Team Fults

03/17/2026

It’s a busy week for us….

We’re pulling labs before sunrise for the girls… which of course also means a small fortune at 7Brew to keep everyone alive and functioning ☕️. Hello sweet and salty for Mom!!!!!

Hollyn:
We’re checking in on her metabolic disorder this morning. We know Hadley’s levels have been off, so we’re praying Hollyn’s come back steady and within range.

Hadley:
The last few months she just hasn’t felt like herself. She’s been more tired, more leg pain and overall just feels off.

Her labs are starting to tell a bit of a story. Her B12 has dropped and her carnitine is low. Her team is beginning to see her body running low on fuel. With her autoimmune gastritis, we’re wondering if she’s just not absorbing what she needs, and over time that’s catching up with her energy and her nervous system.

Her autoimmune small fiber neuropathy has caused more pain, more discomfort and if her body is already running depleted, that just makes everything hit harder.

She’s tired of being tired… and honestly, she’s sick of being sick and we are too. We’ve got way too many fun things to do for this to keep slowing her down. So, we’re pushing through and doing the fun stuff anyway, even if that means more downtime afterwards.

We have treatment this week and an appointment with her neurologist in Austin in a few weeks. Pray for clear answers, simple solutions, and relief for her sweet body. 🤍 We will trust. He will provide!

03/05/2026

Update for those praying.....

Quick Hadley update for those following along and praying...

We’re still in the thick of labs, phone calls, and trying to connect the dots between several different teams. Some results are starting to give us a little more clarity, even if the overall picture is still… complicated.

What we’re learning right now is that her B12 levels shifted significantly and her carnitine is low. Even though she’s dealing with Hashimoto’s and Graves, those don’t seem to be the biggest drivers of how she’s feeling at the moment. The last treatment did help some, which was encouraging and also told us that at least part of this is autoimmune-mediated.

At this point it’s looking like a combination of her metabolic disorder, autoimmune stomach issues affecting absorption of B12 and iron, and increasing symptoms from small fiber neuropathy. The nerve pain has been worse lately and has started moving into her arms, not just her legs.

Honestly, just one of these conditions being off can make you feel terrible. Seeing all three flaring at the same time helps explain why she’s been feeling so awful lately. Sometimes as parents you wonder if it’s really that bad but these labs are confirming what she’s been trying to tell us. She really has been feeling as rough as she’s said.

The hardest part is that she’s so ready to just be a normal kid again. I hear her say that often. She loves volleyball and running and wants to keep up with her friends. And honestly despite how she feels, she does still keep up. She pushes through, says very little, and keeps going and then comes home and crashes. Watching her do that has taught me more about tenacity, courage, and grit than I could ever teach her.

Right now we’re trying to coordinate care between metabolics, neurology, and GI across three different hospitals, which feels a little like a wicked game of whack-a-mole. So if you’re praying, pray for wisdom as we keep piecing this together and maybe that all the teams keep playing nicely in the same sandbox while we try to get our girl feeling better.

Doesn’t normal kid stuff look good on her? Volleyball, friends, being a kid… this is what we keeping fighting so hard for.

We will trust, He will provide!

03/01/2026

In honor of Rare Disease Day…

If you live in this rare disease world, you know it’s a strange place to belong. No one signs up for it. You don’t ask to be here, and you certainly don’t plan for it. One day you wake up and realize your “normal” looks different than most. For us, that moment came on a random Monday ten years ago when Hadley got sick.

In our family, rare isn’t just one story. It began with Hadley, continued with Hollyn’s metabolic disorder and kidney issues discovered at her birth and later included my own brain tumor diagnosis three years ago. Rare has touched each of us and reshaped our normal in ways we never expected.

Rare can feel isolating. It can be exhausting. It often looks like long appointments, confusing labs, yesterday’s makeup still on your face, and advocating for your child when you’re already running on empty.

But here’s what we’ve learned, rare also gave us the gift of resiliency. It's meant brave kids and allowed our family to discover a strength we never would have known otherwise. Most of all, it means we've experienced a faith that has been tested AND HELD. He never failed us!

So if you find yourself in this club too, we see you and we stand with you. We are grateful for every ordinary day that once felt impossible.

We never would have chosen this road but we are grateful for the lessons learned inside of it. God has been so good. We are blessed far more than we deserve. We've learned the gift we have in each other and we don't take that for granted. We've learned to be present and be truly grateful for the ordinary. We will continue to trust because He has ALWAYS provided! Thank you for being a witness to our story. Your support has meant so much!

