UT Center for the Treatment of Pediatric Neurodegenerative Disease

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UT Center for the Treatment of Pediatric Neurodegenerative Disease

Providing medical care, performing research, and educating the community about mitochondrial disease.

The Center for the Treatment of Pediatric Neurodegenerative Disease is part of UT Health and affiliated with Memorial Hermann Hospital in Houston, TX. The Center is comprised of multiple sub-specialty clinics such as the Mitochondrial Clinic, the Leigh Syndrome Clinic, the Lysosomal Clinic, the Ataxia Telangiectasia Clinic, and Pedi Move. Director - Dr. Mary Kay Koenig
Faculty Members - Dr. Nick Russo and Dr. Stuart Fraser
Senior Program Manager of Research - William Guerra, MHA CCRP
Clinic Coordinator - LaKeesha Minor, RN, BSN
Director of Center Operations - Nikki Thomason
Senior Social Worker- Patricia Arnold, MSW, LCSW
Occupational Therapist- Anna Haertling Clearman, OTR, MOT, CLT
Research Nurse - Lindsey Miller, LVN
Research Coordinator - Donovan Calvert, MPH
Research Coordinator- Neena Patel, MPH
Research Coordinator- Luana Pimentel, MD
Research Support Assistant- Samantha Acosta, MS
Administrative Coordinator-Chassity Butler, MBA, MHA

Medical Team:
Pediatrician - Dr. Ebony Beaudoin, CHOSEN Clinic
Pediatric Allergy & Immunology - Dr. Susan Pacheco
Pediatric Pulmonary - Dr. Ricardo Mosquera
Pediatric Sleep Disorders - Dr. Cindy Jon
Pediatric Gastroenterology - Dr. J. Marc Rhoads
Pediatric Nephrology - Dr. Rita Swinford
Pediatric Rheumatology - Dr. Ankur Kamdar
Pediatric Cardiology & Dysautonomia - Dr. Mohammed Numan
Pediatric Hematology - Dr. Deborah Brown
Pediatric Endocrinology - Dr. Michael Yafi and Dr. Nunilo Rubio
Pediatric Otorhinolaryngology - Dr. Soham Roy
Adult Cardiology - Dr. Nada Memon
Adult Neurology - Dr. Suur Biliciler & Dr. Erin Furr-Stimming
Anesthesiology - Dr. Maria Matcussak and Dr. Jael Carbajal
Pediatric Emergency Medicine - Dr. Robert Lapus
Neuroradiology - Dr. Eliana Bonfante
Pediatric Intensive Care - Dr. Ikram Haque

12/16/2025

09/22/2025

BIG NEWS!! https://stealthbt.com/stealth-biotherapeutics-announces-fda-accelerated-approval-of-forzinity-elamipretide-hcl-the-first-therapy-for-progressive-and-life-limiting-ultra-rare-genetic-disease-barth-syndrome/

FDA approved elamipretide for Barth Syndrome. CTPND is heavily invested in trials for this drug. This is the first and only FDA-approved treatment for any form of mitochondrial disease.

NEEDHAM, Mass., September 19, 2025 /P...

02/03/2025

https://tea.texas.gov/academics/special-student-populations/special-education/parent-directed-special-education-services-pdses

The Parent-Directed Special Education Services (PDSES) program, previously, the Supplemental Special Education Services (SSES) program is a one-time $1,500 online grant for parents/guardians of eligible students served by special education and who are enrolled in a Texas public school. Parents/guard...

12/12/2024

https://www.youtube.com/watch?v=Oh-a_EKgp_Y

Film directed by Mei Fa Tan and produced by Montreux Media Ventures.You can donate at https://polgfoundation.kindful.com/

07/09/2024

PSA: UTHealth Houston, including UT Physicians Clinics, is experiencing a system wide telecommunications outage. We are receiving emails, but NO phone calls.

