Mr. G’s Kidney Disease - a journey with PKD

Mr. G’s Kidney Disease - a journey with PKD As most of you know, my dad has suffered from a genetic condition called Polycystic Kidney Disease for the last 35ish years.

We are working with the Houston Methodist Transplant team and just at the beginning of our journey!

01/27/2026

Star date: 26074.513

Today is surgery. Surgery is at noon but as I often find myself, I was up at 4:00. When up that early it’s coffee time with my bride. That normally lasts two or three hours, then we need a nap because we got up so early. The only people up at this time are all the nurses and aids on the floor.

I was supposed to be here at Methodist Hospital at 10a for noon surgery. However, I received a call about 3p yesterday asking how soon I could arrive last evening they decided they wanted me overnight so they could put a dialysis port in first thing this morning. I am expecting that will take place sometime after 6a.

Rachel rode up with me and we arrived just before six last evening. They brought me to my room and we ordered a pizza. Given the gravity of the surgery, yes, I did have thoughts of a last supper It was an excellent choice. I may have to do that one again once I’m back on solid food.

Today’s surgery is to take out my polycystic kidneys. The current guess is that they now weight someplace in excess of 35 pounds. I will asked to be weighed pre and post surgery to get an accurate picture of how big those suckers are.

When my father had his kidneys removed in 2000, they weighed in at about 42 pounds. That was after his doctors did surgery and drained the existing cysts in 1969. Had they not been drained, I cannot imagine how large they would have grown. About five years ago, I read an article in London’s Daily Mail, of a man who had his polycystic kidneys removed, and they came in at over 44 kilograms. Since reading that article, I thought that my father’s kidneys could have been pushing that, had they not been drained.

Pondering my own nephrectomy has been a real mix of curiosities. I have had this porch in front of me for so long, I’m thinking I will be like that awkward teenager who doesn’t know what to do with his hands at the school dance. I had experience with that also.

I fold my hands over my belly. I rest a book I’m reading on my belly. I catch my cookie crumbs on my belly. The dog lays his head on my belly. I have to shift my body to sit down or get up because of my belly. I flop when lying down and have to roll getting up because of my belly. I have to fight getting compression socks on because of my belly.

Men, your suit pants have three connections on the pants; an inside button, a clasp, and an outside button. Because my belly is so large (55 1/2 inches) I can almost not properly secure my suit pants. I am decidedly off balance because of my belly. Just this morning, I wobbled into the bathroom door here in my room and cut my arm.

All of that (and a whole lot more could be said of their interference in life and living) to say that these polycystic kidneys have ruled every aspect of my life and living for many years now.

And it all goes away in about four hours. I wonder about how off balance I will be now because this counterweight is suddenly gone. My shirts were special made because off the rack no longer fits. Mo and I talked to a lady yesterday about altering those shirts to fit me post-op. My suits which do not fit me now because I am too big for them, will not fit me post-op because they will be too big for me. It’s a hoot.

Fortunately, Mo did not cut up my dress shirts I grew out ten years ago, to make a quilt. Anything cloth lying around is in danger of meeting the rotary cutter. However, she set them aside on the offhand chance there would be a day like today.

After today, I will be in dialysis for three weeks and then on February 19, I am scheduled to receive a transplant. That in itself is a surreal thing to ponder.

Tasha is donating a kidney on February 17, to a person in need. She is doing this on my behalf. Whoever that individual is that is receiving Tasha’s kidney, has a family member or a friend who is donating a kidney on their behalf. I am the recipient of two separate acts of love. I am a man truly blessed.

I will write more on the other side of today’s events

I live by His grace and for His glory.

Jack

It has been awhile since we had an update… enjoy this Renal Log from my daddy! Renal LogsStardate: 25820.505On Friday, O...
11/09/2025

It has been awhile since we had an update… enjoy this Renal Log from my daddy!

Renal Logs

Stardate: 25820.505

On Friday, October 17, I was notified that I have been accepted into the transplant program at Houston Methodist Hospital (HMH). The process of interviews and testing was almost a full eight months to arrive at this point.

