Cholangiocarcinoma Foundation

03/05/2026

Sharing your cholangiocarcinoma story might seem intimidating, but our OneClick platform allows you to contact your representatives from wherever you live with just a few simple steps. Cancer research funding wins in Congress happen because of all of our voices, together.

Head to the link in our bio or visit curecca.link/oneclickpolitics to share your story today!

Let us know what story you shared and who you contacted today in the comments!

03/05/2026

While Cholangiocarcinoma Awareness Month has come to a close, we’re still receiving inspiring updates from communities that helped shine a light on this rare cancer throughout February.

In Lower Alabama, the RSA Towers in both Mobile and Montgomery lit up green on World Cholangiocarcinoma Day, raising awareness of cholangiocarcinoma and the need for ongoing awareness.

Fred and Jill Neubauer also joined Carrie McNair at the City of Mobile City Council meeting on February 24, where the new mayor proclaimed February as Cholangiocarcinoma Awareness Month.

A special thank you to Carrie for her dedication, sparked by her aunt’s journey with cholangiocarcinoma, and to everyone who helped make these awareness efforts possible. Your advocacy makes a meaningful difference for patients, caregivers, and families in the cholangiocarcinoma community. 💚

03/04/2026

Research saved Melinda's life sixteen years ago, and it's still more important than ever—and we have an opportunity to help push it forward.

Last year, 98 donors came together, contributing gifts ranging from $10 to over $10,000 to support our first-ever Community-Funded Research Fellowship. Join us by making a gift today in support of this year’s Community-Funded Fellowship. Every dollar helps fund a year of cholangiocarcinoma research.

You can give here: curecca.link/communityfellowship26

03/03/2026

Our Annual Conference is on the horizon! We’ll be gathering May 1-3, 2026, in Salt Lake City. It’s an incredible opportunity for everyone in the CCA community to come together and find support 💚

To register, head to the link in our bio or curecca.link/ccfac-26

03/03/2026

Our Founder and CEO, Stacie, interviewed with Dr. Sushmita Sen for The Invisibles Project on transforming grief into hope and impact. So much of the Cholangiocarcinoma Foundation is built on that idea, and the more of us working together, the stronger we become and the better we can find answers that patients desperately need.

Listen to the episode today at Spotify: https://open.spotify.com/episode/7bBANGs8BkxdE9OBVmAyGF?si=wU9QkoesS9uMVsaIY1UFfg or Apple Podcasts:

Careers Podcast · The Invisibles Project, a limited series hosted by Dr. Sushmita Sen, explores the unseen and intangible forces that shape our lives and drive meaningful change. The series celebrates unseen contributi…

03/02/2026

💚 March Support Groups | Join Us

• Patient Support Group: March 6 & March 17 at 4:00pm ET
• Caregiver Support Group: March 20 at 4:00pm ET
• Bereaved Support Group: March 3 at 4:30pm ET & March 19 at 4:30pm ET
• Spanish Support Group: March 12 at 2:30pm ET
• Young Adult (20s–40s) Patient Group: March 25 at 7:00pm ET

Wherever you are in your journey, you don’t have to navigate it alone. 💚 Register today at curecca.link/supportgroups.

03/01/2026

Sixteen years ago, Melinda Bachini walked into the National Cancer Institute as “Patient 3737.”

"While not being called by my name may be impersonal, this number was a lifeline. It represented my place in a clinical trial—my last chance after standard treatments had failed."

Sixteen years later, Melinda is enjoying life as a mother, wife, grandmother, patient advocate, and living proof of the life-changing power of clinical trials. 💚

Melinda's journey from Patient 3737 to survivor to advocate is a testament to what’s possible when patients and scientists work together. Patients aren’t just getting access to potentially effective treatments; they are leading the way in groundbreaking discoveries.

Read more at:

The Life-Changing Power of Clinical Trials

02/28/2026

Today is , an opportunity to highlight the importance of standing with those facing diseases that are historically underfunded and under-researched, like cholangiocarcinoma. While rare, we are not letting this cancer be forgotten. We know research is the key to unlocking better treatments and hope.

We’re proud to share that we are more than halfway in funding this year’s Hope in Research: Community-Funded Research Fellowship. 💚 That progress is because of this community.

💡 Through the Hope in Research: Community-Funded Research Fellowship, our dedicated community can directly fuel groundbreaking cholangiocarcinoma research. Every donation, every shared story, and every show of support brings us closer to new discoveries.

🙌 Join us in honoring Rare Disease Day by supporting community-funded research because together, we turn hope into action.

🔬 Learn more and contribute at https://curecca.link/communityfellowship26.

02/27/2026

As Cholangiocarcinoma Awareness Month comes to a close, we want to express our heartfelt gratitude for the incredible support and dedication shown by our community. 💚 Together, we've illuminated landmarks, shared powerful stories, and spread awareness across the globe about .

We aim to ensure that the momentum we've built this month continues throughout the year. The strength of our collective efforts as a community provides hope by advancing research to improve treatments and, ultimately, find a cure.

Each effort to raise awareness brings us closer to a world free of cholangiocarcinoma. Thank you to our Gold Sponsors, AstraZeneca, and Jazz Pharmaceuticals, our Bronze Sponsors, Merck, and Taiho Oncology, and our 20th Anniversary Partner, Incyte for supporting Cholangiocarcinoma Awareness Month.

02/26/2026

Awareness Month may be coming to an end this year, but support for our community is steadfast.

Community is the heartbeat of all we do at CCF. We have year-round programs to support researchers, caregivers, and patients, including fellowship opportunities, symposium and CARE team meetups, support groups, mentorship, additional resources, and our amazing Annual Conference, which is coming up May 1-3 in Salt Lake City.

Head to curecca.org or the link in our bio to explore, learn, and get connected 💚

02/26/2026

Spotted in Canton, Ohio 💚

In honor of her husband Bobby, Katie Courtney placed this billboard to honor his memory and raise awareness for cholangiocarcinoma during Cholangiocarcinoma Awareness Month.

Located east of Harmont Ave in Canton, this message is displayed every 3–4 minutes throughout the month.

Through Bobby’s Ducks Katie raises funds to support the Cholangiocarcinoma Foundation and the patients and families navigating this disease today.

We are deeply grateful for advocates like Katie who honor their loved ones by helping others feel seen and supported. 💚

02/26/2026

📣 Your Feedback Is Needed 💚

We invite you to participate in our survey to evaluate the Cholangiocarcinoma Foundation Advocacy programming.

Your input helps guide how we invest in programs that matter most to you and our community.

The survey is confidential, voluntary, and takes about 30 minutes to complete. Please respond by Thursday, March 5.

As a thank you, you may opt in to a raffle for a $100 gift card.

Your voice truly makes a difference.

Take the survey today at https://curecca.link/advocacysurvey.