COTA for Gracelynn's FIGHT

COTA for Gracelynn's FIGHT Gracelynn is a 2 1/2 yrs old with DOCK8 Deficiency. She needs a LIFE-SAVING bone marrow transplant. Questions about the COTA for Gracelynns Fight campaign?

3 reasons why Gracelynn's family asked for assistance:
1) COTA does not charge a transplant family, or patient, for its services.
2) 100% of funds raised in honor of COTA patients assist with -related expenses.
3) COTA’s support for Patient Name is available for her lifetime. Please let us know! Link in bio to learn more and make a gift.

06/03/2023
PLEASE PASS THIS EVENT AND GRACELYNNS FACEBOOK PAGE. We still are making these SNIFF MATS for your furry friends and gif...
06/02/2023

PLEASE PASS THIS EVENT AND GRACELYNNS FACEBOOK PAGE. We still are making these SNIFF MATS for your furry friends and gifts for your friends with furry friends. We send a shout out to the 5th Grader Girl Scout troop who also helped us. We have a long time to go to support this cause. Remember the doctors say Gracelynn will go through chemo again in September and receive another donation of bone marrow. PLEASE SUPPORT COTA!

06/02/2023
06/02/2023

She can be so comical at times. It has definitely been an enriching experience even though she hasn't left her hospital room since March 29 except for being moved to a new room every 30 days for sanitizing reasons. Poor Gracelynn is not eating by mouth and on drinks a sip or two a day from her sippy cup aka her pacifier. The doctors and nurses have tried and tried to get her feedings through her nasal NG tube to be more than only 10 mil an hour of clear Pedialyte. They are giving her an IV bag of lipids and tpn.....to me keeping her alive! She has had constant diarrhea and a lot of nausea with some vomiting most days. Please her heart! When she sees food her mind wants it but her tummy can't take it. Now she has a second central line infection that I told the nursing and resident doctors. I felt I was making a crazy fuss but ultimately I was right and now a PICC line will be put in hopefully on Monday. Maybe she has had some kind of infection there all along and that will make her feel better when changed out.

The doctors want to ask her bone marrow donor if he or she would donate again if the ADENOVIRUS CAN BE ERADICATED COMPLETELY FROM HER BODY!!

Gracelynn's mommy gave TCELLS to her to help fight the ADENOVIRUS. She may do it again soon. The doctors are discussing. What a road Gracelynn had been on since February.

May 27th....
06/02/2023

May 27th....

May 21st....
06/02/2023

May 21st....

May 20st.....
06/02/2023

May 20st.....

Enjoying a visit from our great friend Denise. Gracelynn even clearly said Denise when she saw her!! Awwww!!
06/02/2023

Enjoying a visit from our great friend Denise. Gracelynn even clearly said Denise when she saw her!! Awwww!!

May 7......
06/02/2023

May 7......

May 5th.....still in hospital.
06/02/2023

May 5th.....still in hospital.

Address

House Springs, MO

Website

Alerts

Be the first to know and let us send you an email when COTA for Gracelynn's FIGHT posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to COTA for Gracelynn's FIGHT:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category