The process started with a meeting at the J.C. Walter Jr. Transplant Center in the Texas Medical Center. In that initial meeting there were eleven of us being introduced to the Transplant program at HMH. Initial vitals were taken at this meeting along with several vials of blood drawn to help evaluate if there was viability in being considered for the program.

A transplant coordinator nurse led us through a PowerPoint presentation of transplant term and processes. There were also several packets of paperwork to be completed. The participants were given one week to return the paperwork or be dropped from consideration.

The paperwork included providing the names of at least three people to be a part of my care team. For the transplant surgery, it is required of every transplant recipient to have their own care team who will be with them 24/7 for the duration of their hospital stay. It is expected that recipients will continue with their care team even at home for the next couple of weeks. In addition to the care team, we are required to have a backup driving team for transportation to and from the Medical Center as there are multiple appointments weekly and there is the possibility of emergency care needed day or night. Ubers are not permitted simply because the recipient’s immune system has been taken down to zero for the transplant and any commercial form of travel is at great risk of contaminants which can compromise a reduced immune response.

So, for my part of the journey, the next step is to have a full nephrectomy. The polycystic kidney disease has given me two kidneys with multiple cysts weighing in at north of 32 pounds. That volumetric analysis was completed some five-years ago.

Recent scans have shown that cysts measurements have increased, but I was never afforded the recent weight analysis. I know from the custom shirts I had to have made two years ago, my girth has increased. I will not know final weight of the diseased kidneys until I weigh in before and after the nephrectomy itself.

Now the clock is ticking for getting the nephrectomy completed. My doctors want at least two and preferably six weeks between the time the kidneys are removed, and the transplant is conducted. The interesting thing about the timing of things is that it is the donor who holds the calendar. I think that is a reasonable choice since it is their life that is being interrupted on the recipient’s behalf.

Currently, the donor sponsoring me into the program, our oldest daughter, Natasha, is the one in charge of the calendar. Her personal scheduling has priorities which must be consider. Together, we are looking at a February or March 2026, timeframe for the donation to occur. This schedule would put my nephrectomy at the end of December 2025, or early January 2026.

I have never asked for prayers concerning my kidney disease. I know people are praying for me and there are many who have been praying for me for a very long time in reference to this issue. For this I am grateful. But let me explain why I have never asked for prayers for myself.

I committed my life to my Lord and Savior, Jesus Christ, a very long time ago. Admittedly, I failed to live the life of a Christian for many years following that committed. God, however, never took His hand from me. For this I am humbled and grateful. And in His grace, God has always surrounded me with individuals who were better at seeing God’s hand on me than I was. These individuals allowed themselves to be used of God to teach me and guide me back into a proper relationship with God.

Through of all this, I learned that one should never tell God where to place His hands. I had the chance to preach on this idea a few Sundays past. My sermon came from the seventh chapter of the Gospel of Mark. It was the story of a man who was deaf and had trouble speaking, found in Mark 7:31-37.

In that story, Jesus was being asked by the crowd to place His hands on the man to heal him. The crowd apparently did not understand that God can heal with a word, a command, through forgiveness, a discussion, through spittle, with mud, by a thought, as well as through touch. In the Scriptures, we see Jesus using various means and different ways to accomplish healings, and it is all done to the glory of God. We even see Him healing when the individual never asked for healing. And sadly, so many that were healed by Jesus in the Scriptures never had a personal relationship with Him. Our Lord’s compassion for the plight of people was always greater than the desire of people to have a relationship with God. So, so many never found salvation from their sins. They used Jesus for what they could get, and because our Lord is compassionate, he gave and gave and gave.

The key understanding is that Jesus knows our needs. And watching the Scriptures unfold with story after story of healings and miracles, it was never my desire to use our Lord for my benefit. The blessed miracle of salvation was a gift of grace I never deserved. He already has done so much for me, I could not see myself asking Him for more. I realize that this is my personal walk with Jesus, and I make no such demand of any others.

