04/22/2026
I realized today that I haven’t shared much here in a while. The last time I posted was after our family trip to Arizona for my mom’s 90th birthday. All of us together for the first time in 10 years. I wrote, “These are the days I never thought I’d see. Forever grateful for blessings.”
And that is still true.
Tonight I am sitting at MD Anderson in Houston waiting for PET scan results I will get Thursday morning. Twenty-two months after Tecartus CAR-T. Terrified some days that the cancer is coming back. Because with mantle cell lymphoma there is no cure. There is only treatment. And I have already had some of the best treatments there are.
Some days I feel like I am pushing the envelope and any minute it will all come crashing back down.
And then there are the other days. Days where I almost forget I have cancer.
I feel good. I exercise. I travel. I laugh. I live.
Since January, Lara and I spent time in Mexico. Then a month in South Carolina with my sister and our spouses. Then Phoenix for my mom’s birthday with the whole family. Then we packed up the car and the dog and spent a month in Colorado, renting a house three doors down from my daughter and husband and her babies
For a month we got to be full-time grandmas to Liv, Asher, and Andi. Every day was a new adventure. Sticky hands,dirty faces, art projects, bedtime stories, playgrounds,dinosaurs, zoos, roller coasters, biking and scootering, little voices, toddler chaos, and so much joy. Exhausting and exhilarating all at once.
I got time with Emily who drove down from the mountains outside Denver. Todd came from LA and stayed for a week. We had all my babies and grandbabies together in one place more than once this year.
There is nothing I love more than that. Nothing.
Cancer has changed the way our family lives. We do not live in “next year,” “someday,” or “when things calm down.”
Because one day is now.
We take the trip. We pack up the dog. We stay a month. We say yes. We stop waiting.
Because the truth is, none of us know how much time we have.
As scared as I am sitting here tonight, I also have hope. More hope than I had four years ago when I was diagnosed. Treatments are changing quickly. There are bispecifics, new types of CAR-T, transplant options, and things coming that did not exist when I first heard the words “you have mantle cell lymphoma.”
I need this remission to last long enough for the next better option to become clear.
And for the first time since I had to leave healthcare and retire, I have found a way to be useful again.
I have cofounded the Mantle Cell Lymphoma Alliance a 501(c)3 nonprofit. MCLA. It is still in its baby stages, but we are moving quickly. We envision a future in which every person affected by mantle cell lymphoma has access to expert‑informed care, clear treatment choices, and a strong support community — and where sustained, collaborative research leads to better therapies, longer lives, and, ultimately, a cure. I spent my whole career helping people through some of the worst moments of their lives. Losing that part of myself after my diagnosis was devastating.
But maybe this is another way to help.
Maybe if I can help someone else find their footing, get better information, feel less afraid, or someday help fund research that leads to a cure, then something meaningful can still come from all of this.
I am tired tonight. Physically and emotionally. I barely slept. I am overwhelmed. But I know there are people here who understand this strange space between living and waiting. Between joy and fear. Between being healthy enough to forget and terrified enough to remember.
So tonight I am choosing hope.
And I am trusting that I still have more time.
-T
(And holy crap what a photo dump. I love them so much I can’t cut any of them ! They are my everything. My whole world💕)