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Foundation For Sickle Cell Disease Research

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Foundation For Sickle Cell Disease Research

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The Foundation for Sickle Cell Disease Research (FSCDR) is the United States’ first outpatient center exclusively dedicated to the treatment of and innovative research for SCD. The Foundation for Sickle Cell Disease Research (FSCDR) is committed to supporting innovative research in sickle cell disease to help maximize quality of life and improve survival for the generations of people affected with

this disease. FSCDR is a comprehensive, non-profit organization that provides a platform for researchers, healthcare providers, individuals and their families living with sickle cell disease and supporters to work collaboratively in identifying barriers that are limiting creation, adoption and adherence to evidence-based screening recommendations, new therapeutics and best practices that help in the management of sickle cell disease. FSCDR understands that research must be supported with data and that education plays a key role in empowering people and affecting change; therefore, its venues directly promote these principles. As part of its extensive platform, FSCDR offers educational initiatives that help to expand the understanding of sickle cell disease through its Annual Sickle Cell Disease Research Meeting and its scholarly Journal of Sickle Cell Disease and Hemoglobinopathies. FSCDR also provides networking that facilitate collaborative learning through its membership-based Sickle Cell Research Society of America (SCRSA) and its general Corporate Engagement Forum, which also invites patient participation. Most importantly, FSCDR has created the first-ever Sickle Cell Disease and Thalassemia Patient Registry that allows researchers access to vital information for data mining, qualitative and quantitative research that can help pave the way toward a better understanding of sickle cell disease and innovations in the treatment of sickle cell disease and related disorders. The Registry also has a health record portal for individuals with sickle cell disease to keep track of their health information, receive reminder notifications, and share their health record with their doctor (s). FSDCR appreciates the benefits of being united in the common cause of sickle cell disease research and medical care with academia, pharmaceutical, biotechnology, and community organizations.

04/28/2026

Dr. Patrick C. Hines will chair the Investigational New Drug, Device, and Therapeutics Symposium — bringing together leading pharmaceutical and industry experts to spotlight the most promising therapies in the SCD development pipeline.

Dr. Hines is a physician-scientist whose work has been instrumental in translating basic science discoveries into diagnostic tools that predict clinical outcomes and monitor patient response to emerging therapies.

Attendees of this session will be equipped to:
- Describe the current landscape of investigational drugs and biologics in development for SCD and their mechanisms of action
- Compare emerging strategies — including gene therapies, disease-modifying agents, and targeted biologics — across clinical rationale, trial design, and anticipated impact
- Evaluate the role of translational biomarkers and functional assays in measuring therapeutic response and disease heterogeneity
- Analyze key challenges in the SCD clinical development pathway, from regulatory considerations to patient and endpoint selection
- Discuss strategies to accelerate the translation of investigational therapies into practice while ensuring equitable access for those living with SCD

We invite you to join us in Fort Lauderdale for this session.

Register Here: https://fscdr2026.eventscribe.net/

04/27/2026

The Golden Age is here.

Join us June 5–7, 2026, in Fort Lauderdale, FL for the Symposium.

Celebrate 20 years of scientific collaboration, clinical breakthroughs, and real progress for Sickle Cell Warriors.

Be part of the conversation and shape the future of sickle cell care.
Spots are filling fast. Register Now!

https://fscdr2026.eventscribe.net

04/24/2026

Melissa Amondo shares what it’s like balancing life as a Sickle Cell Warrior while working as a nurse. Her message is simple but powerful: mindset matters. Living with sickle cell disease doesn’t mean your dreams or goals are out of reach.

Learn more about sickle cell disease at fscdr.org

04/23/2026

Dr. Sophie Lanzkron will join the esteemed panel for the Historic Landmarks in Research and Care of Patients with Sickle Cell Disease session at the Symposium.

Dr. Lanzkron — a hematologist internationally recognized for her pioneering work advancing care for adults living with sickle cell disease — will present Milestones That Matter: The Evolution of Survival and Quality of Life in SCD.

The presentation will explore three critical areas:
1. The benefits of comprehensive care
2. The impact of hydroxyurea on survival and quality of life
3. The evolution of hematopoietic stem cell transplantation as a curative intervention for sickle cell disease

We invite you to join us in Fort Lauderdale for this session.

