National Birth Defects Prevention Network

National Birth Defects Prevention Network The NBDPN is a volunteer-based organization that addresses the issues of birth defects surveillance,

Members include public health officials, epidemiologists, academics, parents, and others committed to understanding factors that may lead to birth defects, identifying strategies for reducing birth defects, and working to prevent potential secondary disabilities. The NBDPN assesses the impact of birth defects upon children, families, and health care; identifies factors that can be used to develop primary prevention strategies; and assists families and their providers in secondary disabilities prevention. To fulfill its mission, the Network pursues the following goals:
-Improve access and application of information about the prevalence and trends of birth defects.
-Increase collaboration between members within the birth defects community.
-Advance science through birth defects surveillance and its application to public health efforts and resource allocation. The objectives of the NBDPN are to:
-Improve the quality of birth defect surveillance data.
-Promote scientific collaboration for the prevention of birth defects.
-Provide technical assistance for the development of uniform methods of data collection.
-Facilitate the communication and dissemination of information related to birth defects.
-Collect, analyze, and disseminate state and population-based birth defect surveillance data.
-Encourage the use of birth defect data for decisions regarding health services planning (secondary disabilities prevention and services).

Gastroschisis is the condition where a baby is born with their organs outside of the body due to the abdominal wall not ...
07/30/2025

Gastroschisis is the condition where a baby is born with their organs outside of the body due to the abdominal wall not forming completely in the womb. Specific risk factors include: younger mothers, substance exposure (alcohol, to***co, and drugs), infections during pregnancy, and certain medications. Be sure to talk to your healthcare provider about healthy choices before and during your pregnancy to reduce your risks!

Research is still being done to link the risk for birth defects in children born to mothers who are Hepatitis B positive...
07/28/2025

Research is still being done to link the risk for birth defects in children born to mothers who are Hepatitis B positive, but knowing your risks is vital to a healthy pregnancy. Talk to your healthcare provider about Hepatitis and other infections in pregnancy.

We’re excited to announce the launch of our brand-new merchandise store website—now open to all! The store features a cu...
07/28/2025

We’re excited to announce the launch of our brand-new merchandise store website—now open to all! The store features a curated selection of high-quality products designed with our professional community in mind. Whether you're looking for apparel, accessories, or thoughtful gifts that reflect your commitment to science, education, and research, you’ll find something to suit your needs. We invite you to explore the new site and discover what’s available—your support helps further our mission and connect our community. https://stores.eretailing.com/shop/nbdpn

Tomorrow is World Hepatitis Day!  Hepatitis is an inflammation of the liver, most commonly cause by a viral infection.  ...
07/27/2025

Tomorrow is World Hepatitis Day! Hepatitis is an inflammation of the liver, most commonly cause by a viral infection. Hepatitis in pregnancy can lead to several complications for mom and baby. Talk to your healthcare provider about your risks.

Cleft lip and palate can have emotional and social impacts on individuals and their families.  With proper care and trea...
07/25/2025

Cleft lip and palate can have emotional and social impacts on individuals and their families. With proper care and treatment, individuals with clefts can often lead healthy and fulfilling lives.

Fragile X syndrome is a genetic disorder than can affect both males and females.  This condition vary in symptoms and ty...
07/22/2025

Fragile X syndrome is a genetic disorder than can affect both males and females. This condition vary in symptoms and typically leads to intellectual impairment, behavioral, emotional, and emotional challenges. This condition can be diagnosed during pregnancy through amniocentesis and other testing. Prenatal testing allows for early detection, allowing families to plan and prepare for the child's needs.

Help protect your baby from infection during pregnancy, including Group B Strep (GBS).  Many infections can be reduced w...
07/17/2025

Help protect your baby from infection during pregnancy, including Group B Strep (GBS). Many infections can be reduced with healthy pregnancy behaviors such as: early and regular prenatal care, proper handwashing, immunizations, avoid bodily fluids and understanding the risks to you and your baby.

Cleft lip and cleft palate are common birth defects that affect thousands of babies each year. These conditions can affe...
07/14/2025

Cleft lip and cleft palate are common birth defects that affect thousands of babies each year. These conditions can affect the ability to eat, breathe, speak and so much else. Treatment often includes multiple surgeries - which can continue well into adolescence and/or young adulthood, as well as speech and occupational therapies.

Did you know? Group B strep is the leading cause of sepsis and meningitis in a newborn’s first week of life. For informa...
07/12/2025

Did you know? Group B strep is the leading cause of sepsis and meningitis in a newborn’s first week of life. For information and resources on how to help protect babies from GBS disease during pregnancy through early infancy, please visit: www.groupbstrepinternational.org

Cleft lip and palate happen very early in pregnancy.  Smoking before becoming pregnant and during your pregnancy can inc...
07/10/2025

Cleft lip and palate happen very early in pregnancy. Smoking before becoming pregnant and during your pregnancy can increase your child's risk of developing a cleft. Family history of clefts and poorly controlled diabetes can also increase your child's chances. Be sure to discuss these and other risks with your healthcare provider before becoming pregnant.

As this year's National Conference is coming to a close, we want to recognize some of our esteemed Award Recipients.  Co...
07/02/2025

As this year's National Conference is coming to a close, we want to recognize some of our esteemed Award Recipients. Congratulations to all nominees and winners, and a huge thank you to everyone who attended.

2025 NBDPN National Conference is underway.  Wonderful speakers, informative presentations, engaging roundtable sessions...
06/30/2025

2025 NBDPN National Conference is underway. Wonderful speakers, informative presentations, engaging roundtable sessions and professional networking is happening each day. What a convergence of innovative minds, breakthrough ideas, and collaborative ventures!

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