In that sermon on Sunday, I told the church (again) that my intention is to live my life to the glory of God. Yes, I fall short. But my life is His, and I trust Him implicitly with His own will. If He desires that I be healed, I will give Him the glory. If He desires that I suffer, I trust that His purposes for me are for the purpose of His glory.

The truth is, I do not know How my life will be used in serving Him. It may be with encouragement that I give to someone who is assigned to care to for me. That encouragement may help them weather a storm in their life that I am unaware of. I believe that to be used by God to bring comfort or encouragement or direction is the honor of every believer.

So, even in my transplant journey, I may never get the transplant. I may wind up on dialysis for a short time or something may go awry in the process and I wind up on dialysis for life. If this is a part of God’s plan for my life, how can I tell the Benevolent Creator to the universe where to place His hands? He knows exactly when and where to place His hands.

He has already placed His hands on my soul. He saved from His wrath - - my life is His. That is all I truly need.

I say this all by His grace and for His glory.

Jack

Second round of donor testing blood work!!Hopefully dad is done with all his tests and our case can go to the review boa...
10/06/2025

Second round of donor testing blood work!!

Hopefully dad is done with all his tests and our case can go to the review board soon!

Houstonmethodistlivingdonor.org (this link is to become a live donor and must be used on a computer)



Life with kidney disease! Kidney disease comes in a wide variety of issues. Most common issues are: - Fatigue - Swelling...
07/27/2025

Life with kidney disease!

Kidney disease comes in a wide variety of issues.

Most common issues are:
- Fatigue
- Swelling
- Frequent urination

It grows into:
- High blood pressure
- Back pain
- Anemia
- Painful/bloody urination

It is not fun to live with… and there’s very little relief to be had for those that suffer.

Polycystic kidney disease adds the growth of cysts on the kidney to the list of above complaints. These cysts can sometimes be as big as the kidney themselves, such as in my dad’s case!

In the picture, a kidney is usually the size of a fist… the yellow tape shows how big his cysts are…

Please pray for our team at Methodist! We are ticking off the boxes, it’s a bunch of hurry up and wait, but we are celebrating that we did get approval to have the “native kidneys” removed!!! This is such great news

Houstonmethodistlivingdonor.org (this link is to become a live donor and must be used on a computer)




re

One step closer! 👏🏼 Houstonmethodistlivingdonor.org (this link is to become a live donor and must be used on a computer)...
07/23/2025

One step closer! 👏🏼

Houstonmethodistlivingdonor.org (this link is to become a live donor and must be used on a computer)



Another full day of testing! So far 14 vials of blood drawn 🧪 🩸Pulmonary review, finacials, and more! One step closer to...
07/10/2025

Another full day of testing!
So far 14 vials of blood drawn 🧪 🩸
Pulmonary review, finacials, and more!

One step closer to finding that match!!!

Houstonmethodistlivingdonor.org (this link is to become a live donor and must be used on a computer)



07/07/2025

First Donor class ✅
BP readings ✅
Call with Doctor Advocate is today!
Then labs and generic testing!

06/17/2025
In honor of Father’s Day this past weekend… here is another Renal log for your reading pleasure! This one is a bit longe...
06/17/2025

In honor of Father’s Day this past weekend… here is another Renal log for your reading pleasure!

This one is a bit longer so I changed the formatting.

Houstonmethodistlivingdonor.org (this link is to become a live donor and must be used on a computer)



✅ Nutritionist   ✅ Nephrologist team✅ Surgeon team✅ Social worker✅ {more} labs  ✅Walking testToday was a great day! Not ...
06/09/2025

✅ Nutritionist
✅ Nephrologist team
✅ Surgeon team
✅ Social worker
✅ {more} labs
✅Walking test

Today was a great day! Not only did dad pass his walking test… he exceeded it by 300+ feet… but also had no red flags so far!

📆 Next up will be imaging/scans and cardiology sign off! Then the packages goes to the Medical Board!

Address

7200 Cambridge St
Houston, TX
77030

Website

Alerts

Be the first to know and let us send you an email when Mr. G’s Kidney Disease - a journey with PKD posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram