Kohen Kicks Cancer

Kohen Kicks Cancer Neuroblastoma Warrior ๐Ÿ’œ๐ŸŽ—๐Ÿ’œ

โ€ผ๏ธ๐ŸŽ—๐ŸŽ—๐ŸŽ—โ€ผ๏ธ
10/01/2025

โ€ผ๏ธ๐ŸŽ—๐ŸŽ—๐ŸŽ—โ€ผ๏ธ

Today, Rally Kids Ailani, Carolyn, and Brecklynn stood with other childhood cancer fighters and survivors at the White House as President Donald J. Trump signed an executive order doubling funding for the Childhood Cancer Data Initiative from $50M to $100M.

Weโ€™re proud to see Rallyโ€™s voice included and progress being made for better treatments and cures for kids fighting cancer.

09/02/2025
It's a BIG day for our fellow ๐ŸŽ— warrior! McLendon family, we are praying for you!!
08/13/2025

It's a BIG day for our fellow ๐ŸŽ— warrior! McLendon family, we are praying for you!!

7:45AM: They just took him back ๐Ÿ™๐Ÿผ

UPDATE 1:10PM: JUST FINISHED WITH THE LEFT KIDNEY, STARTING ON THE RIGHT!

UPDATE 1:05 PM:
We are still working and Jackson is doing great. We will update in an hour if we are still working.

UPDATE AT 11:15AM:
They are still working on his left kidney and said he Is still doing great.

UPDATE AT 10:12AM:
We are still working and Jackson is doing great. We will update in an hour if we are still working.

UPDATE AT 9:30AM: Theyโ€™ve got the stints placed and starting to begin the nephrectomy now. Heโ€™s still doing good.

UPDATE AT 9:02AM:
We have started the procedure and Jackson is doing well. We will update in an hour if we are still working.

Scan results were clear and the nodule in the soft tissue near her L2 vertebrae is considered unchanged and stable ๐Ÿ™Œ๐Ÿฅน๐Ÿ™ŒKo...
07/11/2025

Scan results were clear and the nodule in the soft tissue near her L2 vertebrae is considered unchanged and stable ๐Ÿ™Œ๐Ÿฅน๐Ÿ™Œ

Kohen's oncologist wants to continue with scans every 6 months vs going yearly due to the concern of little growth from prior scans in the past to be cautious.

For reference, the measurements below show how much the residual nodule has increased in size since we chose to end treatment in May of 2023. This time, it has actually shown no growth since her last 6 month scan from January of 2025. I pray for no more growth and that she continues to receive a healthy report overall. ๐Ÿ™

โ€ขJune 2023- 0.6 x 1.5 x 1.2 cm.

โ€ขJuly 2025- 1.8 x 2.9 x 2.9 cm.

It's scan time! ๐Ÿฉป CT & whole body MIBG. โ€ขThey put her to sleep in CT around 12:55. She requested no pre-med this time an...
07/10/2025

It's scan time! ๐Ÿฉป CT & whole body MIBG.

โ€ขThey put her to sleep in CT around 12:55.
She requested no pre-med this time and wanted gas mask only. She was super anxious as usual but tried so hard to be as brave as she possibly could.

๐ŸŽ€3:15pm- she has arrived in recovery and we should go back to see her soon!

When we first checked in, she gave me an unexpected sweet smile when I asked for a picture ๐Ÿ“ธ ๐Ÿ˜Š thats usually a big no for her here on scan week!

I wanted to thank you all so much for keeping our princess in your thoughts and prayers! We feel them ๐Ÿ™

I'll update again once we receive results!

โœจ๏ธ Today starts day 1/5 of potassium Iodide to protect her thyroid and our tiny tot is so upset about it. ๐Ÿฅบ โœจ๏ธTomorrow i...
07/08/2025

โœจ๏ธ Today starts day 1/5 of potassium Iodide to protect her thyroid and our tiny tot is so upset about it. ๐Ÿฅบ

โœจ๏ธTomorrow is lab and nuclear medicine injection day.

โœจ๏ธThursday is scan day.

โ€ขPlease be in prayer for calm nerves, clear and stable scan results.

06/25/2025
06/03/2025
Little Sluggers ๐Ÿฉท๐Ÿ’š๐Ÿฉท
05/16/2025

Little Sluggers ๐Ÿฉท๐Ÿ’š๐Ÿฉท

AshNOakDesign on Etsy has so generously added a Kohen ๐ŸŽ— Strong T-shirt design option to their item list and โ€ขI LOVE IT!โ€ข...
05/12/2025

AshNOakDesign on Etsy has so generously added a Kohen ๐ŸŽ— Strong T-shirt design option to their item list and โ€ขI LOVE IT!โ€ข

So in honor of Kohen's upcoming 6 month scans in July, (9th & 10th) hurry and snag you one!! Comfort color tees and fast shipping! ๐Ÿ’œ

Link posted below & in the comments โฌ‡๏ธ

https://www.etsy.com/listing/4303828852/comfort-colors-cancer-awareness-kohen

Our local revenue department finally has Childhood Cancer Research plates in stock and I'm just so excited! The Childhoo...
05/02/2025

Our local revenue department finally has Childhood Cancer Research plates in stock and I'm just so excited!

The Childhood Cancer Research Fund receives $25.00 for each plate issued.
This is just one of the many ways to help support and raise awareness for Childhood Cancer Research if you're able and I assure you that many families like ours would be so grateful and happy to see these plates while we are out and about!! ๐ŸŽ—๐ŸฅŠ๐ŸฅŠ๐ŸŽ—




Happy Sunday ๐Ÿ’›
03/24/2025

Happy Sunday ๐Ÿ’›

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Helena, AR

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