Cholangiocarcinoma Foundation

11/01/2025

🏃‍♂️💚 We’re so thankful to Anton Semelroth Jr., who ran the Marine Corps Marathon on October 26 in honor of his grandpa, Dick, raising $3,490 for the Cholangiocarcinoma Foundation, helping support patients and families affected by this disease.

“I am grateful to have had the honor of running for both my grandpa and the Cholangiocarcinoma Foundation… Though my race has come to an end, Děda’s fight continues—and just as he was there for me on race day, I’ll be there for him every step of the way.”

Thank you, Anton, for honoring your grandfather and helping raise awareness and hope for those affected by cholangiocarcinoma. https://give.cholangiocarcinoma.org/fundraiser/6489752.

10/31/2025

🕸️ 🎃 Wishing you a Happy Halloween! We’re batty about this community! 🦇

10/30/2025

📢 Research Opportunity for Adults Living with Biliary Tract Cancer (BTC)

Evolve Fieldwork Ltd., an independent research agency, invites adults with BTC to participate in a qualitative research study. The study aims to better understand patients' experiences following their diagnosis.

Study Details
•60-minute online/telephone interview
•15-minute screening call beforehand to confirm eligibility

👤 Eligibility Criteria
✅ Age 18+
✅ Diagnosed with BTC
✅ No other cancer diagnoses before BTC
✅ Currently living in & receiving treatment in the USA or UK

Incentive (for completed interview):
🇺🇸 $122 – USA residents
🇬🇧 £77 – UK residents

If you meet the criteria and would like to take part, please complete this short opt-in form: https://curecca.link/BTCstudy
📧 For any questions, contact Pascha JvRensburg: pascha.rensburg@evolve-fieldwork.com

10/28/2025

📱 Sign up for free expert grief support — delivered via text.

Help Texts provides personalized tips, resources, and gentle guidance to support you as you grieve. Messages are tailored to your relationship, type of loss, and more.

Getting support is as easy as getting a text — signup takes just five minutes, and texts begin right away.

👉 Sign up today at helptexts.com/CCFgrief.

10/28/2025

Join us for our next CCF Webinar, Weaponizing White Blood Cells to Fight Cholangiocarcinoma, presented by Gregory B. Lesinski, PhD, MPH of Emory University.

🗓 Thursday, October 30, 2025, at 4:00 PM EDT

Learn about innovative research using white blood cells—including CAR T cells and tumor-infiltrating lymphocytes—as potential treatment approaches for cholangiocarcinoma.

🔬 Sponsored by the Bloom Family in memory of Allan Bloom.
🔗 Visit https://curecca.link/oct30 to register.

10/27/2025

💚 Honoring Jim’s Memory 💚

Susan Camberis hosted her first annual “Smoke Out Cholangiocarcinoma” at Mission BBQ in memory of her husband, Jim. Friends and family came together to celebrate his life, enjoy his favorite food, and raise $2,838.81 to support others impacted by cholangiocarcinoma.

Thank you to everyone who joined and made this day so special!

💻 Learn more: https://give.cholangiocarcinoma.org/fundraiser/6718190

10/26/2025

🔬 Routine prenatal blood tests may reveal more than you expect. For Sara Teichholtz, a test meant to check her baby’s health led to an unexpected cholangiocarcinoma diagnosis. Thanks to early detection through the test, she received timely treatment and is now NED.

This story highlights the potential of innovative testing to catch cholangiocarcinoma earlier, giving hope that more people in our community could benefit from timely detection and care.

This story underscores one powerful message: innovative research and early detection strategies can make a difference. We invite you to read more and share so that others know why this kind of progress matters.

Learn how noninvasive prenatal tests designed to screen for genetic abnormalities in the fetus may detect the presence of cancer in pregnant women.

10/25/2025

✨ CARE Events are happening across the country! ✨
Connect, advocate, and learn with your local CARE Team — supporting cholangiocarcinoma patients, caregivers, and families through Advocacy, Research, and Education.

📍 New England Virtual Get-Together – “Nutrition Doesn’t Have to Be Scary”
🗓️ Oct. 28 | 💻 Virtual

📍 Houston Memorial Park Meet Up
🗓️ Nov. 8 | 🤝 In-person connection & community

📍 Washington, DC/Baltimore Inaugural CARE Event
🗓️ Nov. 15 | 💚 In-person connection & community

Learn more and register at https://curecca.link/25careevents.

10/24/2025

"My mentor has been such a blessing to me. Always there for me at just the right times. Thank you for this program. It has helped me navigate my cancer so much better.”

CholangioConnect connects anyone touched by cholangiocarcinoma: patients, caregivers, and even those who have lost a loved one with a mentor who has personal experience with the disease. This includes our bereaved mentor program, where mentors who have navigated loss provide support, guidance, and understanding.

✨ Request a mentor today and get matched with someone who can support you every step of the way.

🔗 curecca.link/cc.

10/23/2025

💚 Community Champions: Dorian & Jade 💚

Meet Dorian and Jade from The Woodlands, TX, two legacy caregivers, ministers, counselors, and mentors who use their faith and experience to lift others in the cholangiocarcinoma community. Their story reminds us that you don’t need to know everything to make a difference — sometimes, all it takes is the ability to listen.

💌 Interested in giving back? Become a mentor and support someone navigating their journey: curecca.link/cc.

10/22/2025

💚 Grief looks different for everyone — and that’s okay.

At CCF, we recognize that love and legacy aren’t measured by time, and that healing can take many small, meaningful forms. For families facing loss, finding ways to support children and young adults through grief can make all the difference.

That’s why we created the Grief Care Kit Project — a collection of thoughtful, practical resources designed to help families navigate loss with compassion and understanding.

Thanks to the generous support of AstraZeneca, we’re able to make these kits available free of charge to families in need.

If you know a grieving child or young adult who could benefit, request a free Grief Care Kit here: https://curecca.link/GriefToolKit.

10/22/2025

💻 CCF Webinar Recap: Managing Side Effects of FGFR Inhibitors

Did you miss our latest webinar? Watch the recording featuring Dr. Lipika Goyal from Stanford University. She reviews the most common side effects of FGFR inhibitors and shares practical, evidence-based strategies for managing them.

📺 Watch the full recording on YouTube.

We reviewed the side effects of FGFR inhibitors and the supportive care treatments to help manage them.Sponsored by TaihoRecorded on October 21, 2025