Fund Fscdr SickleCell

09/27/2024

Warriors have been on my mind all night. As I prepare for my 6 am morning prayer with my prayer team, I wanted to share this prayer with all of you:

Heavenly Father,

We come to You with hearts full of love, lifting up the sickle cell warriors, Your beloved children, who face both remarkable advancements and profound challenges in their care. We pray they remain encouraged, knowing that no setback can diminish their worth in Your eyes. Give them the strength to persevere through every trial, and bless them with the resilience they need to continue this journey.

Lord, we ask You to cover them with Your protection and grant them miraculous breakthrough, miracles that propel treatments, cures, and better care for sickle cell disease. Touch the hearts and hands of the caregivers, the families who begin this journey at birth and continue it throughout their lives. Let them be filled with compassion, patience, and the assurance that they are doing Your work by caring for these warriors. Keep them from growing weary, and fill them with Your strength and grace.

Guide me, Lord, as we pursue this mission in Florida, something that is so needed yet so rare across the United States. Give me the wisdom, clarity, and boldness to serve these warriors in a way that honors Your will and brings hope to others.

We also remember the families who have lost loved ones to this disease. Please, Father, ease their suffering and heal their broken hearts. We ask for Your comfort to surround them, and for the light of their memories to live on through the work that is being done to bring change.

Father, sickle cell disease is the most common genetic disorder in the world, yet it suffers from the fewest resources and compassion. We know we can do better, and we seek Your guidance to help us rise to this challenge. Let the WORLD open its heart to the sickle cell warriors, and may we bring justice, care, and healing to them.

In Jesus’ name, we pray.

But they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint.
– Isaiah 40:31

With undying love ❣️

01/19/2024

Sharing a proud moment.

Journal Rebrand and Launch

———-January 29, 2024—————
For the past 18 years, our foundation has been diligently publishing the abstracts of our annual symposium.

It's with great excitement that we announce the rebranding of our publication to the "Journal of Sickle Cell Disease," which will now be published by the esteemed Oxford University Press, a division of Oxford University, located in London, UK.

This publication stands as the sole journal dedicated to sickle cell disease globally, marking a significant milestone.

Our Foundation remains committed to elevating the awareness and significance of sickle cell disease on an international stage.

For more information, please visit

MISSION: The Journal of Sickle Cell Disease (JSCD) is a leading peer-reviewed, open access journal focusing on the realms of basic, translational, and clinical sciences associated with sickle cell disease. Our primary mission is to publish innovative research findings, fostering an interdisciplinary...

09/08/2023

Happy National Sickle Cell Disease Awareness Month from Gershwin Blyden, MD, PhD, Medical Director, Foundation For Sickle Cell Disease Research

Affectionately known as Dr. B.

Foundation for Sickle Cell Disease Research

08/20/2018

Save the Date!!

06/24/2018

Gay Hendricks, Ft. Lauderdale, Florida, September 7, 2018 - https://mailchi.mp/fscdr.org/gay-hendricks-ft-lauderdale-florida-september-7-2018

03/16/2018

12th Annual SCD Symposium - Exhibitor Spot and Corporate Sponsorship -

09/12/2017

Good morning Warriors. The FSCDR is waiting for power to resume medical services at 3858 Sheridan Street, Hollywood, FL. 33021. I assessed the center yesterday. The structure is fine but there was debris everywhere. As soon as cleanup has been completed and power restored, we will resume our service to you. Please stay in touch via Klara.

We are also working with our partners to setup a relief fund as we know there will be a tremendous need for our patients and others with SCD after Irma.

We welcome donations. You can donate at FSCDR.org. Donations are tax deductible.

The Foundation for Sickle Cell Disease Research continues to pray for your well-being and safety.

Love,
Dr. Bronté
954-397-3251

Sickle Cell Disease, Registry, Clinical Research, Care Network, Hemoglobinopathy, Sickle Cell Trait, Medicare, Medicaid

09/09/2017

FSCDR is assisting patients during IRMA by:
1. Working with public pharmacy to reduce medication costs from $63 to $12.
2. Receiving patient's travel location to safer grounds
3. Hospitalization updates
4. Monitoring our clinical trial patients

What can you do?
-Activate Klara
-Join FSCDR's care team - we work with your current providers and will assist with care coordination, wrap around services and other needs - throughout the US

Please be safe and secure!

Sign up at fscdr.org

https://fscdr.org

09/08/2017

Emergency notice!

FSCDR patients:

1. Activate your Klara account. Klara is our communication command station. The entire staff will receive your HIPAA compliant message.

2. Wear your MedicAlert bracelet/necklace. It has your important medical information. The MedicAlert clinical staff is available 24/7 and can assist first responders should you need them.

You can join the care team at FSCDR via Klara. Visit us at FSCDR.org. Any individual in the US with Sickle Cell Disease can participate.

We recognize our patients in South Florida need more during times of disaster. You need emergency phone numbers, evacuation information and priority attention if you go into a crisis. This is what we provide.Imagine more of our standalone centers across the nation: sickle cell patients receiving qua...

07/10/2017

Join Brand Ambassador Chef Jerome Brown
Start the Healing..Donate Today

https://youtu.be/K__5UdR1aQc

Brand Ambassador Chef Jerome Brown Pledges $40,000 to the Foundation for Sickle Cell Disease Research - Join the Chef and Donate Today....Start the Healing

07/03/2017

Ok Facebook Family....I look forward to seeing you at FSCDR's Brand Ambassador's Birthday Bash to support Sickle Cell Disease!

Check out the commercial that is on rotation in North Carolina.
https://vimeo.com/223604740?utm_source=email&utm_medium=vimeo-cliptranscode-201504&utm_campaign=28749

This is "Chef Jerome Brown 50th Birthday Party to benefit Sickle Cell Disease" by WALK THE TALK LLC on Vimeo, the home for high quality videos and the…

06/28/2017

In Loving Memory and Celebration of Warrior Albert "Prodigy" Johnson, and Family Friend, His Late Mother, Fatima Johnson, Rest in Peace.

There is no more pain. You and your mom are together again.

"Start the Healing"
https://youtu.be/NmExXfP0JHg