Lauren's Journey: Conquering Arteriovenous Malformation

11/23/2025

11/02/2025

Lolo wendigo

10/30/2025

10/28/2025

When it comes to TAAF’s iconic phrase, your words say it best — gratitude shared, encouragement given, and the deep relief of being seen. 💚

10/20/2025

An AVM can be silent — until it isn’t.
About half of people with a arteriovenous malformation only discover it after it ruptures — often causing a life-threatening brain hemorrhage or stroke.

That’s why awareness matters.
When families know the signs — persistent headaches, seizures, weakness, or sudden changes in speech or vision — they can push for answers that might save a life.

This October, during AVM Awareness Month, we stand with survivors, caregivers, and the families whose stories remind us why awareness saves lives.

Help us make sure no one faces this diagnosis alone.
💜 Share this post.
💜 Start a conversation.
💜 Learn more at www.avmalliance.org
Support During Brazos Valley Gives 2025: www.brazosvalleygives.org/organization/AVMAlliance
— AVM Alliance | Stroke Has No Age Limit™

10/18/2025

10/14/2025

Registration is now open for the AVM Research Summit! 🧠

Hosted by Dr. Michael Lawton and presented by TAAF, this virtual event on October 20, 6–8 PM PST brings together top AVM researchers to share the latest advances, challenges, and breakthroughs.

Join us for expert presentations, a roundtable discussion: “AVM Research in Motion: What’s Stuck—and What’s Next?”, and extended Q&A—explained clearly for patients, families, and the wider community.

📌 Registration required: bit.ly/AVMsummit

10/11/2025

💚 AVM symptoms can look different for everyone. Some experience bleeding in the brain, while others have headaches, seizures, or difficulty with speech and movement — and some have no symptoms at all. 

If something feels off, speak up. Early detection can make all the difference.

10/07/2025

💎 Rare ≠ Invisible. An AVM (arteriovenous malformation) is a tangle of blood vessels that disrupts normal blood flow in the brain — affecting about 18 in every 100,000 people.

That’s rare, but not none. And for the people and families it touches, it changes everything.

💚 This week, we begin exploring the Facets of Rare — starting with awareness that informs, connects, and saves lives.

10/04/2025

Marilyn Manson concert tonight at the Pearl