Send a message to learn more

05/28/2024

Lindsey Miller, LVN is honored by TMC Nurse Heroes Campaign

04/15/2024

This weekend at Children’s Memorial Hermann Hospital’s “Time of Remembrance Service,”Lindsey Miller and Janaei Phillips (Research Nurses) and Maria Poblete (Research Coordinator) represented CTPND as volunteers.

03/19/2024

Attention MELAS patients ages 12-17!

Tisento Therapeutics is sponsoring a research study to talk to individuals about their experience with MELAS. They will be evaluating an investigational drug in an upcoming clinical trial and they need Patient Voices. Time will be compensated.
INTERVIEWING NOW: PATIENTS WITH MELAS, AGES 12-17.
Click here for more details and next steps: https://bit.ly/TisentoMELASAges12-17

11/20/2023

I am seeking feedback for our annual CTPND newsletter. Each year, I develop a theme, build out the framework for who will write what, and hope that we have provided new information to someone reading the newsletter. This year I want to do things a bit differently.... what sort of updates would YOU like to see? Research? Staff backgrounds? Infrastructure changes? Would love to hear from you and your family!

10/06/2023

Dr. Mary Kay Koenig was the featured speaker during the President’s Reception of the 52nd Annual Child Neurology Society meeting in Vancouver.

Address

6410 Fannin Street
Houston, TX
77030

Website

http://www.ctpnd.org/

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Our Story

The Neurometabolic and Mitchondrial Disease Program, formerly known as UT Mitochondrial Center of Excellence, is located in the newly-minted Center for the Treatment of Pediatric Neurodegenerative Disease, part of UTHealth and affiliated with Memorial Hermann Hospital in Houston, TX. Center Director - Mary Kay Koenig, MD-neurology Center Co-Director- Nivedita Thakur, MD-movement disorders Center Clinic Coordinator - LaKeesha Minor, RN, BSN Center Director of Operations- Nikki Thomason Nurse- Lindsey Miller, LVN Social Worker- Brunessia Lewis, LMSW Research Director - Research Coordinator - Wafa Qulikhan, MBBS Research Coordinator- Saba Iqbal, MBBS, CCRP Research Coordinator- Stephanie Maldonado Center Director of Operations- Nikki Thomason Medical Team: Complex Care Pediatrician - Dr. Ebony Beaudoin, CHOSEN Clinic Pediatric Allergy & Immunology - Dr. Susan Pacheco Pediatric Pulmonary - Dr. Ricardo Mosquera Pediatric Sleep Medicine- Dr. Cindy Jon Pediatric Gastroenterology - Dr. J. Marc Rhoads Pediatric Nephrology - Dr. Joshua Samuels Pediatric Rheumatology - Dr. Ankur Kamdar Pediatric Cardiology & Dysautonomia - Dr. Mohammed Numan Pediatric Hematology - Dr. Deborah Brown Pediatric Endocrinology - Dr. David Rodriguez-Buritica Pediatric Otorhinolaryngology - Dr. Soham Roy Pediatric Emergency Medicine - Dr. Robert Lapus Pediatric Infectious Disease - Dr. Gloria Heresi Pediatric Spasticity - Dr. Nivedita Thakur Pediatric Palliative Care - Dr. Kimberly Earle Pediatric Physical Medicine & Rehabilitation - Dr. Stacey Hall Pediatric High Risk Clinic- Tracy Gonzales, MSN, APRN, AE-C Developmental Specialist/Autism - Dr. Pauline Filipek Neuropsychology - Dr. Deborah Pearson Adult Cardiology - Dr. Poyee Tung Adult Neurology - Dr. Suur Biliciler Adult Spasticity - Dr. Erin Furr-Stimming Adult Gastroenterology- Dr. Andrew DuPont Adult Pulmonary - Dr. Richard Castriotta Anesthesiology - Dr. Maria Matcussak and Dr. Jael Carbajal Neuroradiology - Dr. Eliana Bonfante Neuro-ophthalmology- Dr. Rosa Tang