Lauren's Journey: Conquering Arteriovenous Malformation

10/20/2025

An AVM can be silent — until it isn’t.
About half of people with a arteriovenous malformation only discover it after it ruptures — often causing a life-threatening brain hemorrhage or stroke.

That’s why awareness matters.
When families know the signs — persistent headaches, seizures, weakness, or sudden changes in speech or vision — they can push for answers that might save a life.

This October, during AVM Awareness Month, we stand with survivors, caregivers, and the families whose stories remind us why awareness saves lives.

Help us make sure no one faces this diagnosis alone.
💜 Share this post.
💜 Start a conversation.
💜 Learn more at www.avmalliance.org
Support During Brazos Valley Gives 2025: www.brazosvalleygives.org/organization/AVMAlliance
— AVM Alliance | Stroke Has No Age Limit™

10/18/2025

10/14/2025

Registration is now open for the AVM Research Summit! 🧠

Hosted by Dr. Michael Lawton and presented by TAAF, this virtual event on October 20, 6–8 PM PST brings together top AVM researchers to share the latest advances, challenges, and breakthroughs.

Join us for expert presentations, a roundtable discussion: “AVM Research in Motion: What’s Stuck—and What’s Next?”, and extended Q&A—explained clearly for patients, families, and the wider community.

📌 Registration required: bit.ly/AVMsummit

10/11/2025

💚 AVM symptoms can look different for everyone. Some experience bleeding in the brain, while others have headaches, seizures, or difficulty with speech and movement — and some have no symptoms at all. 

If something feels off, speak up. Early detection can make all the difference.

10/07/2025

💎 Rare ≠ Invisible. An AVM (arteriovenous malformation) is a tangle of blood vessels that disrupts normal blood flow in the brain — affecting about 18 in every 100,000 people.

That’s rare, but not none. And for the people and families it touches, it changes everything.

💚 This week, we begin exploring the Facets of Rare — starting with awareness that informs, connects, and saves lives.

10/04/2025

Marilyn Manson concert tonight at the Pearl

10/03/2025

October is AVM Awareness Month.
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What’s an AVM? Read this ⬇️
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One of the most frequent questions I hear when discussing is “A what?!”
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I frequently describe what an is...to regular people and even to staff in the ER (yes, that’s borderline terrifying).
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Interesting tidbit: AVM affects 18 in 100,000....making it a rare disease. They affect less than 1% of the population. It’s a pretty exclusive club that we never would’ve joined willingly.
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Check out this graphic put together by The Aneurysm and AVM Foundation about what an AVM is. Then head to The Aneurysm and AVM Foundation to make a donation towards AVM research.
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Give it a share and help us raise .
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10/01/2025

October is AVM Awareness Month

09/28/2025

Adulting this morning with coffee and toast.

09/06/2025

Some dangers hide in shadows, unseen and silent.
But they are real.
They are heavy.
They are life-changing.

For kids with brain vessel disease, aneurysms are more than a medical term — they are a daily reality. And yet, in the midst of it all, love and hope still shine. 🕯️

September is Aneurysm Awareness Month — but for our kids, awareness is every day.

— AVM Alliance 🦋🐷
Stroke Has No Age Limit™

08/25/2025

Big news: Lauren started college today 🥳

I don't have a first day of college pic so here's a first day of preschool pic instead.

06/18/2025

Brain Injury more than you know..