Register Here: https://fscdr2026.eventscribe.net/

04/22/2026

The Golden Age is here.

Join us June 5–7, 2026, in Fort Lauderdale, FL, for the Symposium.

Celebrate 20 years of scientific collaboration, clinical breakthroughs, and real progress for Sickle Cell Warriors.

Be part of the conversation and reshape the future of sickle cell care.
Spots are filling fast. Register Now!

https://fscdr2026.eventscribe.net

04/20/2026

Healthy Living With Sickle Cell Disease

Living well with SCD starts with small, consistent steps:

1️⃣ See your healthcare team regularly for checkups and guidance.
2️⃣ Monitor and manage your blood pressure.
3️⃣ Take care of your mental health and seek support when needed.
4️⃣ Maintain a healthy lifestyle — stay active, eat well, hydrate, and get enough sleep.
5️⃣ Know how to respond to a pain crisis and when to seek care.
6️⃣ Recognize emergency symptoms and act quickly.

Learn more: fscdr.org

04/17/2026

Melissa Amondo is not only a Sickle Cell Warrior, but also a qualified nurse working in hematology. Her personal experiences with sickle cell disease have shaped her passion for healthcare and continue to motivate her in both her journey and her career.

Learn more about FSCDR by visiting fscdr.org

04/15/2026

A powerful voice for a historic year: The Golden Age.
We are thrilled and honored that Viola Davis — award-winning actress, producer, New York Times bestselling author, and EGOT icon — will be the Foundation Keynote Speaker at the 2026 Symposium.

Sunday, June 7, 2026 | 12:00 PM EST
Fort Lauderdale, FL & Global Livestream

As we celebrate the 20th Anniversary of the Symposium — The Golden Age, Viola’s story of resilience and triumph reflects the strength and spirit of Sickle Cell Warriors worldwide.
Join us for this historic keynote and milestone year in Fort Lauderdale or on livestream from anywhere in the world.

Register Now
https://fscdr2026.eventscribe.net

04/13/2026

Raising awareness and connecting people to the right resources is an important part of improving the lives of those affected by sickle cell disease.

Through education, local engagement, and direct support, FSCDR helps individuals and families access trusted information, care, and services. By sharing knowledge and building strong relationships, we help ensure that more people understand sickle cell disease and know where to find support.

Learn more at fscdr.org.

04/10/2026

Melissa Amondo hopes to receive gene therapy because she no longer wants to live with constant pain. Her determination to pursue this option has opened new doors and possibilities for her future.

Stories like Melissa’s reflect the real experiences many Sickle Cell Warriors face every day. By sharing them, we continue to raise awareness and encourage hope within the community.

Learn more at fscdr.org

04/08/2026

Caterina Minniti, M.D.
Professor Emerita, Pediatric Hematology-Oncology, Albert Einstein College of Medicine

Dr. Caterina Minniti chairs the Special Symposium: Advancing Biomarkers in Sickle Cell Disease, bringing together leading industry, academic, and regulatory experts.

Dr. Minniti is a physician-scientist and clinical trial specialist whose work focuses on advancing new therapeutic approaches for sickle cell disease. She previously served as Director of the Sickle Cell Center for Adults at Montefiore Medical Center, where she led efforts to provide comprehensive, patient-centered care while expanding clinical research opportunities for adults living with the disease.

Her research examines the biological mechanisms that lead to end-organ damage in sickle cell disease, with the goal of identifying early biomarkers and developing targeted therapies. Her work has explored complications ranging from stroke and pulmonary hypertension to chronic leg ulcers, which serve as a clinical window into the vascular complications associated with the disease.

We invite you to join us in Fort Lauderdale for this Special Symposium session!

Register Here: https://fscdr2026.eventscribe.net/

04/06/2026

Great experience, the staff is very friendly and helpful. Whenever I am in pain, they make sure I am better before I leave.

-Shandrea B.

Address

1685 South State Road 7, Unit 4
Hollywood, FL
33023

Opening Hours

Monday	8am - 5pm
Tuesday	8am - 5pm
Wednesday	8am - 5pm
Thursday	8am - 5pm
Friday	8am - 5pm

Telephone

+18444465744

Website

http://www.FSCDR.org/

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