02/20/2026

02/19/2026

Pray for clarity and direction and solutions…..

02/10/2026

Good news!!! 🎉 We get to space out scans. 🙌

The neurosurgeon said there was some growth, but it was small. He also said it could be up to five years before the next surgery, which somehow feels way too close and like an eternity at the same time. It’s a weird tension to live in.

God is good, and we are deeply grateful.

If you’re praying with us, pray we can “be where our feet are.” That we stay present and don’t feel like we have this huge count down clock running in the background. Pray that we love the people God has placed closest to us well and that we don’t borrow worry from a future that isn’t here yet—especially about surgeries that aren’t today’s assignment.

Thank you for walking a long side us! Your support and prayers are truly a gift! We will trust, He will provide!

02/10/2026

It’s scan day. Memorial Hermann before sunrise it is!

Which means a little anxiety is along for the ride.

That’s one of the long-term souvenirs a brain tumor leaves you with. This is just part of our normal now, living with a tumor, routine MRIs, and knowing future brain surgeries are likely somewhere down the road. It hit me yesterday when Hayden asked me if more surgeries were in my future. We were honest and said yes but we hoped it’s many years down the road. I could hear a shift in his tone when he asked us how long before?! We’re so grateful for where I am. The residual damage could be so much worse but there are moments when anger and sadness creep in when this whole thing is still part of or normal conversations and our kids worries. Just keeping it real. We can love Jesus and still hate brain tumors right?!

So, today’s plan….coffee and chick-fil-a ✅ ✅, MRI ➡️ walk straight over to the neurosurgeon so he can read it with us in real time. No waiting, no spiraling (okay, less spiraling).🤷🏻‍♀️🤣♥️

We are as emotionally prepared as caffeine and chicken minis can make a person.

If you think of us today, we’d love prayers. Pray for peace, calm hearts, and good news. We truly feel like things will be stable.

Also, this weekend Josh and I had the privilege of speaking at a marriage conference. Truly such a gift—one we don’t take lightly. God is faithful in the big moments and the scan days, and sometimes He lets them happen in the same week… because he knew we needed it.

So, we are grateful, a little nervous, very caffeinated and fully trusting. We will keep trusting because we know He will provide!

01/29/2026

Another day in the books…..

We are back in a week and a half for my scans and two weeks for Hadleys treatment. It’s been busy but God has been good!

We came. We coffee-ed. We boba tea-d. We snacked. We saw doctors, did appointments, labs, infusions, crafts, and Chick-fil-A….AND we conquered…ish. Well, we finished and that counts right?!💪 We’re back in two weeks for another marathon treatment day. 🙄🥴❤️‍🩹

Now these girls are campaigning hard for a Target run as a “poke prize” and payment for their troubles today. 👀😂🤷🏻‍♀️ So… does mom get a prize too? Asking for a friend. 👀🙄😶‍🌫️🤣

Now off to survive Houston traffic home. Thanks for the prayers, we felt every single one. ❤️ We will trust, He will provide! kkhent

01/29/2026

Still going, gracious I love these littles!

We’re doing this thing, y’all. Medical appointments all day, but somehow we’re also running a craft table and a fast-food operation. Hobby Lobby ain’t got nothing on us!

10/10 multitasking. 2/10 energy. Only a few more hours left to go on this infusion then we are DONE!

We will trust. He will provide!

01/29/2026

Busy day!!!!

01/20/2026

God is good...

01/19/2026

Pray for our girl....

Hadley is officially **down for the count** today.
Treatment side effects showed up loud and uninvited a day later than expected and they’re being pretty wicked. She missed school today and if you know her, you know THIS IS A BIG DEAL! She LOVES school.

She’s bummed and rightfully so. She's missing game and a performance for cheer she worked hard for and that stings. There were tears. There was disappointment and there may have also been a mother/daughter trip through 7 Brew this afternoon when things got a little too heavy and she needed to get out of the house. Hello sweet and salty for mom and Mango smoothie for our girl!

If you’d pray, we’d appreciate it:
• Pray these side effects pass quickly
• Pray her body rebounds sooner rather than later
• Pray she’s back on her feet doing what she loves again soon

This part is hard but we’re holding steady and trusting her body will catch up. Thanks for walking with us through the messy middle. 💛 Her 13 year old heart still wrestles with it more on some days, today is one of those days! We will trust, He will provide.