AudreyStrong

AudreyStrong Audrey was diagnosed with
Severe Aplastic Anemia (Complete Bone Marrow Failure)in December of 2020.

Thanks so much to all who sign up! You’ll save someone’s life just like so many other donors saved Audrey’s ❤️❤️Click on...
02/26/2024

Thanks so much to all who sign up! You’ll save someone’s life just like so many other donors saved Audrey’s ❤️❤️

Click on redcrossblood.org and enter NCLTX (all caps) in top right “Find a blood drive” to sign up for a time on 3/29- thanks!!

Day 56 post transplant:))We had thought we’d only be going to the hospital on Tuesdays now but Audrey’s level of immunos...
02/23/2024

Day 56 post transplant:))

We had thought we’d only be going to the hospital on Tuesdays now but Audrey’s level of immunosuppressant drug, Tacrolimus, was high on Tuesday so they reduced her level and we went back today. Level was much better! It’s a tough balance of high enough that she doesn’t get GVHD (graft vs host disease) but not too high that it’s toxic to her kidneys. We were also a little concerned that her platelet count had gone from 275,000 last week to 186,000 on Tuesday (but both numbers are in normal range). I think maybe it was her bone marrow suppressed from the high Tacrolimus(?). Platelets were 174,000 today- so not much more of a drop. Pray her levels don’t drop more- the doctor we saw wasn’t concerned at all, so that’s good!!

Please continue to pray for our friend, Pike. He has had 2 rounds of the ECP but his GVHD in his gastrointestinal system is still really bad! He’ll continue the ECP treatments next week and hopefully start to see improvement! I know they want to go home so badly!

Audrey and I enjoyed a 7 Mile latte and hot cocoa on the porch by ourselves at 7 Mile in Lewisville:). Felt nice ;))

I wanted to share that our friend, Brandon Terwege, is participating in an Iron Man Race April 27, 2024 and he asked if ...
02/20/2024

I wanted to share that our friend, Brandon Terwege, is participating in an Iron Man Race April 27, 2024 and he asked if he could raise money in honor of Audrey! Donations will go to aamds.org which is an organization that provides support, education and research for Aplastic Anemia/Myleodysplastic Syndrome and other related diseases.

Thank you so much Brandon and good luck on 4/27!!!!

https://gofund.me/f00825a1

Hello! My name is Brandon Terwege and on April 27th I will be participating in … Brandon Terwege needs your support for Brandon's Ironman Donations for AA-MDS

Thank you so so much to National Charity League Inc., Legacy Highland Village Chapter and Marcus Marquettes for setting ...
02/10/2024

Thank you so so much to National Charity League Inc., Legacy Highland Village Chapter and Marcus Marquettes for setting up a blood drive in honor of Audrey Gronberg!!!

I just didn’t realize before Audrey’s diagnosis how much blood donations are needed! Audrey would not be here today without multiple (so many) blood transfusions. Every time you donate, you are saving someone’s life! The number of blood donors in the US hit a 20 year all-time low in January- this is not ok. People need us!

Please go to:

RedCrossBlood.org and enter NCLTX to sign up 3/29/24 beteeen 9am-2pm (or scan QR code on picture)❤️

Thank you so much NCL Highland Village and Marcus Marquettes!!

Audrey had a great check-up yesterday!  We’ve been home from the hospital since last Monday (1/22);)) Her last check in ...
01/31/2024

Audrey had a great check-up yesterday! We’ve been home from the hospital since last Monday (1/22);)) Her last check in clinic was last Friday, so it was the longest stretch we had gone checking her counts in a while (Friday-Tuesday). So we were so excited to see good counts! Her platelets are up to 89,000! Dr said she is good to drive so she is enjoying some freedom just driving around the neighborhood:)) Her red blood cells/Hemoglobin were down just a little since Friday- but reds are the last to come up after transplant. She still feels really winded whenever she walks around/goes up stairs still, but once those red blood cells are up, that will get better:) We’re all enjoying this beautiful weather and praising God every day!! Thanks for your prayers!

Wbc: 2.6

anc:: 1.61

Hb: 7.4

platelets 89,000!!!

Oh Happy Day!!!! Day +21 Audrey’s wbc went from .6 to 1.3  and her neutrophils went from .44 to 1.04!!!!! They won’t off...
01/20/2024

Oh Happy Day!!!! Day +21

Audrey’s wbc went from .6 to 1.3 and her neutrophils went from .44 to 1.04!!!!! They won’t officially say she is engrafted until anc is over .5 for 3 days but pretty much the Dr. this morning said she was engrafted! :)). They will probably stop GCSF tomorrow and if she holds Sunday, we could go home Monday or Tuesday! Yesterday was so tough still not knowing and I felt like God was really wanting me to surrender and let my heart go to the place where I said I would love and trust him “truly no matter what” (which is downright impossible for any parent to utter/even let your mind go there). And stuck in my head was this song all night:

Turn your eyes upon Jesus,
Look full in His wonderful face,
And the things of earth will grow strangely dim,
In the light of His glory and grace.❤️

So grateful for the counts this morning- Audrey was really embarrassed at my dance party at the news:) (Full on cabbage patch and running man around the hospital room;))



wbc: 1.3

anc:1.04!!

Hgb: 7.7 (got rbc’s yesterday)

platelets: 23

Day +17Audrey’s ANC (neutrophils) are up again and her Hemoglobin is up too!  We are so so excited and grateful!! Yester...
01/15/2024

Day +17

Audrey’s ANC (neutrophils) are up again and her Hemoglobin is up too!
We are so so excited and grateful!! Yesterday was tough (but a relief as well) because Audrey decided to shave off any remaining hair. It was thinning so much and was so messy and itchy- I think it was a relief for her (but still so tough for a teenage girl). But man- she looks beautiful and her inner beauty makes her even prettier ❤️. Erik decided he could lose a few gray hairs and let Audrey shave his head too! (so thankful for this amazing man I married and the incredible dad he is!). Hoping this next week we continue to see counts rise and officially say she is engrafted with Morgan’s cells (my mind is blown!)

Thank you all for your prayers!!

Ecclesiastes 3:11 He has made everything beautiful in its time.

WBC - 0.1
ANC - 0.12
Hgb - 9.3
Platelets - 16

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Highland Village, TX

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