05/25/2026
Seventy percent of people with PMOS, formerly PCOS, have no idea they have it.
After my piece on the name change ran in , my inbox filled up with messages from mothers writing about their daughters. Women who had watched their children struggle for years with fatigue, weight that wouldn't budge, irregular cycles, skin that never cooperated, and a quiet persistent sense that something was off. Women who had sat in exam rooms and been told everything looked fine. Daughters who had been handed an incomplete diagnosis, or no diagnosis at all, because medicine spent ninety years looking in the wrong place.
Seventy percent undiagnosed is not an abstract number. It is someone's daughter.
It is possibly you.
I wrote a follow-up on Substack today with what to look for, what to ask your doctor, and why the new name changes what gets found.
Link in bio. Share it with someone who needs it.