rule her world. She has so many people praying for her and I wanted to say thank you for everything. All the prayers, tears, trials, and winging it. She's a fighter and one day she will be the bravest warrior in God's army. I love you Donnah Mae.

09/25/2023

Three years ago today Donnah had her first seizure. We was so scared. Waking up at 5:30 a.m to your baby seizing is so scary. I will never forget that day. It has been a hard and scary road but we are starting to see a little light. God has big plans for her. It's because of everyone's prayers that my baby girl is still here. She's a sassy, head strong fighter. Thank you everyone that has prayed for her in these 3 years. Yall saved her life. God heard all the prayers and answered. Thank you everyone. You will never know how thankful we are for the prayer and good wishes.

09/23/2023

The EEG showed no seizures. Thank you God. They said if the next one is clear then we can start coming off seizure meds. So hopefully this time next year no more seizures or seizure med. Thank you God for EVERYTHING.

09/17/2023

Kinda late post but today marks 6 months. Donnah has been thru so so much. We start casting her leg Sept 29. Hopefully she will be walking by Thanksgiving if we are lucky. Sometimes it feels like no one can help us because no one has dealt with a child like her. This path we are on is full of uncertainty but I am going to keep trying my best to get her thru it. Please keep praying for her and pray that they can give us some answers after her EEG next week. It's not easy but we will NEVER stop fighting this fight together. It takes a village and thankfully we have a great one.

08/23/2023

So Donnah went to a pediatrician and the last time we were there Robin mentioned about her arm, not moving it now so the day they decided to x-ray come to find out she has a fracture on her bad arm. Please keep her in your prayers.

08/18/2023

Donnah got her TinySuperheroes cape today. She has been thru so much. God is great and hopefully today will be a great day for her.

08/16/2023

Today marks 5 months. This past month has been horrible. Donnah is in need of all the prayers she can get. We are still trying to navigate this road that we are on. God is great and has big plans for Donnah.

08/07/2023

We signed donnah up for a cape.

08/05/2023

Donnah has had a very difficult week. We are asking everyone to please pray for her.

07/18/2023

With Donnah's birthday being 10 days away. I wanted to ask everyone if you can to please send her a card. She has been through a LOT this year and loves to open mail. You can send it to 5959 highway 46 heflin AL 36264 it would make her birthday so special. And please if you can share this so we can get Donnah a lot of cards for her 4th birthday. Thank you and God is great.

07/18/2023

I can't believe next Friday (July 28th) Donnah will be 4 years old. Wow this little girl has been thru a lot in her life. God is good and is watching over her.

07/16/2023

Wow. 4 months since surgery. It has been a journey for sure. A lot of ups and downs and hard decisions. Donnah is showing just how strong she is. She truly embrace the two women she was named after. Thank you to everyone that has prayed for her and continued prayers. God has great plans for her. To God be the glory. We love you all and you will never know how thankful we are for the prayers and God's healing hands.

06/22/2023

Donnah got her 1st hair cut today. We decided to get it cut short because she saids it makes her head hurt. She loves it and looks so grown. I love my little fighter and God has big plans for her.